Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 > Hello and welcome. I live in no. California, about 50 miles from > San Francisco. I, too, love > vintage clothing, theatre, film, and the arts in general. Before RA and SLE > took such a toll on my > energy and hello all am new to this site and am looking for people who live with lupus i am struggling with my sle at the moment and the doctors seem to be unable to function normally. i am married with 2 children and due to sle i had to give up work a few years ago. my name is mandy and i live in the uk kent to be precise, seems like everyone here comes from the usa. but i hope i can join in the chats and we can become friends, anybody with lupus knows how much we need friendship and understanding, thanks for letting me join love mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 Mandy, Welcome. Now we have two members from England, and always glad to have more, although we could wish it were for a more congenial reason. Please feel free to ask questions, vent, whine, joke, laugh, cry, whatever it takes to help you through. Again, welcome. Hugs, MM aka: Mike, one of the moderators Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 WELCOME TO OUR WONDERFUL FUNNY LUPIE FAMILY. BUZY BEE Re: Re: hello everyone! Mandy, Welcome. Now we have two members from England, and always glad to have more, althoughwe could wish it were for a more congenial reason. Please feel free to ask questions, vent, whine,joke, laugh, cry, whatever it takes to help you through. Again, welcome. Hugs, MM aka: Mike,one of the moderators "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Welcome if I haven't already. (lupus fog you know). I think you will find this group friendly, and informative too. I see it took you a long time to get a good dx. Most of us have gone through that too. I have had lupus since a teen and finally got a dx in my 40's. I used to be on steroids for a couple of years and HATED them. I took a long time to get rid of them. Every time I tried, my fever would go up. The steroids gave me pep and I felt better but I worried so much about my bones. Guess what? I now have osteoporosis even though I was a diligent taker of calcium since my 20's. They think it may have been the steroids. Oh well. Cheryl in CA ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Well just wanted to wish you all well and hope that you are all feeling much better than me! Please take care and know that I am not ignoring any of you and love you all, just feel terrible and do not want to leave my bed!!! Needed to go see Mom yesterday because Mom always makes me feel a little better when I feel so sick!!! Well LOL to All and Hope that I can talk and keep up soon! Dawn Dawn you have got to call your doctor either one of them. Something is obviously terribly wrong. If you haven't been able to eat or drink you are going to dehydrate yourself and that is not a good thing to do, also not taking your meds is not good. Dawn please call your doctor, call both, before you end up having reactions from not taking your meds. please take care of yourself. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Lin, Thanks for being so kind. Mom brought me over soup and gingerale and I am going to try and eat now. I still feel horribly sick, but according to my Mom the flu is going around something awful! Two of her friends have it real bad, so I think it might be that! If I am still feeling this horrible on Monday I promise that I will go to the doctors! I do not like feeling this horrible at all! I cannot even pick up the phone or sit up because I get so sick! Now I am starting to sweat a lot. This may be from not taking the meds, but if I do take them, I know I will vomit and do not want that!!! Take Care and Wish me well with eating! LOL Dawn wrote: Well just wanted to wish you all well and hope that you are all feeling much better than me! Please take care and know that I am not ignoring any of you and love you all, just feel terrible and do not want to leave my bed!!! Needed to go see Mom yesterday because Mom always makes me feel a little better when I feel so sick!!! Well LOL to All and Hope that I can talk and keep up soon! Dawn Dawn you have got to call your doctor either one of them. Something is obviously terribly wrong. If you haven't been able to eat or drink you are going to dehydrate yourself and that is not a good thing to do, also not taking your meds is not good. Dawn please call your doctor, call both, before you end up having reactions from not taking your meds. please take care of yourself. