question on repositioning

[Guest guest]

Hi,

My 3 month old daughter has developed a small flat spot on the

left side so we have been trying to reposition the last 2 weeks

since we first noticed it. I downloaded the repositioning files on

this site which are very helpful. Our main strategy has been

the " static pressure " method, e.g. keeping her off the flat side and

having her sleep on her right side. During the day just keeping her

off her back. I think we have been pretty successful at keeping her

off that flat side all the time. However, I am a bit worried that we

have not noticed much improvement. And I wonder that we probably

should have at her age after 2 weeks. Is it OK to use the static

pressure method all the time at night, since her flat spot is facing

up? I don't know if that makes it harder to grow because of gravity?

Another question, she has a very slight misalignment of ears, is it

possible to get realignment of ears with repositioning?

So far her case is pretty mild (my older daughter had moderate

plagiocephay and wore the DOC band but did not get complete

correction as we started late), but of course I am pretty anxious

given our history...

Cheers,

[Guest guest]

Hello

I'm sorry to hear you are going through this again. I don't know

too much about repo sinse we put our daughter into a band. Can you

go to CT and get an evaluation done? that way atleast you know how

severe it is plus when you go back you can really keep track of how

repo is working for you. Age wise you are at a great point to repo,

but of course it does not work for all babies.

Sandy WIllow's Mom

Torticollis resolved

Cranio Germany Grad

>

> Hi,

>

> My 3 month old daughter has developed a small flat spot on

the

> left side so we have been trying to reposition the last 2 weeks

> since we first noticed it. I downloaded the repositioning files on

> this site which are very helpful. Our main strategy has been

> the " static pressure " method, e.g. keeping her off the flat side

and

> having her sleep on her right side. During the day just keeping

her

> off her back. I think we have been pretty successful at keeping

her

> off that flat side all the time. However, I am a bit worried that

we

> have not noticed much improvement. And I wonder that we probably

> should have at her age after 2 weeks. Is it OK to use the static

> pressure method all the time at night, since her flat spot is

facing

> up? I don't know if that makes it harder to grow because of

gravity?

>

> Another question, she has a very slight misalignment of ears, is

it

> possible to get realignment of ears with repositioning?

>

> So far her case is pretty mild (my older daughter had moderate

> plagiocephay and wore the DOC band but did not get complete

> correction as we started late), but of course I am pretty anxious

> given our history...

>

> Cheers,

>

>

[Guest guest]

I don't have any repo suggestions for you because we sucked at it

but I just wanted to say hi and wish you luck with the repo. I hope

you start to see results from all the hard work you are doing.

Haylee

mom to andre doc band grad

>

> Hi,

>

> My 3 month old daughter has developed a small flat spot on

the

> left side so we have been trying to reposition the last 2 weeks

> since we first noticed it. I downloaded the repositioning files on

> this site which are very helpful. Our main strategy has been

> the " static pressure " method, e.g. keeping her off the flat side

and

> having her sleep on her right side. During the day just keeping

her

> off her back. I think we have been pretty successful at keeping

her

> off that flat side all the time. However, I am a bit worried that

we

> have not noticed much improvement. And I wonder that we probably

> should have at her age after 2 weeks. Is it OK to use the static

> pressure method all the time at night, since her flat spot is

facing

> up? I don't know if that makes it harder to grow because of

gravity?

>

> Another question, she has a very slight misalignment of ears, is

it

> possible to get realignment of ears with repositioning?

>

> So far her case is pretty mild (my older daughter had moderate

> plagiocephay and wore the DOC band but did not get complete

> correction as we started late), but of course I am pretty anxious

> given our history...

>

> Cheers,

>

>

[Guest guest]

Hi . It sounds like you are doing all the right things to repo

your dd. I don't know that keeping her on her rounded side all the

time at night would cause gravity to hinder her growth. When I was

repo'ing my dd, I kept her off that side at all times. I can see

the reasoning behind each way of thinking but I personally felt

better with the flat side up. That said, there is a good argument

to be made for sleepig with the flat side down so that gravity can

help. Just make sure that she is not actually sleeping right on the

flat spot.

