Re: aggrevated with family

[Guest guest]

I know I am totally pmsing and probably being a little overly sensitive. Since

getting our test results and finding out that I have 2 of the genes for gluten

intolerance and DH has one for celiac and both our children have one of each, we

have been a gluten free family-about 5 weeks. We are all noticing differences

for the better in how we feel.

I have been through the wringer with disease and complications all my life. I

am now convinced it was the gluten issue all along as every problem I have had

is listed as a complication of long term mis-diagnosis'. So I am begging my

sisters to get tested and not through their doctors-my blood tests were all

negative. Today I was talking to my sister-the one I am very close too and

everytime I said something, she said 'oh, maybe it's celiac'. She was mocking

me. She said our other sister was upset with me too and that I am preaching. I

am not preaching. I just care about them so much that I can't bear to see them

go through the pain and suffering that have been through. My mom went to her

doctor to have her blood tested even though I told her I would pay for a test

from entero labs. Her doctor of course told her she didn't have it because her

blood was negative but she does have a thyroid condition, as does my oldest

sister-not involved in this discussion. I told her that that can also be a

complication. So, my sister on the phone says again 'it must be celiac', the

sky is blue, it must be celiac, it's raining, it must be celiac. I told her I

needed to get off the phone before I hung up on her. Her and I have had one

argument our whole adult lives-we are both late 30's and I am never angry with

her. Now I feel hurt.

I told her I just cared and that I would stop pestering them. I guess it is up

to them now.....

Am I being over sensitive?????

Zanna

http://groups.yahoo.com/group/Art_on_A_Budget/

My daily rantings!

www.zannasstory.blogspot.com

My picture trail:

www.picturetrail.com/xanadoodles

[Guest guest]

You're not overly sensitive - your family is just in absolute denial.

I was diagnosed over 3 years ago and my family is still in denial, with the exception of my older sister who FINALLY had the test done a few months ago and is now GF and doing better. She has had major health issues for over 8 years. We know from gene tests that both our parents have the DQ2 gene, so the likelihood of siblings and their children (there are 20 nieces/nephews involved) is fairly high. All my family also have health issues that correlate with celiac (infertility, short stature, depression, problems with alcohol, etc.). I too have offered to pay for tests and now my family is just ignoring me. Part of the problem is that they're so used to feeling they way they do that they don't know any better (it's sheer ignorance). My parents have a medicine cabinet full of OTC medicine for all sorts of GI issues and until I discovered I had CD, I just considered that I had a sensitive stomach and that it w

as "normal" to regularly take that stuff, along with Advil for the all the headaches.

My in-laws are just as bad, as my younger son is double gened, so we know the DQ8 comes from my husband. His father did as your mother and listened to a doctor who knew nothing. And, he continues to consume large amounts of gluten along with all his medicines for diabetes, peripheral neuropathy, etc. He can barely walk, but refuses to believe his health has anything to do with what he eats everyday.

Like you I felt obligated to give them the information and like your family they think I'm over-reacting to my own health issues.

My suggestion is to just continue to do the best for yourself and show your family how well you're doing on the GF diet. And, continue to provide them with educational materials for them to read. As I said, my sister did finally come around, although she is now in denial that any of her 10 kids could also have this problem (and here again, I can see the symptoms).

B.

-------------- Original message --------------

I know I am totally pmsing and probably being a little overly sensitive. Since getting our test results and finding out that I have 2 of the genes for gluten intolerance and DH has one for celiac and both our children have one of each, we have been a gluten free family-about 5 weeks. We are all noticing differences for the better in how we feel.I have been through the wringer with disease and complications all my life. I am now convinced it was the gluten issue all along as every problem I have had is listed as a complication of long term mis-diagnosis'. So I am begging my sisters to get tested and not through their doctors-my blood tests were all negative. Today I was talking to my sister-the one I am very close too and everytime I said something, she said 'oh, maybe it's celiac'. She was mocking me. She said our other sister was upset with me too and that I am preaching. I am not preaching. I just care about them so much that I can't bear to see them go through th

