Re: alyanna and others not getting cochlear implant

[Guest guest]

In a message dated 8/15/2006 11:14:42 PM Eastern Daylight Time,

Gdavcat3@... writes:

Maybe I am in the wrong group..cause my son is 93 % DEAF????

Not 80 percent hearing...what gives? Is this a joke???

I'm not sure the history behind this comment, but of course you are in the

right place. It's a place for parents of both deaf and HOH (hard of hearing)

kids. All levels of loss are valid, whether we refer to our kids as how deaf

they are or how much hearing they still have depends on how things were

explained to us or our perhaps on our personal philosophies.

Many of us have heard that he comments that our kids are " not deaf enough "

and others that theirs are not hearing enough. But those are biases for other

places, not here.

Here, the point is not our children's levels of loss, but how to support

their needs and to find the support in the community/company of other parents.

Plus ... the moderators screen us before we can join, and if you're here

exchanging emails, then you belong here.

Best -- Jill

[Guest guest]

In a message dated 8/15/2006 11:14:42 PM Eastern Daylight Time,

Gdavcat3@... writes:

Maybe I am in the wrong group..cause my son is 93 % DEAF????

Not 80 percent hearing...what gives? Is this a joke???

I'm not sure the history behind this comment, but of course you are in the

right place. It's a place for parents of both deaf and HOH (hard of hearing)

kids. All levels of loss are valid, whether we refer to our kids as how deaf

they are or how much hearing they still have depends on how things were

explained to us or our perhaps on our personal philosophies.

Many of us have heard that he comments that our kids are " not deaf enough "

and others that theirs are not hearing enough. But those are biases for other

places, not here.

Here, the point is not our children's levels of loss, but how to support

their needs and to find the support in the community/company of other parents.

Plus ... the moderators screen us before we can join, and if you're here

exchanging emails, then you belong here.

Best -- Jill

[Guest guest]

In a message dated 8/15/2006 11:14:42 PM Eastern Daylight Time,

Gdavcat3@... writes:

Maybe I am in the wrong group..cause my son is 93 % DEAF????

Not 80 percent hearing...what gives? Is this a joke???

I'm not sure the history behind this comment, but of course you are in the

right place. It's a place for parents of both deaf and HOH (hard of hearing)

kids. All levels of loss are valid, whether we refer to our kids as how deaf

they are or how much hearing they still have depends on how things were

explained to us or our perhaps on our personal philosophies.

Many of us have heard that he comments that our kids are " not deaf enough "

and others that theirs are not hearing enough. But those are biases for other

places, not here.

Here, the point is not our children's levels of loss, but how to support

their needs and to find the support in the community/company of other parents.

Plus ... the moderators screen us before we can join, and if you're here

exchanging emails, then you belong here.

Best -- Jill

[Guest guest]

Maybe I am in the wrong group..cause my son is 93 % DEAF????

Not 80 percent hearing...what gives? Is this a joke???

-- alyanna and others not getting cochlear implant

i'm confused and have missed some posts, i'm afraid...

this concerns alyanna...are you saying that alyanna hears at about 80%? how

old is she?

our sydney was born with moderate/severe in her L and mild/moderate in R . .

.. and we never knew she had a problem until she was 3 1/2 . . . she did

extremely well despite that, picking up language and developing in that

realm very well, largely due to the fact that i talk a lot (lol) and she

learned to speech-read really well, too. i am just trying to say that your

child will probably be fine without the cochlear implant she can't seem to

get. our daughter has phonak extras right now and hears some more things

now, such as she can distinguish between thunder and airplanes now, etc.

i may be way off base...not sure if your child has progressive loss, etc.

please pardon me if i have spoken way off base. i don't seem to find your

child in my saved emails tonight, so i do not know your particulars. just

trying to give you some hope (if i am on base, that is)

robin

(tired from our awesome cruise vacation--can't tell, can you? am i loopy?

lol)

--

Robin Tomlinson

thetomlinsons@...

[Guest guest]

Maybe I am in the wrong group..cause my son is 93 % DEAF????

Not 80 percent hearing...what gives? Is this a joke???

-- alyanna and others not getting cochlear implant

i'm confused and have missed some posts, i'm afraid...

this concerns alyanna...are you saying that alyanna hears at about 80%? how

old is she?

our sydney was born with moderate/severe in her L and mild/moderate in R . .

