Re: I'm gonna lose my mind.

[Guest guest]

Thank you. I REALLY needed that. I've had some time to absorb the whole gluten thing but the lactose thing, Didn't see it coming! That's good about the lactaid and that she may "recover" from this one at least.

As for doing this stuff in my sleep, I do. When I finally do fall asleep, I dream about it all night long. My husband said he dreamt he had a huge Celiac standing over him while he slept. lol

A bright spot to the lactose thing is that sometimes the lactose intolerance will go away after the villi heal from the gluten. And, don't forget, there is always lactaid for the lactose thing so that can be fairly easily dealt with.

Just take a really deep breath. You will be really amazed at how quickly you go from completely freaked out newbie at all of this, to a veteran who can navigate GF like no one's business. My son has only been GF for 2 years now, and the first few months were completely overwhelming. But, you've already won half the battle by finding a group like this to give you tips, help you figure out foods, etc... you'll be doing this stuff in your sleep before you know it. I promise!!!

B.

[Guest guest]

Wow, you all can really make a girl cry! That doesn't take much though, lol. Thank you for all that. I really need to hear that right now. As long as I know there's hope. I keep saying, ok.. take a deep breath and get busy then it seems in 5 minutes the whole day is gone and it's time for bed and I feel I got nothing done! My mom keeps saying "make a list". That list just keeps growing! lol.

Thank you again. And thanks for the good news that she may outgrow the lactose problem, I really hope she does. Do you know if frozen yogurt is lactose free? Sherbert? Anything?? lol.

I know that it can be completely overwhelming --- especially because it's your child...your baby....and since the day that she was born you have dedicated yourself to making sure that she is healthy and safe and loved. I was where you were only 5 months ago with my then 2 1/2 year old daughter, Caroline. I saw her getting cranky, clingy and withdrawn, getting colds more often than I thought she should, her hair was not as shiny and long as I remembered it being (she did not have the typical GI problems).....when everyone told me that it was typical toddler behavior, I almost bought it. But something inside me kept telling me to keep pushing the doctors until we discovered it was Celiac..... When she was diagnosed, on the one hand, I was relieved that it was not something more horrible (as I had narrowed her symptoms down to 5 pretty terrible, life-threatening diseases). On the other hand, I was depressed because it literally turned our family life upside down for a bit- from having to ban Cheerios for my 1 yr. old because of cross-contamination issues to stopping all take-out and going out to eat (for the time being at least), which we had grown accustomed to doing since both my husband and I have full-time jobs.

But between the internet, books and great stores like Whole Foods, Trade Joes and the local health shoppe, we settled into our GF lifestyle. It was a bit rocky for the first week or so, but I would say that after about 1 month, it becomes almost second nature. And it is all worth it once we started seeing the almost immediate results of being GF---Caroline went back to being her old self.

It is absolutely normal for you to feel overwhelmed, depressed, even guilty. I went through all of those emotions (and occasionally still do). However, there are so, so many resources out there. You are not alone. And the lactose thing is common with newly diagnosed Celiacs---once the villi heal, you may be able to re-introduce lactose. Just put the same energy and passion that you put into loving your child into educating yourself about Celiac and the GF diet and soon you will not feel overwhelmed or depressed. And remember that your children take cues from you, so educate Cassidy about Celiac. I guarantee that if you are positive regarding the GF diet, she will follow your lead, especially once she recognizes that she feels 100% better.

B.

[Guest guest]

A bright spot to the lactose thing is that sometimes the lactose intolerance will go away after the villi heal from the gluten. And, don't forget, there is always lactaid for the lactose thing so that can be fairly easily dealt with.

Just take a really deep breath. You will be really amazed at how quickly you go from completely freaked out newbie at all of this, to a veteran who can navigate GF like no one's business. My son has only been GF for 2 years now, and the first few months were completely overwhelming. But, you've already won half the battle by finding a group like this to give you tips, help you figure out foods, etc... you'll be doing this stuff in your sleep before you know it. I promise!!!

From: SillyYaks [mailto:SillyYaks ] On Behalf Of sendn9112u@...Sent: Tuesday, August 29, 2006 1:36 PMTo: SillyYaks Subject: I'm gonna lose my mind.

The dr. just called with Cassidy's results, FINALLY. Not only is she Celiac but now Lactose Intolerant too. I TOTALLY didn't see that coming and feel like someone just punched me in the stomach, again. Honestly, I feel like I'm having a nervous breakdown with all this info. 2 months ago she was fine now my worlds been turned up side down. I know I'm over reacting but I know NOTHING about this lactose thing. Anyone??

Honestly, milk, cheese, ice cream on top of gluten?? omg, what next?

B.

