RE: intra--hepatic, extra-hepatic, big, small bile ducts??/Ian

[Guest guest]

All the ducts are removed in a liver transplant for PSC patients. From http://www.henryfordhealth.org/1149.cfm:

" In some patients, especially those with primary sclerosing cholangitis, their bile duct is not of good quality to be used. Therefore, we connect the new liver bile duct to the intestine directly. This is called a Roux-en-Y connection - named after the French surgeon who first described it. "

There are a few pre-transplant PSCers who have had the surgery you had, but all of the transplantees have it.

Arne

56 - UC 1977, PSC 2000

Alive and (mostly) well in Minnesota

________________________________

From: [mailto: ] On Behalf Of i_cribb

.... when they do a liver transplant all small ducts would go with the liver but some large ducts may remain, or do they take them both out and possible remove the gall bladder at the same time?

[Guest guest]

I am a post tx psc'er and I am an exception to the note below. I kept

my bile duct. And it was attached to the bile duct on the donor liver.

I did have problems post tx with the connection but a few(well many)

stents later it worked itself out. However while I was having problems

the surgeons wanted to go back in and do a roun en y. I opted to try

one more time to see if the stents would work and by gosh they did.

Thank god, because I do not believe I could have handled another major

surgery only months after the tx. Emotionally that would have been

more than I could have handled.

The biopsy on my liver showed psc, but my large bile duct was not

affected. I was always told I had a combination of AIH and PSC however

the biopsy on my liver said NO AIH!!!

I think there is still alot they do not know about PSC and other liver

diseases.

regards,

beth ann dalrymple

psc, uc 1978 ltx 1/06

> There are a few pre-transplant PSCers who have had the surgery you

had, but

> all of the transplantees have it.

>