Re: Thyroid / Saro

[Guest guest]

How did they know it was autoimmune thyroiditis Saro, do you know? I developed

an enlarged thryoid along with these nodule things, and I have to have all these

blood tests done (yuk, putting them off...) where they are looking to try and

identify what protein I might be missing or something like that causing the auto

immune goings on. All a bit new to me, this stuff, not sure I like what I am

reading to be honest!

The arm lump they removed was apparently a 'lupus profundus' lump, and the

rest of the tests they are doing are to see if I might be developing full blown

SLE, but the guy yesterday said he didn't think I had it, so fingers crossed,

but the lupus lump and thyroid woes happening together seem mighty suspicious to

me...

I am on thryroxine now for life too because my whole thryoid gland was removed

Blood test last Fri showed levels are still out of whack, which is good in a

way - probably explains why I am still feeling a bit 'blah', and cripes - talk

about weight gain lately

Increased the thryroxine on Mon, so hopefully they might start to even out

soon. Don't know how you get on, but I am so bad at remembering to take all

these damn pills - I hardly ever get 's wrong, but a diff story with my

own ones

What with the thyroxine, calcium, rocalitrol, and then 's meds and

supplements, my house is is just one big pharmacy!

's thyroid tests have been up and down over the yrs, but like you I

didn't get very far with trying to go down that track, this guy's attitude was a

bit - 'moving on, back to you.....'

Incidentally, the thryoid guy who took mine out said that the blood levels are

an indication only, that what is 'normal' for one person, may not be right for

someone else, a bit like the kids and their AED levels I spose? Mine were

showing in the low/normal range for ages, but because they were within the

actual ref ranges no one was really concerned, yet I had pretty definite

symptoms of hypothyroidism that whole time looking back.

The internist thing - I think an 'intern' is a consultant's assistant (lol,

only know the term from watching ER...) but intern 'ist' is something dfferent?

Not sure tho as we use neither term here, our consultant's assistant is called a

registrar too.

----- Original Message -----

From: Jay

Hi ,

I was interested to read of possible tests for thyroid/lupus.

I do have autoimmune thyroiditis (sp). I have wandered lots

of times whether some of Rohan's problems are related to this.

Since part of my thyroid is now missing I have to be on

thyroid tablets for ever. I have mentioned my problem to

Rohan's dr.s but no one said anything. They probably think

'there goes that neurotic mum, again!' and they are probably right.

BTW they checked Rohan's thyroid function as he's always

tired these days (probably due to Keppra) and it was OK.

About the internist, I thought they were like a registrar

to the consultant. I mean an assistant.

Saro