.. and we never knew she had a problem until she was 3 1/2 . . . she did

extremely well despite that, picking up language and developing in that

realm very well, largely due to the fact that i talk a lot (lol) and she

learned to speech-read really well, too. i am just trying to say that your

child will probably be fine without the cochlear implant she can't seem to

get. our daughter has phonak extras right now and hears some more things

now, such as she can distinguish between thunder and airplanes now, etc.

i may be way off base...not sure if your child has progressive loss, etc.

please pardon me if i have spoken way off base. i don't seem to find your

child in my saved emails tonight, so i do not know your particulars. just

trying to give you some hope (if i am on base, that is)

robin

(tired from our awesome cruise vacation--can't tell, can you? am i loopy?

lol)

--

Robin Tomlinson

thetomlinsons@...

[Guest guest]

no joke...this group is for deaf and hoh...i'm sorry to confuse you. i

thought i read a post about a little girl who had 80% word recognition so

the mom couldn't get her implanted...i was confused by her post and was

trying to make sense of it all.

>

> Maybe I am in the wrong group..cause my son is 93 % DEAF????

>

> Not 80 percent hearing...what gives? Is this a joke???

>

>

> -- alyanna and others not getting cochlear implant

>

> i'm confused and have missed some posts, i'm afraid...

>

> this concerns alyanna...are you saying that alyanna hears at about 80%?

> how

>

> old is she?

>

> our sydney was born with moderate/severe in her L and mild/moderate in R .

> .

>

> . and we never knew she had a problem until she was 3 1/2 . . . she did

>

> extremely well despite that, picking up language and developing in that

>

> realm very well, largely due to the fact that i talk a lot (lol) and she

>

> learned to speech-read really well, too. i am just trying to say that your

>

> child will probably be fine without the cochlear implant she can't seem to

>

> get. our daughter has phonak extras right now and hears some more things

>

> now, such as she can distinguish between thunder and airplanes now, etc.

>

> i may be way off base...not sure if your child has progressive loss, etc.

>

> please pardon me if i have spoken way off base. i don't seem to find your

>

> child in my saved emails tonight, so i do not know your particulars. just

>

> trying to give you some hope (if i am on base, that is)

>

> robin

>

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

>

> lol)

>

> --

>

> Robin Tomlinson

>

> thetomlinsons@...

>

>

[Guest guest]

no joke...this group is for deaf and hoh...i'm sorry to confuse you. i

thought i read a post about a little girl who had 80% word recognition so

the mom couldn't get her implanted...i was confused by her post and was

trying to make sense of it all.

>

> Maybe I am in the wrong group..cause my son is 93 % DEAF????

>

> Not 80 percent hearing...what gives? Is this a joke???

>

>

> -- alyanna and others not getting cochlear implant

>

> i'm confused and have missed some posts, i'm afraid...

>

> this concerns alyanna...are you saying that alyanna hears at about 80%?

> how

>

> old is she?

>

> our sydney was born with moderate/severe in her L and mild/moderate in R .

> .

>

> . and we never knew she had a problem until she was 3 1/2 . . . she did

>

> extremely well despite that, picking up language and developing in that

>

> realm very well, largely due to the fact that i talk a lot (lol) and she

>

> learned to speech-read really well, too. i am just trying to say that your

>

> child will probably be fine without the cochlear implant she can't seem to

>

> get. our daughter has phonak extras right now and hears some more things

>

> now, such as she can distinguish between thunder and airplanes now, etc.

>

> i may be way off base...not sure if your child has progressive loss, etc.

>

> please pardon me if i have spoken way off base. i don't seem to find your

>

> child in my saved emails tonight, so i do not know your particulars. just

>

> trying to give you some hope (if i am on base, that is)

>

> robin

>

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

>

> lol)

>

> --

>

> Robin Tomlinson

>

> thetomlinsons@...

>

>

[Guest guest]

no joke...this group is for deaf and hoh...i'm sorry to confuse you. i

thought i read a post about a little girl who had 80% word recognition so

the mom couldn't get her implanted...i was confused by her post and was

trying to make sense of it all.

>

> Maybe I am in the wrong group..cause my son is 93 % DEAF????

>

> Not 80 percent hearing...what gives? Is this a joke???

>

>

> -- alyanna and others not getting cochlear implant

>

> i'm confused and have missed some posts, i'm afraid...

>

> this concerns alyanna...are you saying that alyanna hears at about 80%?

> how

>

> old is she?

>

> our sydney was born with moderate/severe in her L and mild/moderate in R .

> .

