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That's great how you have increased your endurance! It's amazing

what your bodies can do once we get them moving!!

Rhonda

> hello, just thought i stop by. well i've been really working my

butt

> off at the gym all week, and i'm up to 30 minutes now on the

> treadmill. boy, i can remember when i first started out, i could

> barely last 5 minutes on it. LOL!

>

> well i just wanted to stop in, brrrr! freezing, having a hard time

> just trying to stay warm!

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  • 2 years later...

Hi,

My name is Carroll. I have a three year old daughter named who

is hard of hearing. She was originally testing in the mild to moderate

range last year. She is now testing in the moderately severe to severe

range. She has a cookie-bite type of hearing loss, so she can hear the

higher and lower frequencies better than the mid-frequencies. I would love

to hear from anyone who has a child with this type of hearing loss. She is

very hard to test, so I it makes me wonder if her hearing is really as bad

as she is testing. She wears hearing aids and does great with them. But

she can also hear us without them if we are loud enough, which also makes me

wonder if her hearing is as bad as she is testing. Does anyone have any

experiences like this? She detects speech at 55 decibels, she tested around

60 decibels in the high and low frequencies and in the 70-80 range in the

mid-frequencies.

Thanks for any help you can give me.

_________________________________________________________________

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Hi ! I'm Cherie and my son (8) was diagnosed 3 years ago with a

cookie-bite loss. He drops to 85 db in one ear and 55 db in the other. Like

, seems to hear just fine without his hearing aids. Because of that,

it took a good 3 identical audiograms to convince me that he was definitely HOH.

Although benefits tremendously from his aids, he chooses not to wear

them for louder activities like movies and bowling. I usually just bring them

along in case he decides that he needs them.

Welcome!

Cherie

Carroll wendymattinglycarroll@...> wrote:

Hi,

My name is Carroll. I have a three year old daughter named who

is hard of hearing. She was originally testing in the mild to moderate

range last year. She is now testing in the moderately severe to severe

range. She has a cookie-bite type of hearing loss, so she can hear the

higher and lower frequencies better than the mid-frequencies. I would love

to hear from anyone who has a child with this type of hearing loss. She is

very hard to test, so I it makes me wonder if her hearing is really as bad

as she is testing. She wears hearing aids and does great with them. But

she can also hear us without them if we are loud enough, which also makes me

wonder if her hearing is as bad as she is testing. Does anyone have any

experiences like this? She detects speech at 55 decibels, she tested around

60 decibels in the high and low frequencies and in the 70-80 range in the

mid-frequencies.

Thanks for any help you can give me.

__________________________________________________________

Try the new Live Search today!

http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us&FORM=WLMTAG

---------------------------------

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

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Share on other sites

Thank you Cherie for replying. How is your son's speech? is behind

on her speech due to her hearing loss, but she is coming along nicely since

she was fitted with her hearing aids. Do you think your son was HOH at

birth or did it happen later?

Thanks again,

>

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: Hello

>Date: Tue, 19 Sep 2006 19:44:58 -0700 (PDT)

>

>Hi ! I'm Cherie and my son (8) was diagnosed 3 years ago with a

>cookie-bite loss. He drops to 85 db in one ear and 55 db in the other.

>Like , seems to hear just fine without his hearing aids.

>Because of that, it took a good 3 identical audiograms to convince me that

>he was definitely HOH.

>

> Although benefits tremendously from his aids, he chooses not to

>wear them for louder activities like movies and bowling. I usually just

>bring them along in case he decides that he needs them.

>

> Welcome!

>

> Cherie

>

> Carroll wendymattinglycarroll@...> wrote:

> Hi,

>My name is Carroll. I have a three year old daughter named who

>is hard of hearing. She was originally testing in the mild to moderate

>range last year. She is now testing in the moderately severe to severe

>range. She has a cookie-bite type of hearing loss, so she can hear the

>higher and lower frequencies better than the mid-frequencies. I would love

>to hear from anyone who has a child with this type of hearing loss. She is

>very hard to test, so I it makes me wonder if her hearing is really as bad

>as she is testing. She wears hearing aids and does great with them. But

>she can also hear us without them if we are loud enough, which also makes

>me

>wonder if her hearing is as bad as she is testing. Does anyone have any

>experiences like this? She detects speech at 55 decibels, she tested around

>60 decibels in the high and low frequencies and in the 70-80 range in the

>mid-frequencies.

>

>Thanks for any help you can give me.