Are you taking pictures of her head? Take them from a birdseye view

and from each side at regular intervals and that makes it easier to

see any progress. I know at this point you feel like you haven't

seen much change, but could it be that you are looking at it sooooo

much that you can't notice it? I always equated it to losing

weight, when you are looking at yourself every day int he mirror,

you don't notice the change as much as someone who hasnn't seen you

in a month would notice it. Try taking the pictures every week or 2

weeks and see what you can see.

Straightening up ear misalignment is a tough one. It can happen, it

did with my dd, but sometimes it doesn't. When you take your

birdseye pics, make sure you can see the ears on both sides and you

can measure if you are making and positive change there.

Good luck with this, and please feel free to post here or email me

if you have any questions at all.

Becky, repo mod

, repo grad

Pittsburgh, PA

>

> Hi,

>

> My 3 month old daughter has developed a small flat spot on

the

> left side so we have been trying to reposition the last 2 weeks

> since we first noticed it. I downloaded the repositioning files on

> this site which are very helpful. Our main strategy has been

> the " static pressure " method, e.g. keeping her off the flat side

and

> having her sleep on her right side. During the day just keeping

her

> off her back. I think we have been pretty successful at keeping

her

> off that flat side all the time. However, I am a bit worried that

we

> have not noticed much improvement. And I wonder that we probably

> should have at her age after 2 weeks. Is it OK to use the static

> pressure method all the time at night, since her flat spot is

facing

> up? I don't know if that makes it harder to grow because of

gravity?

>

> Another question, she has a very slight misalignment of ears, is

it

> possible to get realignment of ears with repositioning?

>

> So far her case is pretty mild (my older daughter had moderate

> plagiocephay and wore the DOC band but did not get complete

> correction as we started late), but of course I am pretty anxious

> given our history...

>

> Cheers,

>

>

[Guest guest]

My daughters head shaped up from doing aggressive repositioning . I did the tummy time with a tummy time mat that had a pillow that helped raise her chest off of the ground & it gave her that added support she needed when laying on her tummy and she played with the attached toys and forgot that she was doing something she wasn't fond of lol. There is also some things that you can buy that can help out when you do have to lay them down on their backs so that their lil heads doesn't have all that pressure on the flattend area. Here is a website that has some tips on repositioning http://www.cappskids.org/CAPPSRepositioning.htm I hope this helps some. Also the thing about repo is that its a hard job nothing easy about it but with some

babies it works pretty good and I wish you luck with it. question on repositioning

Hi,

I joined last month. We've been busy getting my daughter Cailtin 4

mos started in early intervention and seeing specialists so I haven't

been able to post much. She has hypotonia and GERD as well as

plagicephaly and torticollis. Her anterior fontanel has closed early,

but we saw atop neurosurgeon who assured us she doesn't have

craniosynostosis so we are relievd. The problem is thatthe neurologist,

nuerosurgeon and ped are all against the helmet for her. They feel that

repositioning would work as well, and that the added weight of ahelmet

may cause her more developmental delays because of the hyptonia in her

neck. I sure would love to hear from someone who had success with

repositioning.

My son also has special needs so I really can't carry her all the

time, I need to participate in his therapies also. We've been able to

get her to sleep on the fuller side at night, but during the day she

spits up alot when I put her on her tummy .(We're seeing a ped GI next

week.) Should I be wearing her all of the time? Is it ok to put her

down at all during the day. I'm just worried that we won't fix it.