>

> . and we never knew she had a problem until she was 3 1/2 . . . she did

>

> extremely well despite that, picking up language and developing in that

>

> realm very well, largely due to the fact that i talk a lot (lol) and she

>

> learned to speech-read really well, too. i am just trying to say that your

>

> child will probably be fine without the cochlear implant she can't seem to

>

> get. our daughter has phonak extras right now and hears some more things

>

> now, such as she can distinguish between thunder and airplanes now, etc.

>

> i may be way off base...not sure if your child has progressive loss, etc.

>

> please pardon me if i have spoken way off base. i don't seem to find your

>

> child in my saved emails tonight, so i do not know your particulars. just

>

> trying to give you some hope (if i am on base, that is)

>

> robin

>

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

>

> lol)

>

> --

>

> Robin Tomlinson

>

> thetomlinsons@...

>

>

[Guest guest]

Cathy - you're not in the wrong group at all! Listen-up is open to

parents who have kids with hearing loss, period.

Interesting that all you guys are quoting percentages since I've never

heard of that with regard to a hearing loss except for tests like word

recognition, etc.

My Sam - unaided/without his implant processor - has a 95/100 db hearing

loss; Tom's is 75 db.

Cathy Lyons-Guidish wrote:

> Maybe I am in the wrong group..cause my son is 93 % DEAF????

>

> Not 80 percent hearing...what gives? Is this a joke???

>

>

>

>

>

> -- alyanna and others not getting cochlear implant

>

>

>

> i'm confused and have missed some posts, i'm afraid...

>

>

>

> this concerns alyanna...are you saying that alyanna hears at about 80%? how

>

> old is she?

>

>

>

> our sydney was born with moderate/severe in her L and mild/moderate in R . .

>

> . and we never knew she had a problem until she was 3 1/2 . . . she did

>

> extremely well despite that, picking up language and developing in that

>

> realm very well, largely due to the fact that i talk a lot (lol) and she

>

> learned to speech-read really well, too. i am just trying to say that your

>

> child will probably be fine without the cochlear implant she can't seem to

>

> get. our daughter has phonak extras right now and hears some more things

>

> now, such as she can distinguish between thunder and airplanes now, etc.

>

>

>

> i may be way off base...not sure if your child has progressive loss, etc.

>

> please pardon me if i have spoken way off base. i don't seem to find your

>

> child in my saved emails tonight, so i do not know your particulars. just

>

> trying to give you some hope (if i am on base, that is)

>

>

>

> robin

>

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

>

> lol)

>

>

>

>

--

****************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall, HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

Cathy - you're not in the wrong group at all! Listen-up is open to

parents who have kids with hearing loss, period.

Interesting that all you guys are quoting percentages since I've never

heard of that with regard to a hearing loss except for tests like word

recognition, etc.

My Sam - unaided/without his implant processor - has a 95/100 db hearing

loss; Tom's is 75 db.

Cathy Lyons-Guidish wrote:

> Maybe I am in the wrong group..cause my son is 93 % DEAF????

>

> Not 80 percent hearing...what gives? Is this a joke???

>

>

>

>

>

> -- alyanna and others not getting cochlear implant

>

>

>

> i'm confused and have missed some posts, i'm afraid...

>

>

>

> this concerns alyanna...are you saying that alyanna hears at about 80%? how

>

> old is she?

>

>

>

> our sydney was born with moderate/severe in her L and mild/moderate in R . .

>

> . and we never knew she had a problem until she was 3 1/2 . . . she did

>

> extremely well despite that, picking up language and developing in that

>

> realm very well, largely due to the fact that i talk a lot (lol) and she

>

> learned to speech-read really well, too. i am just trying to say that your

>

> child will probably be fine without the cochlear implant she can't seem to

>

> get. our daughter has phonak extras right now and hears some more things

>

> now, such as she can distinguish between thunder and airplanes now, etc.

>

>

>

> i may be way off base...not sure if your child has progressive loss, etc.

>

> please pardon me if i have spoken way off base. i don't seem to find your

>

> child in my saved emails tonight, so i do not know your particulars. just

>

> trying to give you some hope (if i am on base, that is)

>

>

>

> robin

>

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

>

> lol)

>

>

>

>

--

****************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall, HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

Cathy - you're not in the wrong group at all! Listen-up is open to

parents who have kids with hearing loss, period.

Interesting that all you guys are quoting percentages since I've never

heard of that with regard to a hearing loss except for tests like word

recognition, etc.

My Sam - unaided/without his implant processor - has a 95/100 db hearing

loss; Tom's is 75 db.

