Re: searching for a new keto team-

[Guest guest]

Hi- we absloutely love our keto team, but we're in Chicago at Children's... I

have heard horror stories from friends at Cincinnatti Children's and their keto

team. Actually, both friends that went there came from Kentucky and Southern

Indiana and switched to Chicago. I have heard wonderful things about CHOP- I

guess that would be closest for you? You need a team that is there for you &

listens to your wants and knows your needs. I email our dietician regularly, and

when I call, she answers the phone. If I need to talk to the nurse or doctor, I

don't have to sit by the phone all day (or 2 days!) and wait for a call. Usually

I can talk directly to them or they call back right away. We have become

wonderful friends with our whole keto team- from the office manager & people

that answer the phones to the social worker, etc. They should know you and care

about you. That's what we get where we are. I was JUST thinking today about one

big thing I am thankful for this year is our wonderful

doctors & dietician!!! I wish you the best!!

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

byhisgrace08 byhisgrace8@...> wrote:

Okay everyone, you all know I am not thrilled with the keto team I

currently have and I know some of you have not had the best

experiences with your teams either. But, I really feel like we need

to make a switch. The more I read of your posts, the more I realize

how much my keto team is lacking.

I would like to hear from those of you who are really happy with

your team. I need a team who is going to be more supportive and

involved in this diet along with us. So, I've already talked to

parents who love their keto teams from Cinncinatti(sp?) Children's

Hospital,OH; Children's Hospital of Philly,PA; and of course s

Hopkins. We live in New Castle, PA which is approximately 40 miles

north of Pittsburgh,PA. I would be willing to travel to any of the

above mentioned hospitals, so if there are anymore within this

distance please let me know. I want to find a team that other

PARENTS are thrilled about because you are the real experts!

I have every intention of keeping Princess A on this diet for the

next two years and I want the best team working with me. I don't

believe in doing anything half-way or not to the best of my

ability. Especially when it comes to MY GIRL!!!

All input would be greatly appreciated!

Thanks in advance!

Mom to Princess Adrielle, keto-princess, seizure free since 11/5 &

worth every effort to remain this way!!

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

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