Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Hello,Iam back from the hospital where I had agastro-jejunostomy placed for feedingpurposes,since I could not eat anymore with daily pain.Every night I am hooked up to the pump for 12 hours receiving elemental tubefeeding bypassing the pancreas.It is tough to do all this,medications via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with water.I have very little pain now and hopefully after 6 to 8 weeks pancreasrest I can start refeeding by mouth to see if I tolerate it.THis was the recommendation of Dr Hawes from MUSC. It is very hard to go through this,I feel quite depressed and totally homeconfined.I hope that none of you ever will have to go through this. Please include me in your prayers! Birgit _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 We're all in your corner, and you're not alone. Don't ever forget that. > > > > > > > Hello,Iam back from the hospital where I had agastro- jejunostomy > placed for feedingpurposes,since I could not eat anymore with > daily pain.Every night I am hooked up to the pump for 12 hours > receiving elemental tubefeeding bypassing the pancreas.It is tough to > do all this,medications via tube ,liquid or crushed ,every few hours > {FOr nausea} ,flushing with water.I have very little pain now and > hopefully after 6 to 8 weeks pancreasrest I can start refeeding by > mouth to see if I tolerate it.THis was the recommendation of Dr > Hawes from MUSC. > It is very hard to go through this,I feel quite depressed and totally > homeconfined.I hope that none of you ever will have to go through this. > Please include me in your prayers! > & nbsp; > Birgit > > ______________________________________________________ ___________ > Send and receive Hotmail on your mobile device: http:// mobile.msn.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 birgit belcher birgitbelcher@...> wrote: Hello,Iam back from the hospital where I had agastro-jejunostomy placed for feedingpurposes,since I could not eat anymore with daily pain.Every night I am hooked up to the pump for 12 hours receiving elemental tubefeeding bypassing the pancreas.It is tough to do all this,medications via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with water.I have very little pain now and hopefully after 6 to 8 weeks pancreasrest I can start refeeding by mouth to see if I tolerate it.THis was the recommendation of Dr Hawes from MUSC. It is very hard to go through this,I feel quite depressed and totally homeconfined.I hope that none of you ever will have to go through this. Please include me in your prayers! Birgit _hi birgit i'm so very sorry that you are going through all this horrible mess. i've had c.p. for over ten years with a whipple procedure in '95. but this isn't about me right now. you will certainly be in my thoughts and prayers, and i'm quite sure that everone else in this great group of people will include themselves in praying_for you and keeping you in their thoughts also. i urge you to continue to keep in touch with this group as they have helped me immensly with my own depression to the point of probably saving my life. i have never heard of the treatment you are recieving, but would like to hear more about it. please feel free to write me, or the group to inform me (or the group )of this treatment as it may be beneficial to us. again, i am sorry to hear of all your suffering, but be assured that you have come to the right place. in hopes that you feel better REAL SOON ,........JOHN MCCARTHY _______________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Dear Birgit, I'm so sorry that you had to get a J-tube... I know you really wanted for that to NOT happen, and of course I don't blame you... But hopefully, maybe it's for the best, for now anyway. Hopefully it will give you the necessary nutrition, and you'll get to take it out soon and you'll be stronger and really ready to pack it on all by yourself. :-) I know you're suffering right now, I know it is overwhelming and can be depressing and that you probably feel very, very lonely and hopeless... But it's not hopeless at all, it's very, very HOPEFUL, and could be a big step in the right direction. You will get plenty of good nutrition, and you will get better and believe it or not, this will help make you healthier. Be sure to boss them around and make them keep the lines spotless, as clean as can humanly be done and then one step better. (Ask Kaye for directions if you need them.) Once again, I'm so sorry that you're having to go through this. You are in my prayers, Ma'am. God bless and keep you safe. Peace, Terry in KC << Hello,Iam back from the hospital where I had agastro-jejunostomy placed for feedingpurposes,since I could not eat anymore with daily pain.Every night I am hooked up to the pump for 12 hours receiving elemental tubefeeding bypassing the pancreas.It is tough to do all this,medications via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with water.I have very little pain now and hopefully after 6 to 8 weeks pancreasrest I can start refeeding by mouth to see if I tolerate it.THis was the recommendation of Dr Hawes from MUSC. It is very hard to go through this,I feel quite depressed and totally homeconfined.I hope that none of you ever will have to go through this. Please include me in your prayers! Birgit >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Hi, I've has 2 j tubes. The first one worked really well and after about 8 weeks I could start trying to eat. I then went two years with no problems!!!!! However, the last one I has was horrible, I couldn't use it the way they wanted. I had adhesions that caused me to hurt each time I tried to flush it or use it no matter what little tricks I tried... warm water, very slow, etc... Dr. Hawes is the one that I use also. Dr. DeLagee couldn't come up with any solutions either, even tried a different formula. I hope you have the fortune I did with my first tube. I'm off to ton today myself for my follow up with Dr.Hawes. I'll let y'all know how that goes. In the meantime I'll keep you in my prayers. > >Reply-To: pancreatitis >To: pancreatitis >Subject: feedingjejunostomy >Date: Tue, 05 Mar 2002 23:02:46 > > > > Hello,Iam back from the hospital where I had agastro-jejunostomy placed >for feedingpurposes,since I could not eat anymore with daily pain.Every >night I am hooked up to the pump for 12 hours receiving elemental >tubefeeding bypassing the pancreas.It is tough to do all this,medications >via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with >water.I have very little pain now and hopefully after 6 to 8 weeks >pancreasrest I can start refeeding by mouth to see if I tolerate it.THis >was >the recommendation of Dr Hawes from MUSC. >It is very hard to go through this,I feel quite depressed and totally >homeconfined.I hope that none of you ever will have to go through this. >Please include me in your prayers! > Birgit > >_________________________________________________________________ >Send and receive Hotmail on your mobile device: http://mobile.msn.com > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 birgit belcher birgitbelcher@...