e pain and suffering that have been through. My mom went to her doctor to have her blood tested even though I told her I would pay for a test from entero labs. Her doctor of course told her she didn't have it because her blood was negative but she does have a thyroid condition, as does my oldest sister-not involved in this discussion. I told her that that can also be a complication. So, my sister on the phone says again 'it must be celiac', the sky is blue, it must be celiac, it's raining, it must be celiac. I told her I needed to get off the phone before I hung up on her. Her and I have had one argument our whole adult lives-we are both late 30's and I am never angry with her. Now I feel hurt. I told her I just cared and that I would stop pestering them. I guess it is up to them now.....Am I being over sensitive?????Zannahttp://groups.yahoo.com/group/Art_on_A_Budget/My daily rantings!www.zannasstory.blogspot.comMy picture trail: www.picturetrail.com/xanadoodles

[Guest guest]

Zanna, I can understand how you're feeling. I deal with this on a daily, and

was told, I make too much of my health issues. Specially the DH problem,

which after reading posts from here the negative I got from the CD test,

didn't mean squat, due to I was GF. I have just about all the symptoms of

CD, and I wouldn't doubt I have it, which explains why I have IBS, hiatal

hernia, etc.... It's all related one way or the other. My folk's understand,

but my other half gets mad, etc.. at me, and feels I'm making a big deal

over nothing, and he has no clue this can nearly kill me. I've had pain

where it was bad enough, I rather it did kill me at times, but I won't let

him get to me, I just walk away. I find that's the best thing to do. You did

the right thing. Hang in there, we're all here for the same reason, for

support. I sure don't know what I'd do without you all, that's for sure. In

Regards, Donna

Dean & Donna ' Appaloosa Horses

www.donnaappaloosahorses.com

Welcome To Donna ' WebPage

http://donnaevans.multiply.com

Donna ' Blog WebPage

http://www.myspace.com/9586741

Re: aggrevated with family

>I know I am totally pmsing and probably being a little overly sensitive.

>Since getting our test results and finding out that I have 2 of the genes

>for gluten intolerance and DH has one for celiac and both our children have

>one of each, we have been a gluten free family-about 5 weeks. We are all

>noticing differences for the better in how we feel.

>

> I have been through the wringer with disease and complications all my

> life. I am now convinced it was the gluten issue all along as every

> problem I have had is listed as a complication of long term

> mis-diagnosis'. So I am begging my sisters to get tested and not through

> their doctors-my blood tests were all negative. Today I was talking to my

> sister-the one I am very close too and everytime I said something, she

> said 'oh, maybe it's celiac'. She was mocking me. She said our other

> sister was upset with me too and that I am preaching. I am not preaching.

> I just care about them so much that I can't bear to see them go through

> the pain and suffering that have been through. My mom went to her doctor

> to have her blood tested even though I told her I would pay for a test

> from entero labs. Her doctor of course told her she didn't have it

> because her blood was negative but she does have a thyroid condition, as

> does my oldest sister-not involved in this discussion. I told her

> that that can also be a complication. So, my sister on the phone says

> again 'it must be celiac', the sky is blue, it must be celiac, it's

> raining, it must be celiac. I told her I needed to get off the phone

> before I hung up on her. Her and I have had one argument our whole adult

> lives-we are both late 30's and I am never angry with her. Now I feel

> hurt.

>

> I told her I just cared and that I would stop pestering them. I guess it

> is up to them now.....

>

> Am I being over sensitive?????

>

> Zanna

>

> http://groups.yahoo.com/group/Art_on_A_Budget/

>

> My daily rantings!

> www.zannasstory.blogspot.com

>

> My picture trail:

> www.picturetrail.com/xanadoodles

>

>

>

>

[Guest guest]

, I couldn't of said it better than you did. You made many good points. I just about want to have my daughter tested to see if she has CD. I know so far, she doesn't have DH, but since I have these stomach issues and such, I'm wondering at times if she does. She's been real healthy so far, Thank God. I didn't know I had Gluten problems till in 2001, and it hit me hard, I was in my early 40s then. I always had problems with Citric Acid, but never had other symptoms till 2001. In regards, Donna

Dean & Donna ' Appaloosa Horseswww.donnaappaloosahorses.com

Welcome To Donna ' WebPagehttp://donnaevans.multiply.com

Donna ' Blog WebPagehttp://www.myspace.com/9586741

Re: aggrevated with family

You're not overly sensitive - your family is just in absolute denial.