[Guest guest]

I know that it can be completely overwhelming --- especially because it's your child...your baby....and since the day that she was born you have dedicated yourself to making sure that she is healthy and safe and loved. I was where you were only 5 months ago with my then 2 1/2 year old daughter, Caroline. I saw her getting cranky, clingy and withdrawn, getting colds more often than I thought she should, her hair was not as shiny and long as I remembered it being (she did not have the typical GI problems).....when everyone told me that it was typical toddler behavior, I almost bought it. But something inside me kept telling me to keep pushing the doctors until we discovered it was Celiac..... When she was diagnosed, on the one hand, I was relieved that it was not something more horrible (as I had narrowed her symptoms down to 5 pretty terrible, life-threatening diseases). On the other hand, I was depressed because it literally turned our family life upside down for a bit- from having to ban Cheerios for my 1 yr. old because of cross-contamination issues to stopping all take-out and going out to eat (for the time being at least), which we had grown accustomed to doing since both my husband and I have full-time jobs.

But between the internet, books and great stores like Whole Foods, Trade Joes and the local health shoppe, we settled into our GF lifestyle. It was a bit rocky for the first week or so, but I would say that after about 1 month, it becomes almost second nature. And it is all worth it once we started seeing the almost immediate results of being GF---Caroline went back to being her old self.

It is absolutely normal for you to feel overwhelmed, depressed, even guilty. I went through all of those emotions (and occasionally still do). However, there are so, so many resources out there. You are not alone. And the lactose thing is common with newly diagnosed Celiacs---once the villi heal, you may be able to re-introduce lactose. Just put the same energy and passion that you put into loving your child into educating yourself about Celiac and the GF diet and soon you will not feel overwhelmed or depressed. And remember that your children take cues from you, so educate Cassidy about Celiac. I guarantee that if you are positive regarding the GF diet, she will follow your lead, especially once she recognizes that she feels 100% better.

I'm gonna lose my mind.

The dr. just called with Cassidy's results, FINALLY. Not only is she Celiac but now Lactose Intolerant too. I TOTALLY didn't see that coming and feel like someone just punched me in the stomach, again. Honestly, I feel like I'm having a nervous breakdown with all this info. 2 months ago she was fine now my worlds been turned up side down. I know I'm over reacting but I know NOTHING about this lactose thing. Anyone??

Honestly, milk, cheese, ice cream on top of gluten?? omg, what next?

B.

[Guest guest]

Hi , I'm also new to all this. My almost 13 year old daughter was recently diagnosed. It has been 2 weeks of trial and error for our family. She too is lactose intolerant as well as allergic to soy and a few other things. I have found this site to be very helpful. I also surf the internet looking for everything I can find to help us get used to this. Be glad your little daughter will soon be feeling better. We noticed a change the very first week. I also have lactose pills (over the counter) that help ease the dairy problems. I do allow her minimal dairy...GF salad dressing, GF mayo, but make her take the pill. It really does help. Maybe that will be something that you can ask your daughters doctor about. Also be thakful you didn't have to wait years for a diagnosis. Our daughter has had tummy troubles since she was 5. They always said IBS or Crohns. Neither of which she had. So hang in there...it will get better :-) A Stressed Out (but thankful) Mom Like You, - Buffalo, NY sendn9112u@... wrote: The dr. just called with Cassidy's results, FINALLY. Not only is she Celiac but now Lactose Intolerant too. I TOTALLY didn't see that coming and feel like someone just punched me in the stomach, again. Honestly, I feel like I'm having a nervous breakdown with all this info. 2 months ago she was fine now my worlds been turned up side down. I know I'm over reacting but I know NOTHING about this lactose thing. Anyone?? Honestly, milk, cheese, ice cream on top of gluten?? omg, what next? B.

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[Guest guest]

>> The dr. just called with Cassidy's results, FINALLY. Not only is she Celiac > but now Lactose Intolerant too. I TOTALLY didn't see that coming and feel like > someone just punched me in the stomach, again. Honestly, I feel like I'm > having a nervous breakdown with all this info. 2 months ago she was fine now my > worlds been turned up side down. I know I'm over reacting but I know NOTHING > about this lactose thing. Anyone??> Honestly, milk, cheese, ice cream on top of gluten?? omg, what next?> > , hon, take a deep breath... Its really not all that bad. I too am lactose intolerant, wasnt at first, but am now. I also cant have soy, so that really narrows my choices to Lactaid or Rice Milk (Im not fond of the rice milk) in the US. I have gotten spoilt here with so much GF LF stuff, but... Here are a few that I have researched. Cheese, Finlandia (what is Valio OY) here makes a DELISH lactose free Edam and swiss.Philly makes a LF creme cheese,Ice cream??? Everyone here has said it leaves something to be desired, SOOO I have set my sights on finding a crank type ice cream maker, and I will make my own with lactaid milk and fresh fruit. I am sorry I cant recall how old Cassidy is, but she may have fun making the ice cream!Juice bars... YUMMY!Penzeys spice makes a GF cocoa powder, so if you wanted to make chocolate ice cream, its totally possible! Also look for LF powdered milk for baking. Im not familiar with brands there, but its readily available most anywhere here.Try not to get discouraged. I know its hard, but we have all been there either ourselves or with a loved one.Big hugs!CassiGluten free in downtown Imatra!