>

>

>

>__________________________________________________________

>Try the new Live Search today!

>http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us&FORM=WLMTAG

>

>

>

>

>

>

>---------------------------------

>Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

>countries) for 2¢/min or less.

>

>

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's speech is actually pretty good. In fact, that was a concern of the ENT.

He felt that since spoke so well that he had a recent, sudden loss of

hearing. He told us to expect his hearing to drop sharply. Fortunately, that

has't been the case.

It wasn't until had his hearing aids and his speech began improving that

we realized how poor his pronounciation had become. He gets speech once a week

in school and that seems to be sufficient for now. 's biggest problem is

that he just wants to pronounce things the way he hears them and we're

constantly needing to reinforce the proper pronounciation of words.

had a newborn screening and passed with flying colors. I remember the

neonatal resident coming into my room the night he was born and telling me,

" This boy sure can hear! " As important as the newborn screening is, I feel that

it hindered us in getting help because one of the first questions we were

constantly asked was whether or not he passed his newborn screening. As soon as

I said yes, we were dismissed and his apparent lack of hearing would be chalked

up to wax or infection. It took us 9 months from the time I first noticed a

problem until he was properly diagnosed with a hearing loss. Needless to say,

that was a very frustrating time!

Cherie

Carroll wendymattinglycarroll@...> wrote:

Thank you Cherie for replying. How is your son's speech? is behind

on her speech due to her hearing loss, but she is coming along nicely since

she was fitted with her hearing aids. Do you think your son was HOH at

birth or did it happen later?

Thanks again,

>From: Cherie Myers

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: Hello

>Date: Tue, 19 Sep 2006 19:44:58 -0700 (PDT)

>

>Hi ! I'm Cherie and my son (8) was diagnosed 3 years ago with a

>cookie-bite loss. He drops to 85 db in one ear and 55 db in the other.

>Like , seems to hear just fine without his hearing aids.

>Because of that, it took a good 3 identical audiograms to convince me that

>he was definitely HOH.

>

> Although benefits tremendously from his aids, he chooses not to

>wear them for louder activities like movies and bowling. I usually just

>bring them along in case he decides that he needs them.

>

> Welcome!

>

> Cherie

>

> Carroll wrote:

> Hi,

>My name is Carroll. I have a three year old daughter named who

>is hard of hearing. She was originally testing in the mild to moderate

>range last year. She is now testing in the moderately severe to severe

>range. She has a cookie-bite type of hearing loss, so she can hear the

>higher and lower frequencies better than the mid-frequencies. I would love

>to hear from anyone who has a child with this type of hearing loss. She is

>very hard to test, so I it makes me wonder if her hearing is really as bad

>as she is testing. She wears hearing aids and does great with them. But

>she can also hear us without them if we are loud enough, which also makes

>me

>wonder if her hearing is as bad as she is testing. Does anyone have any

>experiences like this? She detects speech at 55 decibels, she tested around

>60 decibels in the high and low frequencies and in the 70-80 range in the

>mid-frequencies.

>

>Thanks for any help you can give me.

>

>

>

>__________________________________________________________

>Try the new Live Search today!

>http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us&FORM=WLMTAG

>

>

>

>

>

>

>---------------------------------

>Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

>countries) for 2¢/min or less.

>

>

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's speech is actually pretty good. In fact, that was a concern of the ENT.

He felt that since spoke so well that he had a recent, sudden loss of

hearing. He told us to expect his hearing to drop sharply. Fortunately, that

has't been the case.

It wasn't until had his hearing aids and his speech began improving that

we realized how poor his pronounciation had become. He gets speech once a week

in school and that seems to be sufficient for now. 's biggest problem is

that he just wants to pronounce things the way he hears them and we're

constantly needing to reinforce the proper pronounciation of words.

had a newborn screening and passed with flying colors. I remember the

neonatal resident coming into my room the night he was born and telling me,

" This boy sure can hear! " As important as the newborn screening is, I feel that

it hindered us in getting help because one of the first questions we were

constantly asked was whether or not he passed his newborn screening. As soon as

I said yes, we were dismissed and his apparent lack of hearing would be chalked

up to wax or infection. It took us 9 months from the time I first noticed a

problem until he was properly diagnosed with a hearing loss. Needless to say,

that was a very frustrating time!

Cherie

Carroll wendymattinglycarroll@...> wrote:

Thank you Cherie for replying. How is your son's speech? is behind

on her speech due to her hearing loss, but she is coming along nicely since

she was fitted with her hearing aids. Do you think your son was HOH at

birth or did it happen later?

