Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 I am not sure why you want to get the ketone level lower. You are getting seizure control with those ketone levels. The previous calorie level was likely too high. 1200 is a high number unless your child is very active or has a very high metabolism. We are on 830 calories and weaning the diet. You should review the prescription for the diet as it hasn't been right. Calorie level has a much bigger influence than ratio on seizure control and ketone levels. If you need to, go down to 3:1 or lower to get her eating again, but in the long term you need to do a lot of fine tuning. Bill nunudagne wrote: > > > My daughter has been on the ketogenic diet for exactly a year. Two > weeks ago, she had an episode of asthma and her appetite decreased. > She was on a short course of prednisone and asthma improved and got > better pretty quickly. She still was not eating much and had reduced > her calories by half (700 cals vs. 1200 cals) and as a result has > lost 2 lbs. We tested her blood ketones a week ago and she is at 12 > (normal levels are around 5-7). > > I have been giving her juice to try and breakup her ketones so she > can get her appetite back. She has had about 2-4 ounces of juice for > the past 4 days and she still will not eat. She has not eaten > anything solid for a week but has been drinking all her keto formula > (ross carb free soy, polycose, and microlipids), which we reduced > from 4:1 to 3.5:1 ratio. > > For the first time since she was about five months, my daughter is > seizure free these past two weeks. Obviously, the high level of > ketosis is giving her full seizure control (she used to have 15-20 > drops a day). > > I am very worried about her growth and nutrition and am wondering if > any of you have any suggestion on how to bring her ketone level lower. > I am considering having IV glucose given to her this monday if her > ketones ar still very high. > > By the was, her co2 & glucose level are fine, so she her acidosis > level is normal. > > Please let me know if you have and suggestions or have had this > experience. > > Nunu > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 Thanks for the replies to my message. I found out that my daughter's blood ketones are too high by a blood test that her nuerologist ordered (beta-hydroxybutryic acid), which shows she is at 12. I want to get her ketones lower so she can start eating solid food. She is 2 1/2 yrs old and has only been taking liquids (keto formula) for the past week. Her dietician has been adjusting her calories so she can gain better seizure control. We are now at a point where she has full seizure control, but it is at the expense of her not eating any solid food. Bill-Your suggestion to lower ratio to 3:1 is a good idea. I will be talking to the nuerologist and dietician tomorrow to see what other options we have. Any other suggestions anyone else has will be really helpful. Nunu > > > > > > My daughter has been on the ketogenic diet for exactly a year. Two > > weeks ago, she had an episode of asthma and her appetite decreased. > > She was on a short course of prednisone and asthma improved and got > > better pretty quickly. She still was not eating much and had reduced > > her calories by half (700 cals vs. 1200 cals) and as a result has > > lost 2 lbs. We tested her blood ketones a week ago and she is at 12 > > (normal levels are around 5-7). > > > > I have been giving her juice to try and breakup her ketones so she > > can get her appetite back. She has had about 2-4 ounces of juice for > > the past 4 days and she still will not eat. She has not eaten > > anything solid for a week but has been drinking all her keto formula > > (ross carb free soy, polycose, and microlipids), which we reduced > > from 4:1 to 3.5:1 ratio. > > > > For the first time since she was about five months, my daughter is > > seizure free these past two weeks. Obviously, the high level of > > ketosis is giving her full seizure control (she used to have 15- 20 > > drops a day). > > > > I am very worried about her growth and nutrition and am wondering if > > any of you have any suggestion on how to bring her ketone level lower. > > I am considering having IV glucose given to her this monday if her > > ketones ar still very high. > > > > By the was, her co2 & glucose level are fine, so she her acidosis > > level is normal. > > > > Please let me know if you have and suggestions or have had this > > experience. > > > > Nunu > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 I'd consider decreasing the ratio to 3:1 and see how it goes. Debbie (mom to Bryce 5 1/2 ketokid since 9/03) > > > My daughter has been on the ketogenic diet for exactly a year. Two > weeks ago, she had an episode of asthma and her appetite decreased. > She was on a short course of prednisone and asthma improved and got > better pretty quickly. She still was not eating much and had reduced > her calories by half (700 cals vs. 1200 cals) and as a result has > lost 2 lbs. We tested her blood ketones a week ago and she is at 12 > (normal levels are around 5-7). > > I have been giving her juice to try and breakup her ketones so she > can get her appetite back. She has had about 2-4 ounces of juice for > the past 4 days and she still will not eat. She has not eaten > anything solid for a week but has been drinking all her keto formula > (ross carb free soy, polycose, and microlipids), which we reduced > from 4:1 to 3.5:1 ratio. > > For the first time since she was about five months, my daughter is > seizure free these past two weeks. Obviously, the high level of > ketosis is giving her full seizure control (she used to have 15-20 > drops a day). > > I am very worried about her growth and nutrition and am wondering if > any of you have any suggestion on how to bring her ketone level lower. > I am considering having IV glucose given to her this monday if her > ketones ar still very high. > > By the was, her co2 & glucose level are fine, so she her acidosis > level is normal. > > Please let me know if you have and suggestions or have had this > experience. > > Nunu Quote Link to comment Share on other sites More sharing options...
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