> wrote: Hello,Iam back from the hospital where I had agastro-jejunostomy placed for feedingpurposes,since I could not eat anymore with daily pain.Every night I am hooked up to the pump for 12 hours receiving elemental tubefeeding bypassing the pancreas.It is tough to do all this,medications via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with water.I have very little pain now and hopefully after 6 to 8 weeks pancreasrest I can start refeeding by mouth to see if I tolerate it.THis was the recommendation of Dr Hawes from MUSC. It is very hard to go through this,I feel quite depressed and totally homeconfined.I hope that none of you ever will have to go through this. Please include me in your prayers! Birgit _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Briget, I keep you in my prayers and say an entra one that this helps alot. Take Care, Louie in WV feedingjejunostomy Hello,Iam back from the hospital where I had agastro-jejunostomy placed for feedingpurposes,since I could not eat anymore with daily pain.Every night I am hooked up to the pump for 12 hours receiving elemental tubefeeding bypassing the pancreas.It is tough to do all this,medications via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with water.I have very little pain now and hopefully after 6 to 8 weeks pancreasrest I can start refeeding by mouth to see if I tolerate it.THis was the recommendation of Dr Hawes from MUSC. It is very hard to go through this,I feel quite depressed and totally homeconfined.I hope that none of you ever will have to go through this. Please include me in your prayers! Birgit _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Birgit, We just keep missing each other at MUSC. The day before you went in for your ERCP, I had mine. I went in on the 4th of Feb. Dr. Hawes is also my Doctor. He is also talking about the feeding tube if I don't get better. He has had me out of work until the 14th and then we don't know then if I am able to go back to work. I know how you are feeling about be depressed because right now I am going through the same thing. I am not use to having to ask my brother for help and just now I had to. I have to stay at home and though it is giving me some time to get things straight I kind of miss the people that I see everyday. I hate having to be dependant on someone else. Sorry to vent like this. You are included in my prayers every night and hope that you will be better soon. in Sumter, SC feedingjejunostomy Hello,Iam back from the hospital where I had agastro-jejunostomy placed for feedingpurposes,since I could not eat anymore with daily pain.Every night I am hooked up to the pump for 12 hours receiving elemental tubefeeding bypassing the pancreas.It is tough to do all this,medications via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with water.I have very little pain now and hopefully after 6 to 8 weeks pancreasrest I can start refeeding by mouth to see if I tolerate it.THis was the recommendation of Dr Hawes from MUSC. It is very hard to go through this,I feel quite depressed and totally homeconfined.I hope that none of you ever will have to go through this. Please include me in your prayers! Birgit _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 Brijit, you are in my prayers. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2002 Report Share Posted March 6, 2002 > > > Hello,Iam back from the hospital where I had agastro-jejunostomy placed > for feedingpurposes,since I could not eat anymore with daily pain.Every > night I am hooked up to the pump for 12 hours receiving elemental > tubefeeding bypassing the pancreas.It is tough to do all this,medications > via tube ,liquid or crushed ,every few hours {FOr nausea} ,flushing with > water.I have very little pain now and hopefully after 6 to 8 weeks > pancreasrest I can start refeeding by mouth to see if I tolerate it.THis was > the recommendation of Dr Hawes from MUSC. > It is very hard to go through this,I feel quite depressed and totally > homeconfined.I hope that none of you ever will have to go through this. > Please include me in your prayers! > Birgit Birgit: First of all, I will certainly pray for you. Secondly, I'm sorry you had to have the J-tube but maybe I can give you some hope. I have had 2. I also see Dr. Hawes, I just returned from seeing him today. Anyway, my first J-tube was a blessing. I had it for about 3 months and then slowly advanced my diet. I then went 2 years symptom free!!!!! Before then I had been hospitalized over 20 times in a year! yes, I would get out and then right back in. Unfortuately, it only lasted two years. Last Jan. I had another one placed, I had so much hope. but I have had multiple abdominal surgeries-- gallbladder, appendix, exploratory laps for ovarian cysts and endometriosis and I have a ton of adhesions. They made it so the pain actually increased when I was using the tube,I tried turning the rate down although 12 hours hooked up still drove me nuts and 16 or 24hrs was unacceptable. we even tried a different formula. Dr. DeLagee followed me with the J- tube. finally after just 2 weeks i had had enough and I had my local GI pulled it. It was so bad that I will not have another one. but like I said my first one was I thought horrible and inconvienent,and a bother and I hated finding somewhere to tuck the tube when I had to go somewhere.but I wouldn't take anything for those 2 years! I hope and pray at least the same for you, even better. > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
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