Cathy Lyons-Guidish wrote:

> Maybe I am in the wrong group..cause my son is 93 % DEAF????

>

> Not 80 percent hearing...what gives? Is this a joke???

>

>

>

>

>

> -- alyanna and others not getting cochlear implant

>

>

>

> i'm confused and have missed some posts, i'm afraid...

>

>

>

> this concerns alyanna...are you saying that alyanna hears at about 80%? how

>

> old is she?

>

>

>

> our sydney was born with moderate/severe in her L and mild/moderate in R . .

>

> . and we never knew she had a problem until she was 3 1/2 . . . she did

>

> extremely well despite that, picking up language and developing in that

>

> realm very well, largely due to the fact that i talk a lot (lol) and she

>

> learned to speech-read really well, too. i am just trying to say that your

>

> child will probably be fine without the cochlear implant she can't seem to

>

> get. our daughter has phonak extras right now and hears some more things

>

> now, such as she can distinguish between thunder and airplanes now, etc.

>

>

>

> i may be way off base...not sure if your child has progressive loss, etc.

>

> please pardon me if i have spoken way off base. i don't seem to find your

>

> child in my saved emails tonight, so i do not know your particulars. just

>

> trying to give you some hope (if i am on base, that is)

>

>

>

> robin

>

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

>

> lol)

>

>

>

>

--

****************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall, HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

I'd also say - for those of you looking into cochlear implants for your

kids - a word about the testing. I know that each implant center is a

bit different but ours gave our boys two tests. One was the word

recognition test, the other was called HINT - it's a test where a short

sentence is read, such as " close the window " that the person then says

back to the audiologist. I think the word recognition test really is a

truer representation of what the child actually HEARS because there's no

context. The sentence test, however, I don't believe is reliable or

valid. A smart, oral kid can figure out often the whole sentence

because of context. So if my Sam hears " Close the xxlkjljkkj " (doesn't

hear the last word) he may well fill in the blanks to get the word

window and get it right, even though he didn't actually hear what was

being said.

When Sam was going through testing - and his HINT test was borderline at

58% - I told him to only repeat back what he knows he heard and not try

to fill in the blanks. I would never tell him to cheat and not say back

something that he heard but I think it makes it a more accurate test...

of course, Sam is 11 and different from a younger child.

, you could also have your audiologist do testing on just the " bad "

ear. I believe thresholds are different for one ear than both (seems

like the acceptable level for implanting for two ears is 60% or better

but for one it was 50% or better). So perhaps she could be tested with

just that ear?

Take care!

Barbara

Alvarez wrote:

> Hello Robin,

> Alyanna is 7 years old. Right now she has a hearing aid on her left ear and

none on her right. She's moderate/severe on L and profound on R. They told me a

hearing aid wouldn't do anything for her on her L since she has over 90% hearing

loss on that ear and on her right is 60% loss. I was trying to get a cochlear

implant on her left ear since all her hearing is almost gone. The audiologist

said with a " super " hearing aid on that ear she would hear some kind of noise

but no word recognition at all. But on the other hand, her right ear eventhough

she has 60% hearing loss with the hearing aide she gets 80% word recognition

(she missed 2 out of 10 words).

>

> I hope this makes a little sense..... If not I can get into more details if

you have any questions. My next step now is to find a good AV therapist...no

luck so far.

>

> I also want to thank everyone for their helpful comments during this

mission.

>

> Blessings,

> in FL

>

>

> Robin Tomlinson thetomlinsons@...> wrote:

> i'm confused and have missed some posts, i'm afraid...

>

> this concerns alyanna...are you saying that alyanna hears at about 80%? how

> old is she?

>

> our sydney was born with moderate/severe in her L and mild/moderate in R . .

> . and we never knew she had a problem until she was 3 1/2 . . . she did

> extremely well despite that, picking up language and developing in that

> realm very well, largely due to the fact that i talk a lot (lol) and she

> learned to speech-read really well, too. i am just trying to say that your

> child will probably be fine without the cochlear implant she can't seem to

> get. our daughter has phonak extras right now and hears some more things

> now, such as she can distinguish between thunder and airplanes now, etc.

>

> i may be way off base...not sure if your child has progressive loss, etc.