thanks

Carolyn

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Hi Carolyn:First of all, welcome to the board. I understand why you haven't been around -- you certainly have your hands full. I'm so glad that the findings on the early closing of your daughter's anterior fontenal isn't craniosynostosis.In many cases repositioning may work, especially if she isn't moving around too much at night. Every case is different, and it really depends on how severe it is, and how committed she is to wanting to lay on the flat side (and how able you are to keep her off it). My son has mild hypotonia (I wasn't told of this until he was 5, and it was in an OT evaluation). He never crawled on hands and knees (did an "army crawl") and because he got to where he wanted to go quickly, and without issues, I never asked about it at his well-check ups, so his low tone might have been charted and I just didn't know about it. He was born with a very long, narrow head, which looked exactly like sattigal craniosynostosis, and we had to have CT scans, etc. to rule that out when he was 2 weeks old. He was cast for a band on his 6 month b-day, got the band 2 weeks later, and wore the band until he was almost 1. The hypotonia is probably what caused his head shape in-utereo (he was large (8 lbs, 14.5 oz), breech and delivered by c-section).He didn't have any problems with the band (but, as I said, his hypotonia was mild) -- The DOCband he wore had a little more coverage than a typical DOCband for plagiocephaly, but he never had any issues with it. It weighed about 4 or 5 oz maybe (I might be wrong about that...) He is 7 now and was diagnosed this past January with Hypermobility-Type Ehlers-Danlos Syndrome, which is a connective tissue disorder, and at this point we're just trying to make sure he doesn't over-do his "party tricks" (double-jointedness) -- he doesn't have many other issues right now wi

th it.A brief bio and a few pix are on the CAPPSKids website. http://www.cappskids.org/CAPPSPlagioKidQuinn.I know this situation is probably much different from yours.Take care.Mama to Quinn, born 11/99, DOCband grad 10/00 for scaphocephalic/dolichocephalic head-shape.>------- Original Message ------->From : ckptry[mailto:ckptry@...]>Sent : 8/19/2007 6:44:41 PM>To : Plagiocephaly >Cc : >Subject : RE: question on repositioning>>Hi,I joined last month. We've been busy getting my daughter Cailtin 4 mos started in early intervention and seeing specialists so I haven't been able to post much. She has hypotonia and GERD as well as plagicephaly and torticollis. Her anterior fontanel has closed ea

rly, but we saw atop neurosurgeon who assured us she doesn't have craniosynostosis so we are relievd. The problem is thatthe neurologist, nuerosurgeon and ped are all against the helmet for her. They feel that repositioning would work as well, and that the added weight of ahelmet may cause her more developmental delays because of the hyptonia in her neck. I sure would love to hear from someone who had success with repositioning. My son also has special needs so I really can't carry her all the time, I need to participate in his therapies also. We've been able to get her to sleep on the fuller side at night, but during the day she spits up alot when I put her on her tummy .(We're seeing a ped GI next week.) Should I be wearing her all of the time? Is it ok to put her down at all during the day. I'm just worried that we won't fix it.thanksCarolynFor more plagio info

[Guest guest]

Hi Carolyn and welcome to the group.

Your baby is young enough that repo is an option. Our doctor (cranio

facial plastic surgeon) recommended the Night Form sleep positioner.

We didn't try it (we banded instead) but I've heard it is good. The

only problem is that it can only be used until about 6 mo old. There

are also lots of repo tips in the files section. There are things you

can do to keep her off her head even if you have to put her down. The

bumbo chair is great, but I'm not familiar with hypotonia so not sure

it is okay for you. You can find it at target or babies R us. It helps

babies sit before they can do so on their own.

As for banding, the DOCband from cranial technologies is lighter than

the others (about 6 oz vs 8 or 9 for starband and hanger from what

I've heard). That might help if you don't succeed with repo. My

daughter wore a starband and did great, but she didn't have any other

health issues besides her flat head :-)

Please let us know how your little one progresses.

-christine

sydney 19 mo starband grad

>

> Hi,

> I joined last month. We've been busy getting my daughter Cailtin 4

> mos started in early intervention and seeing specialists so I haven't

> been able to post much. She has hypotonia and GERD as well as

> plagicephaly and torticollis. Her anterior fontanel has closed early,

> but we saw atop neurosurgeon who assured us she doesn't have

> craniosynostosis so we are relievd. The problem is thatthe neurologist,

> nuerosurgeon and ped are all against the helmet for her. They feel that

> repositioning would work as well, and that the added weight of ahelmet

> may cause her more developmental delays because of the hyptonia in her

> neck. I sure would love to hear from someone who had success with

> repositioning.

