Re: Question and concern - bulging above my sons ears...

[Guest guest]

bulging over the ears is sometimes associated with brachy (flat in

back). The head gets wider with brachy since it isn't growing in the

back. this causes the bulging above the ears. You may still want to

see the doctor to confirm what this is, also you mention plagio but

not brachy for your baby. I haven't heard about the bulging with

plagio but it may be the case too (our daughter just has brachy).

Since you're not seeing much improvement with the repo I would go

ahead and band as soon as possible. It depends on your childs age and

if they are growing, but we saw improvement within 2 weeks.

Good luck

- christine

mom to sydney/ 7 mo / starband 5-31-06

>

> I joined this group about three weeks ago when my son was first

> diagnosed with mild tort and mild-moderate plagio. We've been doing

> repositional therapy for about 1 1/2 months now, ever since we started

> noticing the flat spots and lopsided head not improving. We've also

> started physical therapy just this week for the tort. After about

> three weeks of repositinal therapy we noticed slight improvements but

> the improvements have stopped(very discouraging).

>

> I'm noticing a new symptom now which I'm not sure is part of the

> plagio. I noticed the symptom about a week ago but didn't really think

> anything of it. Then today it was very noticeable, now I'm concerned!

> I was hoping someone could reply and let me know there thoughts if

> they've noticed the same thing on their children.

>

> Above both my sons ears for about a 1/2 " - 1 " inch area, his head has

> started to bulge out on both sides of his head. Is this pretty normal

> with plagio? Should I wait for our six month check up with the cranial

> specialist to see what happens? Our appointment isn't until Spetember

> 8th, which at this point seems a long ways away, or should I call and

> try to get in sooner? Has anyone else experienced this? Is this a sign

> of the plagio getting worse again? At this point I'm wondering if we

> should just band/helmet rather than wait it out and see what happens,

> which is what the cranial specialist initially recommended.

>

> Please send me your thoughts.

>

> Thanks,

> D'

>

[Guest guest]

My son DJ has plagio/brachy. He has the same bulging above the ears

that you describe. Yesterday he was casted for a DOCBand at CT

Houston. The ortho told me that the bulging will not go away, even

with the DOCBand. Some aspects of the " deformation " are correctable

and some are not. This, apparently is one of them that is not.

We are hoping that with DocBand treatment DJ's skull will fall within

the " normal " range. We are not expecting perfection. If your

craniofacial doctor is recommending a helmet, this doctor is very

forward-thinking. I cannot be a cheerleader for the results of

traetment as this point, since we are just beginning the process. But

I say get the cranio doc to give you a prescription for the helmet

and get on with it!

> >

> > I joined this group about three weeks ago when my son was first

> > diagnosed with mild tort and mild-moderate plagio. We've been

doing

> > repositional therapy for about 1 1/2 months now, ever since we

started

> > noticing the flat spots and lopsided head not improving. We've

also

> > started physical therapy just this week for the tort. After about

> > three weeks of repositinal therapy we noticed slight improvements

but

> > the improvements have stopped(very discouraging).

> >

> > I'm noticing a new symptom now which I'm not sure is part of the

> > plagio. I noticed the symptom about a week ago but didn't really

think

> > anything of it. Then today it was very noticeable, now I'm

concerned!

> > I was hoping someone could reply and let me know there thoughts if

> > they've noticed the same thing on their children.

> >

> > Above both my sons ears for about a 1/2 " - 1 " inch area, his head

has

> > started to bulge out on both sides of his head. Is this pretty

normal

> > with plagio? Should I wait for our six month check up with the

cranial

> > specialist to see what happens? Our appointment isn't until

Spetember

> > 8th, which at this point seems a long ways away, or should I call

and

> > try to get in sooner? Has anyone else experienced this? Is this a

sign

> > of the plagio getting worse again? At this point I'm wondering if

we

> > should just band/helmet rather than wait it out and see what

happens,

> > which is what the cranial specialist initially recommended.

> >

> > Please send me your thoughts.

> >

> > Thanks,

> > D'

> >

>

[Guest guest]

Is your son's flatness across the back of his head? The bulging

above the ears and the subsequent pushing out of the ears is

definitely a symptom of brachy. Many bracy babies have the same ear

shape and positin.

Becky

, repo grad

>

> I joined this group about three weeks ago when my son was first

> diagnosed with mild tort and mild-moderate plagio. We've been doing

> repositional therapy for about 1 1/2 months now, ever since we

started

> noticing the flat spots and lopsided head not improving. We've also

> started physical therapy just this week for the tort. After about

> three weeks of repositinal therapy we noticed slight improvements

but

> the improvements have stopped(very discouraging).