> please pardon me if i have spoken way off base. i don't seem to find your

> child in my saved emails tonight, so i do not know your particulars. just

> trying to give you some hope (if i am on base, that is)

>

> robin

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

> lol)

>

>

--

****************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall, HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

I'd also say - for those of you looking into cochlear implants for your

kids - a word about the testing. I know that each implant center is a

bit different but ours gave our boys two tests. One was the word

recognition test, the other was called HINT - it's a test where a short

sentence is read, such as " close the window " that the person then says

back to the audiologist. I think the word recognition test really is a

truer representation of what the child actually HEARS because there's no

context. The sentence test, however, I don't believe is reliable or

valid. A smart, oral kid can figure out often the whole sentence

because of context. So if my Sam hears " Close the xxlkjljkkj " (doesn't

hear the last word) he may well fill in the blanks to get the word

window and get it right, even though he didn't actually hear what was

being said.

When Sam was going through testing - and his HINT test was borderline at

58% - I told him to only repeat back what he knows he heard and not try

to fill in the blanks. I would never tell him to cheat and not say back

something that he heard but I think it makes it a more accurate test...

of course, Sam is 11 and different from a younger child.

, you could also have your audiologist do testing on just the " bad "

ear. I believe thresholds are different for one ear than both (seems

like the acceptable level for implanting for two ears is 60% or better

but for one it was 50% or better). So perhaps she could be tested with

just that ear?

Take care!

Barbara

Alvarez wrote:

> Hello Robin,

> Alyanna is 7 years old. Right now she has a hearing aid on her left ear and

none on her right. She's moderate/severe on L and profound on R. They told me a

hearing aid wouldn't do anything for her on her L since she has over 90% hearing

loss on that ear and on her right is 60% loss. I was trying to get a cochlear

implant on her left ear since all her hearing is almost gone. The audiologist

said with a " super " hearing aid on that ear she would hear some kind of noise

but no word recognition at all. But on the other hand, her right ear eventhough

she has 60% hearing loss with the hearing aide she gets 80% word recognition

(she missed 2 out of 10 words).

>

> I hope this makes a little sense..... If not I can get into more details if

you have any questions. My next step now is to find a good AV therapist...no

luck so far.

>

> I also want to thank everyone for their helpful comments during this

mission.

>

> Blessings,

> in FL

>

>

> Robin Tomlinson thetomlinsons@...> wrote:

> i'm confused and have missed some posts, i'm afraid...

>

> this concerns alyanna...are you saying that alyanna hears at about 80%? how

> old is she?

>

> our sydney was born with moderate/severe in her L and mild/moderate in R . .

> . and we never knew she had a problem until she was 3 1/2 . . . she did

> extremely well despite that, picking up language and developing in that

> realm very well, largely due to the fact that i talk a lot (lol) and she

> learned to speech-read really well, too. i am just trying to say that your

> child will probably be fine without the cochlear implant she can't seem to

> get. our daughter has phonak extras right now and hears some more things

> now, such as she can distinguish between thunder and airplanes now, etc.

>

> i may be way off base...not sure if your child has progressive loss, etc.

> please pardon me if i have spoken way off base. i don't seem to find your

> child in my saved emails tonight, so i do not know your particulars. just

> trying to give you some hope (if i am on base, that is)

>

> robin

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

> lol)

>

>

--

****************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall, HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

I'd also say - for those of you looking into cochlear implants for your

kids - a word about the testing. I know that each implant center is a

bit different but ours gave our boys two tests. One was the word

recognition test, the other was called HINT - it's a test where a short

sentence is read, such as " close the window " that the person then says

back to the audiologist. I think the word recognition test really is a

truer representation of what the child actually HEARS because there's no

context. The sentence test, however, I don't believe is reliable or

valid. A smart, oral kid can figure out often the whole sentence

because of context. So if my Sam hears " Close the xxlkjljkkj " (doesn't

hear the last word) he may well fill in the blanks to get the word

window and get it right, even though he didn't actually hear what was

being said.

When Sam was going through testing - and his HINT test was borderline at

58% - I told him to only repeat back what he knows he heard and not try

to fill in the blanks. I would never tell him to cheat and not say back

something that he heard but I think it makes it a more accurate test...

of course, Sam is 11 and different from a younger child.

, you could also have your audiologist do testing on just the " bad "

ear. I believe thresholds are different for one ear than both (seems

like the acceptable level for implanting for two ears is 60% or better

but for one it was 50% or better). So perhaps she could be tested with

just that ear?

Take care!