> My son also has special needs so I really can't carry her all the

> time, I need to participate in his therapies also. We've been able to

> get her to sleep on the fuller side at night, but during the day she

> spits up alot when I put her on her tummy .(We're seeing a ped GI next

> week.) Should I be wearing her all of the time? Is it ok to put her

> down at all during the day. I'm just worried that we won't fix it.

> thanks

> Carolyn

>

[Guest guest]

Hi ,

Thanks for sharing the info and website. Your son was a cute

baby, and it looks like he had a big improvement. I belong to a

group, hypotonia hope, it's given me lots of support and info.

Coincidentally the moderator has a son with hypermobile EDS. It

sounds like your son has very mild hypotonia, which is great.

Carolyn

>

>

> Hi Carolyn:

>

> First of all, welcome to the board. I understand why you haven't

been around -- you certainly have your hands full. I'm so glad that

the findings on the early closing of your daughter's anterior

fontenal isn't craniosynostosis.

>

> In many cases repositioning may work, especially if she isn't

moving around too much at night. Every case is different, and it

really depends on how severe it is, and how committed she is to

wanting to lay on the flat side (and how able you are to keep her off

it).

>

> My son has mild hypotonia (I wasn't told of this until he was 5,

and it was in an OT evaluation). He never crawled on hands and knees

(did an " army crawl " ) and because he got to where he wanted to go

quickly, and without issues, I never asked about it at his well-check

ups, so his low tone might have been charted and I just didn't know

about it. He was born with a very long, narrow head, which looked

exactly like sattigal craniosynostosis, and we had to have CT scans,

etc. to rule that out when he was 2 weeks old. He was cast for a

band on his 6 month b-day, got the band 2 weeks later, and wore the

band until he was almost 1. The hypotonia is probably what caused

his head shape in-utereo (he was large (8 lbs, 14.5 oz), breech and

delivered by c-section).

>

> He didn't have any problems with the band (but, as I said, his

hypotonia was mild) -- The DOCband he wore had a little more coverage

than a typical DOCband for plagiocephaly, but he never had any issues

with it. It weighed about 4 or 5 oz maybe (I might be wrong about

that...) He is 7 now and was diagnosed this past January with

Hypermobility-Type Ehlers-Danlos Syndrome, which is a connective

tissue disorder, and at this point we're just trying to make sure he

doesn't over-do his " party tricks " (double-jointedness) -- he doesn't

have many other issues right now with it.

>

> A brief bio and a few pix are on the CAPPSKids website.

http://www.cappskids.org/CAPPSPlagioKidQuinn.

>

> I know this situation is probably much different from yours.

> Take care.

>

> Mama to Quinn, born 11/99, DOCband grad 10/00 for

scaphocephalic/dolichocephalic head-shape.

>

>

>

> >------- Original Message -------

> >From : ckptry[mailto:ckptry@...]

> >Sent : 8/19/2007 6:44:41 PM

> >To : Plagiocephaly

> >Cc :

> >Subject : RE: question on repositioning

> >

> >Hi,

> I joined last month. We've been busy getting my daughter Cailtin 4

> mos started in early intervention and seeing specialists so I

haven't

> been able to post much. She has hypotonia and GERD as well as

> plagicephaly and torticollis. Her anterior fontanel has closed

early,

> but we saw atop neurosurgeon who assured us she doesn't have

> craniosynostosis so we are relievd. The problem is thatthe

neurologist,

> nuerosurgeon and ped are all against the helmet for her. They feel

that

> repositioning would work as well, and that the added weight of

ahelmet

> may cause her more developmental delays because of the hyptonia in

her

> neck. I sure would love to hear from someone who had success with

> repositioning.