Thanks again,

>From: Cherie Myers

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: Hello

>Date: Tue, 19 Sep 2006 19:44:58 -0700 (PDT)

>

>Hi ! I'm Cherie and my son (8) was diagnosed 3 years ago with a

>cookie-bite loss. He drops to 85 db in one ear and 55 db in the other.

>Like , seems to hear just fine without his hearing aids.

>Because of that, it took a good 3 identical audiograms to convince me that

>he was definitely HOH.

>

> Although benefits tremendously from his aids, he chooses not to

>wear them for louder activities like movies and bowling. I usually just

>bring them along in case he decides that he needs them.

>

> Welcome!

>

> Cherie

>

> Carroll wrote:

> Hi,

>My name is Carroll. I have a three year old daughter named who

>is hard of hearing. She was originally testing in the mild to moderate

>range last year. She is now testing in the moderately severe to severe

>range. She has a cookie-bite type of hearing loss, so she can hear the

>higher and lower frequencies better than the mid-frequencies. I would love

>to hear from anyone who has a child with this type of hearing loss. She is

>very hard to test, so I it makes me wonder if her hearing is really as bad

>as she is testing. She wears hearing aids and does great with them. But

>she can also hear us without them if we are loud enough, which also makes

>me

>wonder if her hearing is as bad as she is testing. Does anyone have any

>experiences like this? She detects speech at 55 decibels, she tested around

>60 decibels in the high and low frequencies and in the 70-80 range in the

>mid-frequencies.

>

>Thanks for any help you can give me.

>

>

>

>__________________________________________________________

>Try the new Live Search today!

>http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us&FORM=WLMTAG

>

>

>

>

>

>

>---------------------------------

>Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

>countries) for 2¢/min or less.

>

>

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Share on other sites

's speech is actually pretty good. In fact, that was a concern of the ENT.

He felt that since spoke so well that he had a recent, sudden loss of

hearing. He told us to expect his hearing to drop sharply. Fortunately, that

has't been the case.

It wasn't until had his hearing aids and his speech began improving that

we realized how poor his pronounciation had become. He gets speech once a week

in school and that seems to be sufficient for now. 's biggest problem is

that he just wants to pronounce things the way he hears them and we're

constantly needing to reinforce the proper pronounciation of words.

had a newborn screening and passed with flying colors. I remember the

neonatal resident coming into my room the night he was born and telling me,

" This boy sure can hear! " As important as the newborn screening is, I feel that

it hindered us in getting help because one of the first questions we were

constantly asked was whether or not he passed his newborn screening. As soon as

I said yes, we were dismissed and his apparent lack of hearing would be chalked

up to wax or infection. It took us 9 months from the time I first noticed a

problem until he was properly diagnosed with a hearing loss. Needless to say,

that was a very frustrating time!

Cherie

Carroll wendymattinglycarroll@...> wrote:

Thank you Cherie for replying. How is your son's speech? is behind

on her speech due to her hearing loss, but she is coming along nicely since

she was fitted with her hearing aids. Do you think your son was HOH at

birth or did it happen later?

Thanks again,

>From: Cherie Myers

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: Hello

>Date: Tue, 19 Sep 2006 19:44:58 -0700 (PDT)

>

>Hi ! I'm Cherie and my son (8) was diagnosed 3 years ago with a

>cookie-bite loss. He drops to 85 db in one ear and 55 db in the other.

>Like , seems to hear just fine without his hearing aids.

>Because of that, it took a good 3 identical audiograms to convince me that

>he was definitely HOH.

>

> Although benefits tremendously from his aids, he chooses not to

>wear them for louder activities like movies and bowling. I usually just

>bring them along in case he decides that he needs them.

>

> Welcome!

>

> Cherie

>

> Carroll wrote:

> Hi,

>My name is Carroll. I have a three year old daughter named who

>is hard of hearing. She was originally testing in the mild to moderate

>range last year. She is now testing in the moderately severe to severe

>range. She has a cookie-bite type of hearing loss, so she can hear the

>higher and lower frequencies better than the mid-frequencies. I would love

>to hear from anyone who has a child with this type of hearing loss. She is

>very hard to test, so I it makes me wonder if her hearing is really as bad

>as she is testing. She wears hearing aids and does great with them. But

>she can also hear us without them if we are loud enough, which also makes

>me

>wonder if her hearing is as bad as she is testing. Does anyone have any

>experiences like this? She detects speech at 55 decibels, she tested around

>60 decibels in the high and low frequencies and in the 70-80 range in the

>mid-frequencies.

