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Try using a baby monitor in his room with the receiver in yours. I am

absolutely sure you will hear him if he has a big seizure. It will save

you some of the up and down at night. We are at the opposite end, with

Claire (7) still sleeping in our bed. We are planning on moving her to

her own room with a monitor. This is a tough habit to break so if

wants to be independent, I would do everything possible to help him.

Lois

Sleeping concerns

Hi everyone!!

We're still waiting for an opening at the hospital for Jake to get

started on the diet. We were really hoping for before school starts

but doesn't look that way.

had a 7 minute seizure on Thursday and had trouble breathing

during the seizure so we called 911 and we took him into Children's

Hospital in Boston. All they did was to check his levels with his

meds and then send him home. We know he's having seizures while he

sleeps but he insists on sleeping in his own bed. I'm scared to

death to let him do that but he's almost 7 and is trying so hard to

be a " big boy " . It feels like I " m up every 1/2 hour checking on

him. He had 2 small seizures this afternoon while he took a nap but

he got himself out of them within a minute or so. Am I being too

paranoid? My husband seems to sleep through me getting up. He also

seems to sleep through Jake waking up at night too. It's so hard

because he has to be up to go to work in the morning and being

military it's not like he can call in and say he's going to be

late. I'm exhausted both physically and emotionally and we haven't

even started the diet yet.

Knowing that we're going to be starting the diet, can you give me

some different reciep ideas to let Jake try so it's not such a shock

for him? Any ideas will be appreciated!!

~Jake's mom~ waiting to start the diet

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a

professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

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Try using a baby monitor in his room with the receiver in yours. I am

absolutely sure you will hear him if he has a big seizure. It will save

you some of the up and down at night. We are at the opposite end, with

Claire (7) still sleeping in our bed. We are planning on moving her to

her own room with a monitor. This is a tough habit to break so if

wants to be independent, I would do everything possible to help him.

Lois

Sleeping concerns

Hi everyone!!

We're still waiting for an opening at the hospital for Jake to get

started on the diet. We were really hoping for before school starts

but doesn't look that way.

had a 7 minute seizure on Thursday and had trouble breathing

during the seizure so we called 911 and we took him into Children's

Hospital in Boston. All they did was to check his levels with his

meds and then send him home. We know he's having seizures while he

sleeps but he insists on sleeping in his own bed. I'm scared to

death to let him do that but he's almost 7 and is trying so hard to

be a " big boy " . It feels like I " m up every 1/2 hour checking on

him. He had 2 small seizures this afternoon while he took a nap but

he got himself out of them within a minute or so. Am I being too

paranoid? My husband seems to sleep through me getting up. He also

seems to sleep through Jake waking up at night too. It's so hard

because he has to be up to go to work in the morning and being

military it's not like he can call in and say he's going to be

late. I'm exhausted both physically and emotionally and we haven't

even started the diet yet.

Knowing that we're going to be starting the diet, can you give me

some different reciep ideas to let Jake try so it's not such a shock

for him? Any ideas will be appreciated!!

~Jake's mom~ waiting to start the diet

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a

professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

Link to comment
Share on other sites

Try using a baby monitor in his room with the receiver in yours. I am

absolutely sure you will hear him if he has a big seizure. It will save

you some of the up and down at night. We are at the opposite end, with

Claire (7) still sleeping in our bed. We are planning on moving her to

her own room with a monitor. This is a tough habit to break so if

wants to be independent, I would do everything possible to help him.

Lois

Sleeping concerns

Hi everyone!!

We're still waiting for an opening at the hospital for Jake to get

started on the diet. We were really hoping for before school starts

but doesn't look that way.

had a 7 minute seizure on Thursday and had trouble breathing

during the seizure so we called 911 and we took him into Children's

Hospital in Boston. All they did was to check his levels with his

meds and then send him home. We know he's having seizures while he

sleeps but he insists on sleeping in his own bed. I'm scared to

death to let him do that but he's almost 7 and is trying so hard to

be a " big boy " . It feels like I " m up every 1/2 hour checking on

him. He had 2 small seizures this afternoon while he took a nap but

he got himself out of them within a minute or so. Am I being too

paranoid? My husband seems to sleep through me getting up. He also

seems to sleep through Jake waking up at night too. It's so hard

because he has to be up to go to work in the morning and being

military it's not like he can call in and say he's going to be

late. I'm exhausted both physically and emotionally and we haven't

even started the diet yet.