I was diagnosed over 3 years ago and my family is still in denial, with the exception of my older sister who FINALLY had the test done a few months ago and is now GF and doing better. She has had major health issues for over 8 years. We know from gene tests that both our parents have the DQ2 gene, so the likelihood of siblings and their children (there are 20 nieces/nephews involved) is fairly high. All my family also have health issues that correlate with celiac (infertility, short stature, depression, problems with alcohol, etc.). I too have offered to pay for tests and now my family is just ignoring me. Part of the problem is that they're so used to feeling they way they do that they don't know any better (it's sheer ignorance). My parents have a medicine cabinet full of OTC medicine for all sorts of GI issues and until I discovered I had CD, I just considered that I had a sensitive stomach and tha t it w as "normal" to regularly take that stuff, along with Advil for the all the headaches.

My in-laws are just as bad, as my younger son is double gened, so we know the DQ8 comes from my husband. His father did as your mother and listened to a doctor who knew nothing. And, he continues to consume large amounts of gluten along with all his medicines for diabetes, peripheral neuropathy, etc. He can barely walk, but refuses to believe his health has anything to do with what he eats everyday.

Like you I felt obligated to give them the information and like your family they think I'm over-reacting to my own health issues.

My suggestion is to just continue to do the best for yourself and show your family how well you're doing on the GF diet. And, continue to provide them with educational materials for them to read. As I said, my sister did finally come around, although she is now in denial that any of her 10 kids could also have this problem (and here again, I can see the symptoms).

B.

[Guest guest]

I don't think you are being overly sensitive at all--you just care about your family and want the best for them. Since my family seems to be interested in only themselves and often believe nothing i have to say, I just threw it out there about Molly's celiac. I just told them that it was up to them but "maybe" they would want to get tested--especially if they notice any similar symptoms. Then I just let it rest. I am sure that at least one or two of my brothers has the disease but they would rather die than admit it--so I just let them be and let them be miserable. I know I did what I should do in letting them know and anything else is up to them. If your family makes fun or mocks you then just leave them to themselves, you do not have to be a doormat.

A MahoneyWrite 2 the PointJournalist

[Guest guest]

Hi Zanna,

I understand how you feel about being patronized by

your insensitive family. Mine have also " made fun of "

my illnesses, and now that we've actually put a nam to

it and I feel well I know they still snicker behind my

back. It's horrible to be sick for years and nobody

believing you because the scores of doctors couldn't

ever find anything wrong with you. I have learned

that my responsibility to them is to let them know

their risk of also having this illness and if they

choose to ignore it than I have to let it go and not

mention it again and let them choose to live their

life the way they want. I realized that what I was

really looking for from them was validation which I

was never going to get from them. I have found other

people that can provide that validation and support

for me so I quit going to that empty well. Good luck

and stay gluten-free & happy with the support of your

gluten-free friends here.

gail

__________________________________________________

[Guest guest]

Hi Zanna,

I understand how you feel about being patronized by

your insensitive family. Mine have also " made fun of "

my illnesses, and now that we've actually put a nam to

it and I feel well I know they still snicker behind my

back. It's horrible to be sick for years and nobody

believing you because the scores of doctors couldn't

ever find anything wrong with you. I have learned

that my responsibility to them is to let them know

their risk of also having this illness and if they

choose to ignore it than I have to let it go and not

mention it again and let them choose to live their

life the way they want. I realized that what I was

really looking for from them was validation which I

was never going to get from them. I have found other

people that can provide that validation and support

for me so I quit going to that empty well. Good luck

and stay gluten-free & happy with the support of your

gluten-free friends here.

gail

__________________________________________________

[Guest guest]

Hi Zanna,

I understand how you feel about being patronized by

your insensitive family. Mine have also " made fun of "

my illnesses, and now that we've actually put a nam to

it and I feel well I know they still snicker behind my

back. It's horrible to be sick for years and nobody

believing you because the scores of doctors couldn't

ever find anything wrong with you. I have learned

that my responsibility to them is to let them know

their risk of also having this illness and if they

choose to ignore it than I have to let it go and not

mention it again and let them choose to live their

life the way they want. I realized that what I was

really looking for from them was validation which I

was never going to get from them. I have found other

people that can provide that validation and support

for me so I quit going to that empty well. Good luck

and stay gluten-free & happy with the support of your

gluten-free friends here.

