Re: tremor like shakes: diet related/Jen and

[Guest guest]

Jen,

Sorry to hear about 's troubles. Maybe some of the replies

to my post about shaking provided insight into what is going on with

. If he is off the diet, I doubt Ca would be a culpret, but

the hands turning inwards sound like tetany. Tetany comes from low

calcium. Does he have any trouble swallowing or any other throat-

like symptoms.

Too bad about the allergies, to.

I hope he is doing better now; I know how worrisom this can all

be. I admire your try at keto when you are all on your own.

Perhaps you can try again in the future.

> Gretchen

>

> Funny you describe the tremors as " Parkinson's Like " shakes. I

have been trying to explain the same thing to our docs. is

just shaking all the time. His hands at times, curl in (as if they

were atrphying due to no use) and just twicth and shake.

>

> We just dicontinued the diet on Nov 2. I could not take it any

more. I am a single mother and is a seeker. In addition to

his epilepsy and ADHD, I am going crazy with keeping him on the

diet. He always wanted to eat.

>

> Since going off the diet he has gained 8 pounds and discovered

some allergies. Wheat, Eggs, Milk and Peanut. He has had diahrrea

for 3 weeks now with no underlying illness (bacteria or viral) We

have to go in for more test with an allergist soon. But, with the

runs came the shakes. I can not get them to go away. They docs

added phenobarb right before going off the diet, in addition to the

klonpin, B-6 and the Diamox.

>

>

> I would be interested in the answer too. I feel that his shaking

are seizures and they last all day long. Go away when he falls

asleep and return about 3-4 am for the remainder of the day.

Needless to say, I am not sleeping very well.

>

> Jenn

> tremor like shakes: diet related?

>

>

>

> Has any one heard of shaking as a diet side effect. My son

started

> having Parkinson's-like shaking episodes last week. They

sometimes

> lasted 30-40 minutes. He is totally aware of his surroundings

and

> in control of his thoughts during these episodes, and when they

are

> over, he is perfectly fine. My neuro wanted to know my gut

feeling

> about them, and I said, " as much as I hate to admit it, my gut

> feeling is that they are seizures " . But on further reflection,

I'm

> starting to wonder. A pediatrician friend of mine, who I think

is

> brilliant and sadly is moving away, suggests these shakes could

be

> due to an electrolyte embalance or a calcium deficiency. She

used

> the turn " tetne " . She said perhaps it is a long shot, but it

could

> explain the situation. We are scheduled for a short EEG on

Tuesday,

> but at this point I'm wondering if blood work might be the more

> critical test. Any thoughts?

> My son takes a calcium supplement, but Mg is needed to help

absorb

> the calcium. The vitamin supplement he takes contains only 25%

of

> the daily Mg requirement.

> I hope Stella is recovering nicely from the VNS surgery.

> Gretchen

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just

a last resort! "

>

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> It is important to get medical advice from a

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