Knowing that we're going to be starting the diet, can you give me

some different reciep ideas to let Jake try so it's not such a shock

for him? Any ideas will be appreciated!!

~Jake's mom~ waiting to start the diet

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a

professional keto team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

Link to comment
Share on other sites

,

have you thought about a baby moniter for your sons room? Most of them are

pretty cheap but if you really wanted you could go to one of the fancy video

moniter ones. They even have them at your basic target store these days. I

hope it gives you both the freedom to sleep.

Ally

Sleeping concerns

>

> Hi everyone!!

>

> We're still waiting for an opening at the hospital for Jake to get

> started on the diet. We were really hoping for before school starts

> but doesn't look that way.

>

> had a 7 minute seizure on Thursday and had trouble breathing

> during the seizure so we called 911 and we took him into Children's

> Hospital in Boston. All they did was to check his levels with his

> meds and then send him home. We know he's having seizures while he

> sleeps but he insists on sleeping in his own bed. I'm scared to

> death to let him do that but he's almost 7 and is trying so hard to

> be a " big boy " . It feels like I " m up every 1/2 hour checking on

> him. He had 2 small seizures this afternoon while he took a nap but

> he got himself out of them within a minute or so. Am I being too

> paranoid? My husband seems to sleep through me getting up. He also

> seems to sleep through Jake waking up at night too. It's so hard

> because he has to be up to go to work in the morning and being

> military it's not like he can call in and say he's going to be

> late. I'm exhausted both physically and emotionally and we haven't

> even started the diet yet.

>

> Knowing that we're going to be starting the diet, can you give me

> some different reciep ideas to let Jake try so it's not such a shock

> for him? Any ideas will be appreciated!!

>

> ~Jake's mom~ waiting to start the diet

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

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Share on other sites

I don't know why I never thought of the baby monitor!!

I feel so dumb! Thanks for the info everyone!!

~Jake's mom (almost 7 and waiting to be on the

diet)

--- Allyson Kulinski allyson@...> wrote:

> ,

>

> have you thought about a baby moniter for your sons

> room? Most of them are

> pretty cheap but if you really wanted you could go

> to one of the fancy video

> moniter ones. They even have them at your basic

> target store these days. I

> hope it gives you both the freedom to sleep.

>

> Ally

> Sleeping concerns

>

>

> >

> > Hi everyone!!

> >

> > We're still waiting for an opening at the hospital

> for Jake to get

> > started on the diet. We were really hoping for

> before school starts

> > but doesn't look that way.

> >

> > had a 7 minute seizure on Thursday and had

> trouble breathing

> > during the seizure so we called 911 and we took

> him into Children's

> > Hospital in Boston. All they did was to check his

> levels with his

> > meds and then send him home. We know he's having

> seizures while he

> > sleeps but he insists on sleeping in his own bed.

> I'm scared to

> > death to let him do that but he's almost 7 and is

> trying so hard to

> > be a " big boy " . It feels like I " m up every 1/2

> hour checking on

> > him. He had 2 small seizures this afternoon while

> he took a nap but

> > he got himself out of them within a minute or so.

> Am I being too

> > paranoid? My husband seems to sleep through me

> getting up. He also

> > seems to sleep through Jake waking up at night

> too. It's so hard

> > because he has to be up to go to work in the

> morning and being

> > military it's not like he can call in and say he's

> going to be

> > late. I'm exhausted both physically and

> emotionally and we haven't

> > even started the diet yet.

> >

> > Knowing that we're going to be starting the diet,

> can you give me

> > some different reciep ideas to let Jake try so

> it's not such a shock

> > for him? Any ideas will be appreciated!!

> >

> > ~Jake's mom~ waiting to start the diet

> >

> >

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment

> option, NOT just a last

> resort! "

> >

> > List is for parent to parent

> support only.

> > It is important to get medical

> advice from a professional

> keto team!

> > Subscribe:

> ketogenic-subscribe

> > Unsubscribe:

> ketogenic-unsubscribe

> >

> >

> >

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