gail

__________________________________________________

[Guest guest]

The most you can do is give them the information, tell them how much better you feel, and let them alone.Zanna wrote: I know I am totally pmsing and probably being a little overly sensitive. Since getting our test results and finding out that I have 2 of the genes for gluten intolerance and DH has one for celiac and both our children have one of each, we have been a gluten free family-about 5 weeks. We are all noticing differences for the better in how we feel.I have been through the wringer with disease and complications all my life. I am now convinced it was the gluten issue all along as every problem I have had is listed as a complication of long term mis-diagnosis'. So I am begging my sisters to get tested and not through their doctors-my blood tests were all negative. Today I was talking to my sister-the one I

am very close too and everytime I said something, she said 'oh, maybe it's celiac'. She was mocking me. She said our other sister was upset with me too and that I am preaching. I am not preaching. I just care about them so much that I can't bear to see them go through the pain and suffering that have been through. My mom went to her doctor to have her blood tested even though I told her I would pay for a test from entero labs. Her doctor of course told her she didn't have it because her blood was negative but she does have a thyroid condition, as does my oldest sister-not involved in this discussion. I told her that that can also be a complication. So, my sister on the phone says again 'it must be celiac', the sky is blue, it must be celiac, it's raining, it must be celiac. I told her I needed to get off the phone before I hung up on her. Her and I have had one argument our whole adult lives-we are both late 30's and I am never angry with her. Now I feel hurt. I

told her I just cared and that I would stop pestering them. I guess it is up to them now.....Am I being over sensitive?????Zannahttp://groups.yahoo.com/group/Art_on_A_Budget/My daily rantings!www.zannasstory.blogspot.comMy picture trail: www.picturetrail.com/xanadoodles

[Guest guest]

The most you can do is give them the information, tell them how much better you feel, and let them alone.Zanna wrote: I know I am totally pmsing and probably being a little overly sensitive. Since getting our test results and finding out that I have 2 of the genes for gluten intolerance and DH has one for celiac and both our children have one of each, we have been a gluten free family-about 5 weeks. We are all noticing differences for the better in how we feel.I have been through the wringer with disease and complications all my life. I am now convinced it was the gluten issue all along as every problem I have had is listed as a complication of long term mis-diagnosis'. So I am begging my sisters to get tested and not through their doctors-my blood tests were all negative. Today I was talking to my sister-the one I

am very close too and everytime I said something, she said 'oh, maybe it's celiac'. She was mocking me. She said our other sister was upset with me too and that I am preaching. I am not preaching. I just care about them so much that I can't bear to see them go through the pain and suffering that have been through. My mom went to her doctor to have her blood tested even though I told her I would pay for a test from entero labs. Her doctor of course told her she didn't have it because her blood was negative but she does have a thyroid condition, as does my oldest sister-not involved in this discussion. I told her that that can also be a complication. So, my sister on the phone says again 'it must be celiac', the sky is blue, it must be celiac, it's raining, it must be celiac. I told her I needed to get off the phone before I hung up on her. Her and I have had one argument our whole adult lives-we are both late 30's and I am never angry with her. Now I feel hurt. I

told her I just cared and that I would stop pestering them. I guess it is up to them now.....Am I being over sensitive?????Zannahttp://groups.yahoo.com/group/Art_on_A_Budget/My daily rantings!www.zannasstory.blogspot.comMy picture trail: www.picturetrail.com/xanadoodles

[Guest guest]

The most you can do is give them the information, tell them how much better you feel, and let them alone.Zanna wrote: I know I am totally pmsing and probably being a little overly sensitive. Since getting our test results and finding out that I have 2 of the genes for gluten intolerance and DH has one for celiac and both our children have one of each, we have been a gluten free family-about 5 weeks. We are all noticing differences for the better in how we feel.I have been through the wringer with disease and complications all my life. I am now convinced it was the gluten issue all along as every problem I have had is listed as a complication of long term mis-diagnosis'. So I am begging my sisters to get tested and not through their doctors-my blood tests were all negative. Today I was talking to my sister-the one I