Barbara

Alvarez wrote:

> Hello Robin,

> Alyanna is 7 years old. Right now she has a hearing aid on her left ear and

none on her right. She's moderate/severe on L and profound on R. They told me a

hearing aid wouldn't do anything for her on her L since she has over 90% hearing

loss on that ear and on her right is 60% loss. I was trying to get a cochlear

implant on her left ear since all her hearing is almost gone. The audiologist

said with a " super " hearing aid on that ear she would hear some kind of noise

but no word recognition at all. But on the other hand, her right ear eventhough

she has 60% hearing loss with the hearing aide she gets 80% word recognition

(she missed 2 out of 10 words).

>

> I hope this makes a little sense..... If not I can get into more details if

you have any questions. My next step now is to find a good AV therapist...no

luck so far.

>

> I also want to thank everyone for their helpful comments during this

mission.

>

> Blessings,

> in FL

>

>

> Robin Tomlinson thetomlinsons@...> wrote:

> i'm confused and have missed some posts, i'm afraid...

>

> this concerns alyanna...are you saying that alyanna hears at about 80%? how

> old is she?

>

> our sydney was born with moderate/severe in her L and mild/moderate in R . .

> . and we never knew she had a problem until she was 3 1/2 . . . she did

> extremely well despite that, picking up language and developing in that

> realm very well, largely due to the fact that i talk a lot (lol) and she

> learned to speech-read really well, too. i am just trying to say that your

> child will probably be fine without the cochlear implant she can't seem to

> get. our daughter has phonak extras right now and hears some more things

> now, such as she can distinguish between thunder and airplanes now, etc.

>

> i may be way off base...not sure if your child has progressive loss, etc.

> please pardon me if i have spoken way off base. i don't seem to find your

> child in my saved emails tonight, so i do not know your particulars. just

> trying to give you some hope (if i am on base, that is)

>

> robin

> (tired from our awesome cruise vacation--can't tell, can you? am i loopy?

> lol)

>

>

--

****************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

13A Silsby Hall, HB 6121

Hanover NH 03755

Telephone: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

> Interesting that all you guys are quoting percentages since I've

never

> heard of that with regard to a hearing loss except for tests like

word

> recognition, etc.

>..

Yeah Barb,

That bothers me when audi's do that. We have seen some world reknowned

audi due to Jake's diagnosis and they all said it in totally

inappropriate to use percentages for loss. You should get a severe to

profound, mild, mild to moderate type diagnosis. The literature from

Beginnings used to say be leery of audi's that use percentages as it is

not a true indicator of loss but I don't know what it says now,

Elaine

[Guest guest]

> Interesting that all you guys are quoting percentages since I've

never

> heard of that with regard to a hearing loss except for tests like

word

> recognition, etc.

>..

Yeah Barb,

That bothers me when audi's do that. We have seen some world reknowned

audi due to Jake's diagnosis and they all said it in totally

inappropriate to use percentages for loss. You should get a severe to

profound, mild, mild to moderate type diagnosis. The literature from

Beginnings used to say be leery of audi's that use percentages as it is

not a true indicator of loss but I don't know what it says now,

Elaine

[Guest guest]

>

>

> >..

>

> Yeah Barb,

> That bothers me when audi's do that. We have seen some world

reknowned

> audi >>>

I can't spell today and hit send to early. ugh...

Some audi's do still use it. THere is an alogorithm program for

computers that they can key the dB info into to get a

percentage...but to me that still does not " really " tell you anything

because it is not frequency specific. I guess people may understand

percentages better.

Jake's teacher told me he has a 60% hearing loss and I was left

wondering what frequency, what dB and all that stuff. He lost his

hearing at a rock concert so I assume it is high frequency loss.

Elaine

[Guest guest]

>

>

> >..

>

> Yeah Barb,

> That bothers me when audi's do that. We have seen some world

reknowned

> audi >>>

I can't spell today and hit send to early. ugh...

Some audi's do still use it. THere is an alogorithm program for

computers that they can key the dB info into to get a

percentage...but to me that still does not " really " tell you anything

because it is not frequency specific. I guess people may understand

percentages better.

Jake's teacher told me he has a 60% hearing loss and I was left

wondering what frequency, what dB and all that stuff. He lost his

hearing at a rock concert so I assume it is high frequency loss.

Elaine

[Guest guest]

>

>

> >..

>

> Yeah Barb,

> That bothers me when audi's do that. We have seen some world

reknowned

> audi >>>

I can't spell today and hit send to early. ugh...

Some audi's do still use it. THere is an alogorithm program for

computers that they can key the dB info into to get a

percentage...but to me that still does not " really " tell you anything

because it is not frequency specific. I guess people may understand

percentages better.