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 DAWN PLEASE TAKE CARE AND CALL YOUR DOCTOR IF YA DONT FEEL BETTER. I WILL PRAY FOR YOU. I HOPE YOU GET BETTER SOON I'M THINKING ABOUT YOU HUGS PAMdawn lorenz wrote: Lin, Thanks for being so kind. Mom brought me over soup and gingerale and I am going to try and eat now. I still feel horribly sick, but according to my Mom the flu is going around something awful! Two of her friends have it real bad, so I think it might be that! If I am still feeling this horrible on Monday I promise that I will go to the doctors! I do not like feeling this horrible at all! I cannot even pick up the phone or sit up because I get so sick! Now I am starting to sweat a lot. This may be from not taking the meds, but if I do take them, I know I will vomit and do not want that!!! Take Care and Wish me well with eating! LOL Dawn wrote: Well just wanted to wish you all well and hope that you are all feeling much better than me! Please take care and know that I am not ignoring any of you and love you all, just feel terrible and do not want to leave my bed!!! Needed to go see Mom yesterday because Mom always makes me feel a little better when I feel so sick!!! Well LOL to All and Hope that I can talk and keep up soon! Dawn Dawn you have got to call your doctor either one of them. Something is obviously terribly wrong. If you haven't been able to eat or drink you are going to dehydrate yourself and that is not a good thing to do, also not taking your meds is not good. Dawn please call your doctor, call both, before you end up having reactions from not taking your meds. please take care of yourself. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 I am hoping that your eating goes well. I am just concerned about stopping cold turkey all your medications are going to do to your system. That is the main reason I want you to call them, so they know that you are not taking any of your medications, just listen to your body if weird things start happening then call them as soon as possible. I will keep you in my prayers. Please if you start to strange or anything new you call your doctor or 911 take care of yourself, once a Mother always a mother, Lin -- Re: Hello Everyone! Lin, Thanks for being so kind. Mom brought me over soup and gingerale and I am going to try and eat now. I still feel horribly sick, but according to my Mom the flu is going around something awful! Two of her friends have it real bad, so I think it might be that! If I am still feeling this horrible on Monday I promise that I will go to the doctors! I do not like feeling this horrible at all! I cannot even pick up the phone or sit up because I get so sick! Now I am starting to sweat a lot. This may be from not taking the meds, but if I do take them, I know I will vomit and do not want that!!! Take Care and Wish me well with eating! LOL Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Lin, I actually ate some soup tonight and drank some gingerale. I also took one of my blood pressure pills and a pain pill. I think taking the pills did help a little, because I am feeling a little better right now. Still not great, but a little better. Thanks for your support and your prayers. I will keep trying to take the meds and also keep drinking and trying to eat at least a little something to keep the pills down! Again thank you so much for showing me your love and support!! I really hope that you can get some sleep and that you also start to feel better. I do think that we all need to get together so that we can all share our own experiences with each other! I would love to have you all here with me right now, to help me through this! I do believe it is much easier to go through all of this when you have people that understand. Well I am going to lay down again and I pray that we all feel better tomorrow!!!! LOL and Best Wishes to All! Dawn wrote: I am hoping that your eating goes well. I am just concerned about stopping cold turkey all your medications are going to do to your system. That is the main reason I want you to call them, so they know that you are not taking any of your medications, just listen to your body if weird things start happening then call them as soon as possible. I will keep you in my prayers. Please if you start to strange or anything new you call your doctor or 911 take care of yourself, once a Mother always a mother, Lin -- Re: Hello Everyone! Lin, Thanks for being so kind. Mom brought me over soup and gingerale and I am going to try and eat now. I still feel horribly sick, but according to my Mom the flu is going around something awful! Two of her friends have it real bad, so I think it might be that! If I am still feeling this horrible on Monday I promise that I will go to the doctors! I do not like feeling this horrible at all! I cannot even pick up the phone or sit up because I get so sick! Now I am starting to sweat a lot. This may be from not taking the meds, but if I do take them, I know I will vomit and do not want that!!! Take Care and Wish me well with eating! LOL Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 I do know that there has been a lot of cases of the flu around here and maybe that is what it was! Well enjoy your night out and have some fun! Take Care and LOL Always!!! Dawn PS Are you decorating the scooter? Dawn, No I didn't think of doing that maybe next year, She was so cute my husband took some pictures I will try and post them later. We actually only went to 2 houses around me. She went to this very nice couple, he was the one who built my ramp, anyway he gave her 2 candy bars and she was so excited she ran back to our house yelling Papa nummies, Papa nummies. So we figured she was through. Now I am sure as she gets older the greed for candy will mean we have to take her more places. Has anyone had problems with being overly tired since we changed the time back. Usually I don't have any problems with the fall time change, but now I can't stay awake past 9:00 and wake up at around 4:00. So I hope you are feeling better and I will find those pictures and post them as soon as I came. Lin Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.