am very close too and everytime I said something, she said 'oh, maybe it's celiac'. She was mocking me. She said our other sister was upset with me too and that I am preaching. I am not preaching. I just care about them so much that I can't bear to see them go through the pain and suffering that have been through. My mom went to her doctor to have her blood tested even though I told her I would pay for a test from entero labs. Her doctor of course told her she didn't have it because her blood was negative but she does have a thyroid condition, as does my oldest sister-not involved in this discussion. I told her that that can also be a complication. So, my sister on the phone says again 'it must be celiac', the sky is blue, it must be celiac, it's raining, it must be celiac. I told her I needed to get off the phone before I hung up on her. Her and I have had one argument our whole adult lives-we are both late 30's and I am never angry with her. Now I feel hurt. I

told her I just cared and that I would stop pestering them. I guess it is up to them now.....Am I being over sensitive?????Zannahttp://groups.yahoo.com/group/Art_on_A_Budget/My daily rantings!www.zannasstory.blogspot.comMy picture trail: www.picturetrail.com/xanadoodles

[Guest guest]

That's right Donna--most men are hardheaded--I am just grateful that my husband is very understanding and my family issues are with those who do not reside with us! That makes it easier to just ignore them all. Same with Zanna--you seem to have a supportive immediate family and really, that makes all the difference. Can you imagine if your own husband tried to ridicule or sabotage your gluten free diet? You know, people wouldn't treat others that way if they can cancer, so you just wonder what makes this any different?

A MahoneyWrite 2 the PointJournalist

[Guest guest]

That's right Donna--most men are hardheaded--I am just grateful that my husband is very understanding and my family issues are with those who do not reside with us! That makes it easier to just ignore them all. Same with Zanna--you seem to have a supportive immediate family and really, that makes all the difference. Can you imagine if your own husband tried to ridicule or sabotage your gluten free diet? You know, people wouldn't treat others that way if they can cancer, so you just wonder what makes this any different?

A MahoneyWrite 2 the PointJournalist

[Guest guest]

That's right Donna--most men are hardheaded--I am just grateful that my husband is very understanding and my family issues are with those who do not reside with us! That makes it easier to just ignore them all. Same with Zanna--you seem to have a supportive immediate family and really, that makes all the difference. Can you imagine if your own husband tried to ridicule or sabotage your gluten free diet? You know, people wouldn't treat others that way if they can cancer, so you just wonder what makes this any different?

A MahoneyWrite 2 the PointJournalist

[Guest guest]

>

> ...I am just grateful that my husband is very understanding ...

> Same with Zanna--you seem to have a supportive immediate family

> and really, that makes all the difference. Can you imagine if

> your own husband tried to ridicule or sabotage your gluten free

> diet?

>

My immediate family is so happy to see me feeling better!

How could they be anything but supportive when the change in my

health is as clear as day?

And when I get glutened? That change is even MORE clear than

clear as day!

You know that line from " Ghostbusters " ? " There is no Dana, Only Zool! "

Well, I turn into Zool when I get glutened.

" There is no mama, Only Zool! "

[Guest guest]

>

> ...I am just grateful that my husband is very understanding ...

> Same with Zanna--you seem to have a supportive immediate family

> and really, that makes all the difference. Can you imagine if

> your own husband tried to ridicule or sabotage your gluten free

> diet?

>

My immediate family is so happy to see me feeling better!

How could they be anything but supportive when the change in my

health is as clear as day?

And when I get glutened? That change is even MORE clear than

clear as day!

You know that line from " Ghostbusters " ? " There is no Dana, Only Zool! "

Well, I turn into Zool when I get glutened.

" There is no mama, Only Zool! "

[Guest guest]

>

> ...I am just grateful that my husband is very understanding ...

> Same with Zanna--you seem to have a supportive immediate family

> and really, that makes all the difference. Can you imagine if

> your own husband tried to ridicule or sabotage your gluten free

> diet?

>

My immediate family is so happy to see me feeling better!

How could they be anything but supportive when the change in my

health is as clear as day?

And when I get glutened? That change is even MORE clear than

clear as day!

You know that line from " Ghostbusters " ? " There is no Dana, Only Zool! "

Well, I turn into Zool when I get glutened.

" There is no mama, Only Zool! "