>

> I'm noticing a new symptom now which I'm not sure is part of the

> plagio. I noticed the symptom about a week ago but didn't really

think

> anything of it. Then today it was very noticeable, now I'm

concerned!

> I was hoping someone could reply and let me know there thoughts if

> they've noticed the same thing on their children.

>

> Above both my sons ears for about a 1/2 " - 1 " inch area, his head

has

> started to bulge out on both sides of his head. Is this pretty

normal

> with plagio? Should I wait for our six month check up with the

cranial

> specialist to see what happens? Our appointment isn't until

Spetember

> 8th, which at this point seems a long ways away, or should I call

and

> try to get in sooner? Has anyone else experienced this? Is this a

sign

> of the plagio getting worse again? At this point I'm wondering if

we

> should just band/helmet rather than wait it out and see what

happens,

> which is what the cranial specialist initially recommended.

>

> Please send me your thoughts.

>

> Thanks,

> D'

>

[Guest guest]

Actually, its flat on one side and then bulges on the left side in the

back, but above his ears on both sides bulge out. This is a new

symptom just within the last week. We've been doing so much the last

month and a half, got rid of the bouncy seat, got rid of the infant

car seat, repositioning in the crib, doing physical therapy, bought a

front pack carrier for when we are out so we don't use the stroller,

doing tummy time. It's just kind of frustrating when you think your

doing all the right things and then a new development pops up like this.

We go see a family doctor and I brought my son with me today when I

had an appointment, just thought I would ask while we were there. He

confirmed above my sons ears have started bulging out but he said this

area of medicine is so specialized he would rather we talk directly

with the specialist to rule out early sutures closing. I called the

specialist twice today but have not had a call back.

Thanks to everyone for the feedback, its much appreciated!

> >

> > I joined this group about three weeks ago when my son was first

> > diagnosed with mild tort and mild-moderate plagio. We've been doing

> > repositional therapy for about 1 1/2 months now, ever since we

> started

> > noticing the flat spots and lopsided head not improving. We've also

> > started physical therapy just this week for the tort. After about

> > three weeks of repositinal therapy we noticed slight improvements

> but

> > the improvements have stopped(very discouraging).

> >

> > I'm noticing a new symptom now which I'm not sure is part of the

> > plagio. I noticed the symptom about a week ago but didn't really

> think

> > anything of it. Then today it was very noticeable, now I'm

> concerned!

> > I was hoping someone could reply and let me know there thoughts if

> > they've noticed the same thing on their children.

> >

> > Above both my sons ears for about a 1/2 " - 1 " inch area, his head

> has

> > started to bulge out on both sides of his head. Is this pretty

> normal

> > with plagio? Should I wait for our six month check up with the

> cranial

> > specialist to see what happens? Our appointment isn't until

> Spetember

> > 8th, which at this point seems a long ways away, or should I call

> and

> > try to get in sooner? Has anyone else experienced this? Is this a

> sign

> > of the plagio getting worse again? At this point I'm wondering if

> we

> > should just band/helmet rather than wait it out and see what

> happens,

> > which is what the cranial specialist initially recommended.

> >

> > Please send me your thoughts.

> >

> > Thanks,

> > D'

> >

>

[Guest guest]

Helly D'

If this is plagio and not brachy like you said it is one sided then

I would call your doc and have them take a look at it. Better safe

than sorry.

Let us know what they say.

Sandy Willow's Mom

>

> I joined this group about three weeks ago when my son was first

> diagnosed with mild tort and mild-moderate plagio. We've been doing

> repositional therapy for about 1 1/2 months now, ever since we

started

> noticing the flat spots and lopsided head not improving. We've also

> started physical therapy just this week for the tort. After about

> three weeks of repositinal therapy we noticed slight improvements

but

> the improvements have stopped(very discouraging).

>

> I'm noticing a new symptom now which I'm not sure is part of the

> plagio. I noticed the symptom about a week ago but didn't really

think

> anything of it. Then today it was very noticeable, now I'm

concerned!

> I was hoping someone could reply and let me know there thoughts if

> they've noticed the same thing on their children.

>

> Above both my sons ears for about a 1/2 " - 1 " inch area, his head

has

> started to bulge out on both sides of his head. Is this pretty

normal

> with plagio? Should I wait for our six month check up with the

cranial

> specialist to see what happens? Our appointment isn't until

Spetember

> 8th, which at this point seems a long ways away, or should I call

and

> try to get in sooner? Has anyone else experienced this? Is this a

sign

> of the plagio getting worse again? At this point I'm wondering if

we

> should just band/helmet rather than wait it out and see what

happens,

> which is what the cranial specialist initially recommended.

>

> Please send me your thoughts.

>

> Thanks,

> D'

>