> My son also has special needs so I really can't carry her all the

> time, I need to participate in his therapies also. We've been able

to

> get her to sleep on the fuller side at night, but during the day

she

> spits up alot when I put her on her tummy .(We're seeing a ped GI

next

> week.) Should I be wearing her all of the time? Is it ok to put her

> down at all during the day. I'm just worried that we won't fix it.

> thanks

> Carolyn

>

>

>

> For more plagio info

[Guest guest]

Hi Carolyn,

Unfortunately for us repostioning didn't work. We ended up banding

at 7.5 months and knew about our son's plagio from 2 months. My son

only had plagio (and possibly VERY slight torticolis). The band is

SO light. We had the DOC band. Everybody was shocked at how light

it was. The clinicians told us that the band was more like 3 oz.

not the 6-8 that the website says and I would believe that from

holding it. I'm not sure about hypotonia or Gerd so I don't know if

the band would really be an issue or not. Hopefully, someone can

speak to that or someone can give you some repositioning tips that

work for your little one. Good luck.

>

> Hi,

> I joined last month. We've been busy getting my daughter

Cailtin 4

> mos started in early intervention and seeing specialists so I

haven't

> been able to post much. She has hypotonia and GERD as well as

> plagicephaly and torticollis. Her anterior fontanel has closed

early,

> but we saw atop neurosurgeon who assured us she doesn't have

> craniosynostosis so we are relievd. The problem is thatthe

neurologist,

> nuerosurgeon and ped are all against the helmet for her. They feel

that

> repositioning would work as well, and that the added weight of

ahelmet

> may cause her more developmental delays because of the hyptonia in

her

> neck. I sure would love to hear from someone who had success with

> repositioning.

> My son also has special needs so I really can't carry her

all the

> time, I need to participate in his therapies also. We've been able

to

> get her to sleep on the fuller side at night, but during the day

she

> spits up alot when I put her on her tummy .(We're seeing a ped GI

next

> week.) Should I be wearing her all of the time? Is it ok to put

her

> down at all during the day. I'm just worried that we won't fix it.

> thanks

> Carolyn

>

[Guest guest]

Hi Carolyn. Realistically, you are going to have to put your dd

down at some point during the day. If she can't do tummy time due

to reflux, then you simply need to find other ways to keep her off

her flat spot. May I ask where on her head the flat spot is? If

you have to put your dd in a swing or chair, then you need to prop

her up off her flat spot. If ithe spot is on the ide, then put a

rolled handtowel behind her shoulder on the flat side so she is

propped towards her rounded side. If your dd is brachy, just

alternate the sies you do this on so that she is not laying right of

the flat part.

As soon as she is strong enough (I don't know what hypotonia is, low

muscle tone?) you might want to invest in a bumbo baby seat or

exersaucer. This isa good way to put her down but not resting on

her flat spot.

HTH,

becky, repo mod

, repo grad

>

> Hi,

> I joined last month. We've been busy getting my daughter

Cailtin 4

> mos started in early intervention and seeing specialists so I

haven't

> been able to post much. She has hypotonia and GERD as well as

> plagicephaly and torticollis. Her anterior fontanel has closed

early,

> but we saw atop neurosurgeon who assured us she doesn't have

> craniosynostosis so we are relievd. The problem is thatthe

neurologist,

> nuerosurgeon and ped are all against the helmet for her. They feel

that

> repositioning would work as well, and that the added weight of

ahelmet

> may cause her more developmental delays because of the hyptonia in

her

> neck. I sure would love to hear from someone who had success with

> repositioning.

> My son also has special needs so I really can't carry her

all the

> time, I need to participate in his therapies also. We've been able

to

> get her to sleep on the fuller side at night, but during the day

she

> spits up alot when I put her on her tummy .(We're seeing a ped GI

next

> week.) Should I be wearing her all of the time? Is it ok to put

her

> down at all during the day. I'm just worried that we won't fix it.

> thanks

> Carolyn

>