Jake's teacher told me he has a 60% hearing loss and I was left

wondering what frequency, what dB and all that stuff. He lost his

hearing at a rock concert so I assume it is high frequency loss.

Elaine

[Guest guest]

The social scientist in me always wonders 60% of WHAT? total? and like

you, elaine, I wonder " high frequency, low frequency " - it makes a big

difference!

elaine_blackford wrote:

>

>

>>

>>> ..

>>>

>> Yeah Barb,

>> That bothers me when audi's do that. We have seen some world

>>

> reknowned

>

>> audi >>>

>>

>

> I can't spell today and hit send to early. ugh...

>

> Some audi's do still use it. THere is an alogorithm program for

> computers that they can key the dB info into to get a

> percentage...but to me that still does not " really " tell you anything

> because it is not frequency specific. I guess people may understand

> percentages better.

> Jake's teacher told me he has a 60% hearing loss and I was left

> wondering what frequency, what dB and all that stuff. He lost his

> hearing at a rock concert so I assume it is high frequency loss.

> Elaine

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

>

[Guest guest]

I am completely confused. Sorry - the first day of school and a little drained!

So her right ear is worse than her left ear but her right ear is the aided one?

I'm sorry if this is painfully obvious to everyone else! Do you mean that her L

is a 90 dB loss? and her right is 60 dB loss? Does that make her L profound and

her R moderate/severe?

Sorry if this is too much - I'm just curious about the whole implant process -

who knows if my kids will ever reach that point but if it will save me the

confusion I've had this past year over their moderate loss I'm all for educating

myself!

Alvarez lalvarez1022@...> wrote:

Hello Robin,

Alyanna is 7 years old. Right now she has a hearing aid on her left ear and none

on her right. She's moderate/severe on L and profound on R. They told me a

hearing aid wouldn't do anything for her on her L since she has over 90% hearing

loss on that ear and on her right is 60% loss. I was trying to get a cochlear

implant on her left ear since all her hearing is almost gone. The audiologist

said with a " super " hearing aid on that ear she would hear some kind of noise

but no word recognition at all. But on the other hand, her right ear eventhough

she has 60% hearing loss with the hearing aide she gets 80% word recognition

(she missed 2 out of 10 words).

I hope this makes a little sense..... If not I can get into more details if you

have any questions. My next step now is to find a good AV therapist...no luck so

far.

I also want to thank everyone for their helpful comments during this mission.

Blessings,

in FL

Robin Tomlinson wrote:

i'm confused and have missed some posts, i'm afraid...

this concerns alyanna...are you saying that alyanna hears at about 80%? how

old is she?

our sydney was born with moderate/severe in her L and mild/moderate in R . .

.. and we never knew she had a problem until she was 3 1/2 . . . she did

extremely well despite that, picking up language and developing in that

realm very well, largely due to the fact that i talk a lot (lol) and she

learned to speech-read really well, too. i am just trying to say that your

child will probably be fine without the cochlear implant she can't seem to

get. our daughter has phonak extras right now and hears some more things

now, such as she can distinguish between thunder and airplanes now, etc.

i may be way off base...not sure if your child has progressive loss, etc.

please pardon me if i have spoken way off base. i don't seem to find your

child in my saved emails tonight, so i do not know your particulars. just

trying to give you some hope (if i am on base, that is)

robin

(tired from our awesome cruise vacation--can't tell, can you? am i loopy?

lol)

--

Robin Tomlinson

thetomlinsons@...

[Guest guest]

I am completely confused. Sorry - the first day of school and a little drained!

So her right ear is worse than her left ear but her right ear is the aided one?

I'm sorry if this is painfully obvious to everyone else! Do you mean that her L

is a 90 dB loss? and her right is 60 dB loss? Does that make her L profound and

her R moderate/severe?

Sorry if this is too much - I'm just curious about the whole implant process -

who knows if my kids will ever reach that point but if it will save me the

confusion I've had this past year over their moderate loss I'm all for educating

myself!

Alvarez lalvarez1022@...> wrote:

Hello Robin,

Alyanna is 7 years old. Right now she has a hearing aid on her left ear and none

on her right. She's moderate/severe on L and profound on R. They told me a

hearing aid wouldn't do anything for her on her L since she has over 90% hearing

loss on that ear and on her right is 60% loss. I was trying to get a cochlear

implant on her left ear since all her hearing is almost gone. The audiologist

said with a " super " hearing aid on that ear she would hear some kind of noise

but no word recognition at all. But on the other hand, her right ear eventhough

she has 60% hearing loss with the hearing aide she gets 80% word recognition

(she missed 2 out of 10 words).

