Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 , please vent whenever you feel you need to. We are here and we do listen. Yes, you will live with this illness for as long as you will live, unless they find a cure. That is a possibility, hopefully that day will come soon for all of us. Then there is another possibility: maybe you won't always suffer this much, maybe you are just going through a very rough period. Maybe the better days are just ahead where you will go into remission. It is possible, believe me. I have been diagnosed 17 years ago, but I was in remission for a good 8 years during which time I was monitored, took some medication to treat the symptoms of the damage that my kidneys sustained when I first got sick, and I was pain free. During these 8 years I was able to make my dream come true and have three wonderful children. I didn't get my BIG flare until my youngest was two years old. Now, I'm still hoping another long period of remission is somewhere ahead of me. Yes, my kidneys did get further permanent damage, yes there is more involvement now than the kidneys, but I'm sure sunny days are just ahead. It's the pits that you are going through all this right now. Weight gain is one of those things that really get me down and how can you loose it when your body doesn't let you exercise, when you are so depressed you just want to eat some more and even if you don't prednisone will make you gain some more. You just do your best, that's the most you can do. Getting disability denied is very depressing, but do not get discouraged. File again, take a lawyer if you don't have one already. Don't let the system beat you, you try and get from the system what you deserve. If you don't get it on your second try, make sure you claim again and go before a judge. Don't tell yourself that everything is ok when it isn't. Vent, talk to us or someone who will hear you out. Then do not loose hope for the better days. They will come and the sun will shine for you. Mojo I'm so depressed ... No, I'm not kidding. Dear Members, I've been living a lie. I've been thinking about everything. I'm trying to make it seem like everything is okay, but right now I'm screaming that everything ISN'T okay. I don't know what to do with myself half of the time. I'm so depressed and I want these negative feelings to go away. I can't work because I have a chronic illness called Lupus. I was fired from my job because I missed too many days. I then filed for disability and it was denied. My sickness is getting no better. My financial situation is getting no better. I'm just wondering when will get a break? Not to talk about relgion, but I've always believed that there is a better life than this. There has to be. It is so sad to think that this is all there is and that's not fair if it was. Having the hope of happiness forever gives me something good to think about each day, but that's the only good thing I can think about. What do I do until I get to my blissful happiness? I feel like I'm stuck in a rut. There are so many things that I want to do right now but I'm not able to do because I'm sick. I'm tired of being sick, you know? All this medicine I'm on for my illness has made me gain so much weight and I want to lose it and I'm trying but it's so hard. Why does everything in life have to be so terribly hard? I wonder what have I done that was so wrong to make things the way that they are? I understand that I'm going to have this illness for as long as I live. As if that's not depressing enough. I just want to learn how can I cope? I'm having a hard time coping with this and some times I feel I just won't make it through the day. Those days are so terribly long. I don't mean to go on and on but I'm so troubled right now. In real life I have no friends. No one really to vent to. I feel like no one understands what I'm going through. So, what do I do? -."The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.