Re: Biofeedback anyone??/Maureen

[Guest guest]

Dear Maureen,

Thanks so much for your encouraging reply. We are able to go only

once per week, since insurance will not cover it. If it does work,

we might go with a home unit also. What type did you get? Why do

you think you are not having as much success with it? How old is

your daughter and what types of seizures did it seem to help?

Ann

>

> >

> >

> > My son, has been on the diet since 1/27/04. He had great

> > success for exactly 4 weeks. We have never been able to get

control

> > back, although he is still on the diet. We are just starting

> > biofeedback with him. Has anyone ever had experience with this?

I

> > would really appreciate any information anyone has. Thanks!

> >

> > Ann

> >

> >

> >

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

last

> > resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> > professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-

unsubscribe

> >

> >

> >

[Guest guest]

We are using a brainmaster system at home. I think it is not as

successful for us because you cannot change the parameters in the

software for reward. My daughter had IS at 5 months and then progressed

to complex partial seizures, drops and now tonic seizures that are like

spasms. The neurofeedback definitely helped my daughter control the

head drops. And she can frequently stop the tonic spasm. But she still

has them. My daughter's EEG is horribly abnormal and I find that it is

better during the neurofeedback and afterwards. I think it helps her

get into a pattern that is overall better - not normal but not off the

charts.

Hope this helps. I'm for all things that work.

Maureen

>

>

> Dear Maureen,

> Thanks so much for your encouraging reply. We are able to go only

> once per week, since insurance will not cover it. If it does work,

> we might go with a home unit also. What type did you get? Why do

> you think you are not having as much success with it? How old is

> your daughter and what types of seizures did it seem to help?

>

> Ann

>

>

>>

>>>

>>>

>>> My son, has been on the diet since 1/27/04. He had great

>>> success for exactly 4 weeks. We have never been able to get

> control

>>> back, although he is still on the diet. We are just starting

>>> biofeedback with him. Has anyone ever had experience with this?

> I

>>> would really appreciate any information anyone has. Thanks!

>>>

>>> Ann

>>>

>>>

>>>

>>>

>>>

>>>

>>> " The Ketogenic Diet....a realistic treatment option, NOT just a

> last

>>> resort! "

>>>

>>> List is for parent to parent support only.

>>> It is important to get medical advice from a

>>> professional keto team!

>>> Subscribe: ketogenic-subscribe

>>> Unsubscribe: ketogenic-

> unsubscribe

>>>

>>>

>>>