Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 <<My question for the group is how many people waited to have the surgery until they were disabling.>> I have yet to have the surgery because I can live with my symptoms.My doctor has always told me if they get to the point where I can't do my normal daily things then we will do the surgery. Summer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 In a message dated 9/6/2002 11:18:29 AM Eastern Daylight Time, debyet@... writes: > Is it true for most people that once they > started increasing they kept on getting worse... to add to my other post.That isn't true for me.I got worse last year and then got a lot better about 6 months later.So it just depends on the person. Summer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Hi Family: Would you kindly let me know the answers as well, either post to the group or e-mail me privately. Thank you ! Take care and God bless ! I love you all ! Debra Newfoundland & Labrador / Atlantic Canada " A Minute Of Thought Is Worth More Than An Hour Of Talk " Chiari I, 20 mm / No Surgery , " Yet " (wacma) Questions Good Morning All. I was just wondering a couple of things. I have received several emails from members of the group suggesting that I shouldn't have the surgery if I am not disabling. I even received an email from someone saying that this group is mostly for people who have not had any success with the surgery. My question for the group is how many people waited to have the surgery until they were disabling. I am also curious to how many people the surgery was helpful. I apologize for sending questions to the group as I don't know if I doing this the right way. The reason I ask these questions is because I am not disabling but my symptons are increasing. Is it true for most people that once they started increasing they kept on getting worse... Tweety ACM 1/ 5mm Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Good Morning All. I was just wondering a couple of things. I have received several emails from members of the group suggesting that I shouldn't have the surgery if I am not disabling. I even received an email from someone saying that this group is mostly for people who have not had any success with the surgery. My question for the group is how many people waited to have the surgery until they were disabling. I am also curious to how many people the surgery was helpful. I apologize for sending questions to the group as I don't know if I doing this the right way. The reason I ask these questions is because I am not disabling but my symptons are increasing. Is it true for most people that once they started increasing they kept on getting worse... Tweety ACM 1/ 5mm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Hi tweety, In my case i didn't wait until it was disabling, i had sevre headaches, dizziness,popping in the ears, and loss of balance. But i never had some of the symptoms many people do, like numbness on a side of my body and i was able to get around okay on my own, but i talked it over with my doctor and we wanted to take care of it before it got any worse. I'm 2 weeks post op and am so glad that i did have the surgery. I spent 7 days in the hospital and the only complications i had is right after i got home i passed out twice, once in the kitchen and hurt my leg and hip on the cabinet and the other time my dad caught me. I am glad i had the surgery and the only symptom that i still have is problems with my right ear, it feels like it's blocked and it pops and hurts down along my jaw line. I'm thinking it could be a blocked eustachian tube or something, but everytime i go to make a doctor's appt it stops bugging me. As far as the group goes, I've had surgery and plan to remain a member of this group. When i first found out i had chiari, i was scared to death, I didn't think it was right to be facing this at only 20 but this group helped me and gave me answers and made me realize i wasn't alone. I want to be able to give advice to those that may just now be finding out that they have it to help them just like i was helped. This group is a support group for everyone with chiari. Hugs, (wacma) Questions > Good Morning All. I was just wondering a couple of things. I have > received several emails from members of the group suggesting that I > shouldn't have the surgery if I am not disabling. I even received an > email from someone saying that this group is mostly for people who > have not had any success with the surgery. > > My question for the group is how many people waited to have the > surgery until they were disabling. I am also curious to how many > people the surgery was helpful. I apologize for sending questions to > the group as I don't know if I doing this the right way. > > The reason I ask these questions is because I am not disabling but my > symptons are increasing. Is it true for most people that once they > started increasing they kept on getting worse... > > Tweety > ACM 1/ 5mm > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 I don't know about everyone else but I don't think it's a matter of waiting it's that by the time you find someone who can help you you have so many problems you don't think you'll ever get better. How does everyone else feel MAry Re: (wacma) Questions > <<My question for the group is how many people waited to have the > surgery until they were disabling.>> > > I have yet to have the surgery because I can live with my symptoms.My doctor > has always told me if they get to the point where I can't do my normal daily > things then we will do the surgery. > Summer > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 Good Evening everyone, I would just like to say thank you to everyone who replied to my post. All of the replies were very helpful. I deeply appreciate everything that everyone said. I would just like to let everyone know that I am going to go ahead with the surgery. There is just no way that I will be able to live like this for one more year. So everyone wish me luck, my surgery is scheduled for the 18th of Nov. If anyone has any suggestions that are helpful for easing my husbands fears that would be very helpful. Once again thanks alot to everyone who responded to my post, and GOD bless everyone and I hope everyone has a blessed day. Tweety (wacma) Questions > > > > Good Morning All. I was just wondering a couple of things. I have > > received several emails from members of the group suggesting that I > > shouldn't have the surgery if I am not disabling. I even received an > > email from someone saying that this group is mostly for people who > > have not had any success with the surgery. > > > > My question for the group is how many people waited to have the > > surgery until they were disabling. I am also curious to how many > > people the surgery was helpful. I apologize for sending questions to > > the group as I don't know if I doing this the right way. > > > > The reason I ask these questions is because I am not disabling but my > > symptons are increasing. Is it true for most people that once they > > started increasing they kept on getting worse... > > > > Tweety > > ACM 1/ 5mm > > > > > > Help section: http://www.yahoogroups.com/help/ > > > > NOTE: NCC refers to posts with No Chiari Content > > > > To Unsubscribe Yourself: > > chiari-unsubscribe > > > > WACMA Home: Http://www.wacma.com > > > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2002 Report Share Posted September 6, 2002 i was on the way to being disabled...i still have alot of problems but i havent gotten worse in that matter. just a bit weaker but intermittent tingling and numbness instead of constant nicole --- BACKSBOZ14@... wrote: > <<My question for the group is how many people > waited to have the > surgery until they were disabling.>> > > I have yet to have the surgery because I can live > with my symptoms.My doctor > has always told me if they get to the point where I > can't do my normal daily > things then we will do the surgery. > Summer > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: > http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 > Hi Family: > > Would you kindly let me know the answers as well, either post to the group or e-mail me privately. Hi All, I answered privately, so here's my post: Here's my opinion- I wish I had had the surgery before it became disabling. From what I've read, the longer you have symptoms, especially if they are progressing, the less good the surgery will do. Therefore it stands to reason that the sooner you have the surgery the more good it will do! I was sick a long time before I got help. The surgery helped, but I am still disabled. It didn't help enough to allow me to go back to work or have normal days. I miss my old life, but am finding things that I can do and do those. I also believe that if I had seen Dr. Rosner to begin with I wouldn't have had to have a second surgery- so be sure your neuro is a good one. (No real complaints with my first one- he just wasn't as knowledgeable about ACM and I didn't know who else to see.) in VA --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.380 / Virus Database: 213 - Release Date: 7/24/02 Quote Link to comment Share on other sites More sharing options...
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