[Guest guest]

Hey , try some sorbet--all that is is fruit and sugar and it is pretty yummy. My oldest daughter who was really allergic to dairy used to have this all the time and loved it. YOu can also try Italian ice, which is pretty much the same thing.

Hang in there--we moms have to stick together!

A MahoneyWrite 2 the PointJournalist

[Guest guest]

-

Please, slow down! The lactose intolerance may be

only temporary.

Lactose is digested by the enzyme lactase, which is

manufactured on the tips of the villi of the small

intestines. When the small intestines heal,i.e. the

villi grow back, the person may then find that she can

again digest lactose.

Give it a try in 6 months or so, it may not be so bad

after all.

I have found that Mocha Mix is a wonderful substitute

(g-f) for milk in cooking and on cereal. I now prefer

it to cows milk!

You'll make it, just breathe slowly and deeply for a

while .

Barbara in SoCal

__________________________________________________

[Guest guest]

Tofutti is also a brand that offers many gluten free, dairy free ice

creams and " milk " products like sour cream and cream cheese. They have

a gluten free check box on their web page product list. They are soy

based though, so not good for those with soy intolerances. On the up

side, the dairy intolerance is very likely temporary, and will

probably resolve in a year or so. (I think I've even heard six months,

but it depends on the individual.) Don't despair! We're here for you.

You can also experiment with making homemade sorbet or shaved ice with

flavored syrup, or just fruit popsicles.

-

>

> Hey , try some sorbet--all that is is fruit and sugar and it is

pretty yummy. My oldest daughter who was really allergic to dairy used

to have this all the time and loved it. YOu can also try Italian ice,

which is pretty much the same thing.

>

> Hang in there--we moms have to stick together!

>

> A Mahoney

> Write 2 the Point

> Journalist

>

>

>

[Guest guest]

Wow, you all can really make a girl cry! That doesn't take much though, lol. Thank you for all that. I really need to hear that right now. As long as I know there's hope. I keep saying, ok.. take a deep breath and get busy then it seems in 5 minutes the whole day is gone and it's time for bed and I feel I got nothing done! My mom keeps saying "make a list". That list just keeps growing! lol.Thank you again. And thanks for the good news that she may outgrow the lactose problem, I really hope she does. Do you know if frozen yogurt is lactose free? Sherbert? Anything?? lol. B. I have one child that still can't tolerate dairy. For ice cream, sherberts and frozen yogurt all contain milk, therefore lactose. We use Haagen Daaz sorbet, and some store brand sorbets are also lactose/casein free. Just check the labels. Believe it or not, you will make the adjustment,

and hopefully it will be a temporary adjustment. Once I learned to think outside the box of how I ate growing up, I think my kids are actually better off, because we eat a much greater variety of foods and styles than we did before their diagnosis. Rebekah

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[Guest guest]

Wow, you all can really make a girl cry! That doesn't take much though, lol. Thank you for all that. I really need to hear that right now. As long as I know there's hope. I keep saying, ok.. take a deep breath and get busy then it seems in 5 minutes the whole day is gone and it's time for bed and I feel I got nothing done! My mom keeps saying "make a list". That list just keeps growing! lol.Thank you again. And thanks for the good news that she may outgrow the lactose problem, I really hope she does. Do you know if frozen yogurt is lactose free? Sherbert? Anything?? lol. B. I have one child that still can't tolerate dairy. For ice cream, sherberts and frozen yogurt all contain milk, therefore lactose. We use Haagen Daaz sorbet, and some store brand sorbets are also lactose/casein free. Just check the labels. Believe it or not, you will make the adjustment,

and hopefully it will be a temporary adjustment. Once I learned to think outside the box of how I ate growing up, I think my kids are actually better off, because we eat a much greater variety of foods and styles than we did before their diagnosis. Rebekah

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

Wow, you all can really make a girl cry! That doesn't take much though, lol. Thank you for all that. I really need to hear that right now. As long as I know there's hope. I keep saying, ok.. take a deep breath and get busy then it seems in 5 minutes the whole day is gone and it's time for bed and I feel I got nothing done! My mom keeps saying "make a list". That list just keeps growing! lol.Thank you again. And thanks for the good news that she may outgrow the lactose problem, I really hope she does. Do you know if frozen yogurt is lactose free? Sherbert? Anything?? lol. B. I have one child that still can't tolerate dairy. For ice cream, sherberts and frozen yogurt all contain milk, therefore lactose. We use Haagen Daaz sorbet, and some store brand sorbets are also lactose/casein free. Just check the labels. Believe it or not, you will make the adjustment,

and hopefully it will be a temporary adjustment. Once I learned to think outside the box of how I ate growing up, I think my kids are actually better off, because we eat a much greater variety of foods and styles than we did before their diagnosis. Rebekah

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.