I hope this makes a little sense..... If not I can get into more details if you

have any questions. My next step now is to find a good AV therapist...no luck so

far.

I also want to thank everyone for their helpful comments during this mission.

Blessings,

in FL

Robin Tomlinson wrote:

i'm confused and have missed some posts, i'm afraid...

this concerns alyanna...are you saying that alyanna hears at about 80%? how

old is she?

our sydney was born with moderate/severe in her L and mild/moderate in R . .

.. and we never knew she had a problem until she was 3 1/2 . . . she did

extremely well despite that, picking up language and developing in that

realm very well, largely due to the fact that i talk a lot (lol) and she

learned to speech-read really well, too. i am just trying to say that your

child will probably be fine without the cochlear implant she can't seem to

get. our daughter has phonak extras right now and hears some more things

now, such as she can distinguish between thunder and airplanes now, etc.

i may be way off base...not sure if your child has progressive loss, etc.

please pardon me if i have spoken way off base. i don't seem to find your

child in my saved emails tonight, so i do not know your particulars. just

trying to give you some hope (if i am on base, that is)

robin

(tired from our awesome cruise vacation--can't tell, can you? am i loopy?

lol)

--

Robin Tomlinson

thetomlinsons@...

[Guest guest]

I am completely confused. Sorry - the first day of school and a little drained!

So her right ear is worse than her left ear but her right ear is the aided one?

I'm sorry if this is painfully obvious to everyone else! Do you mean that her L

is a 90 dB loss? and her right is 60 dB loss? Does that make her L profound and

her R moderate/severe?

Sorry if this is too much - I'm just curious about the whole implant process -

who knows if my kids will ever reach that point but if it will save me the

confusion I've had this past year over their moderate loss I'm all for educating

myself!

Alvarez lalvarez1022@...> wrote:

Hello Robin,

Alyanna is 7 years old. Right now she has a hearing aid on her left ear and none

on her right. She's moderate/severe on L and profound on R. They told me a

hearing aid wouldn't do anything for her on her L since she has over 90% hearing

loss on that ear and on her right is 60% loss. I was trying to get a cochlear

implant on her left ear since all her hearing is almost gone. The audiologist

said with a " super " hearing aid on that ear she would hear some kind of noise

but no word recognition at all. But on the other hand, her right ear eventhough

she has 60% hearing loss with the hearing aide she gets 80% word recognition

(she missed 2 out of 10 words).

I hope this makes a little sense..... If not I can get into more details if you

have any questions. My next step now is to find a good AV therapist...no luck so

far.

I also want to thank everyone for their helpful comments during this mission.

Blessings,

in FL

Robin Tomlinson wrote:

i'm confused and have missed some posts, i'm afraid...

this concerns alyanna...are you saying that alyanna hears at about 80%? how

old is she?

our sydney was born with moderate/severe in her L and mild/moderate in R . .

.. and we never knew she had a problem until she was 3 1/2 . . . she did

extremely well despite that, picking up language and developing in that

realm very well, largely due to the fact that i talk a lot (lol) and she

learned to speech-read really well, too. i am just trying to say that your

child will probably be fine without the cochlear implant she can't seem to

get. our daughter has phonak extras right now and hears some more things

now, such as she can distinguish between thunder and airplanes now, etc.

i may be way off base...not sure if your child has progressive loss, etc.

please pardon me if i have spoken way off base. i don't seem to find your

child in my saved emails tonight, so i do not know your particulars. just

trying to give you some hope (if i am on base, that is)

robin

(tired from our awesome cruise vacation--can't tell, can you? am i loopy?

lol)

--

Robin Tomlinson

thetomlinsons@...

[Guest guest]

Hi Cathy

I'm , Hayley's mom. Hayley is 14, goes to WPSD, signs and has an

implant. We struggle with reading, but are working hard at it. She is

profoundly deaf with a loss of 120db in her left, and 90-95 plus db

in her right. The left is implanted. Welcome to the group. Tell us

about yourself when you have a chance.

[Guest guest]

Hi Cathy

I'm , Hayley's mom. Hayley is 14, goes to WPSD, signs and has an

implant. We struggle with reading, but are working hard at it. She is

profoundly deaf with a loss of 120db in her left, and 90-95 plus db

in her right. The left is implanted. Welcome to the group. Tell us

about yourself when you have a chance.