>

>Thanks for any help you can give me.

>

>

>

>__________________________________________________________

>Try the new Live Search today!

>http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us&FORM=WLMTAG

>

>

>

>

>

>

>---------------------------------

>Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

>countries) for 2¢/min or less.

>

>

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passed her newborn screening as well. She had ear infections and

apparently had fluid in her ears for months. Unfortunately, the

pediatrician we had at the time never mentioned the fluid. I don't think it

has to do with her hearing loss anyway as hers is not conductive. We

finally had tubes put in, but she still had a hearing loss. We have seen

numerous audiologists and ENTs and no one seems to have anymore information

than the other. She gets speech three times a week and is in a special

education preschool class so I am really hoping that her speech really

improves this year. I would like her to start kindergarten in two years

without being behind.

It is very frustrating going through the whole process of learning that they

have a hearing loss. We too went back and forth as to whether or not she

had one. My mother-in-law still thinks she will " grow out of it " . I wish

it were true...

>

>Reply-To: Listen-Up

>To: Listen-Up

>Subject: Re: Hello

>Date: Wed, 20 Sep 2006 10:55:41 -0700 (PDT)

>

>'s speech is actually pretty good. In fact, that was a concern of the

>ENT. He felt that since spoke so well that he had a recent, sudden

>loss of hearing. He told us to expect his hearing to drop sharply.

>Fortunately, that has't been the case.

>

> It wasn't until had his hearing aids and his speech began

>improving that we realized how poor his pronounciation had become. He gets

>speech once a week in school and that seems to be sufficient for now.

>'s biggest problem is that he just wants to pronounce things the way

>he hears them and we're constantly needing to reinforce the proper

>pronounciation of words.

>

> had a newborn screening and passed with flying colors. I remember

>the neonatal resident coming into my room the night he was born and telling

>me, " This boy sure can hear! " As important as the newborn screening is, I

>feel that it hindered us in getting help because one of the first

>questions we were constantly asked was whether or not he passed his newborn

>screening. As soon as I said yes, we were dismissed and his apparent lack

>of hearing would be chalked up to wax or infection. It took us 9 months

>from the time I first noticed a problem until he was properly diagnosed

>with a hearing loss. Needless to say, that was a very frustrating time!

>

> Cherie

>

> Carroll wendymattinglycarroll@...> wrote:

> Thank you Cherie for replying. How is your son's speech? is behind

>on her speech due to her hearing loss, but she is coming along nicely since

>she was fitted with her hearing aids. Do you think your son was HOH at

>birth or did it happen later?

>

>Thanks again,

>

>

>

> >From: Cherie Myers

> >Reply-To: Listen-Up

> >To: Listen-Up

> >Subject: Re: Hello

> >Date: Tue, 19 Sep 2006 19:44:58 -0700 (PDT)

> >

> >Hi ! I'm Cherie and my son (8) was diagnosed 3 years ago with

>a

> >cookie-bite loss. He drops to 85 db in one ear and 55 db in the other.

> >Like , seems to hear just fine without his hearing aids.

> >Because of that, it took a good 3 identical audiograms to convince me

>that

> >he was definitely HOH.

> >

> > Although benefits tremendously from his aids, he chooses not to

> >wear them for louder activities like movies and bowling. I usually just

> >bring them along in case he decides that he needs them.

> >

> > Welcome!

> >

> > Cherie

> >

> > Carroll wrote:

> > Hi,

> >My name is Carroll. I have a three year old daughter named

>who

> >is hard of hearing. She was originally testing in the mild to moderate

> >range last year. She is now testing in the moderately severe to severe

> >range. She has a cookie-bite type of hearing loss, so she can hear the

> >higher and lower frequencies better than the mid-frequencies. I would

>love

> >to hear from anyone who has a child with this type of hearing loss. She

>is

> >very hard to test, so I it makes me wonder if her hearing is really as

>bad

> >as she is testing. She wears hearing aids and does great with them. But

> >she can also hear us without them if we are loud enough, which also makes

> >me

> >wonder if her hearing is as bad as she is testing. Does anyone have any

> >experiences like this? She detects speech at 55 decibels, she tested

>around

> >60 decibels in the high and low frequencies and in the 70-80 range in the

> >mid-frequencies.

> >

> >Thanks for any help you can give me.

> >

> >

> >

> >__________________________________________________________

> >Try the new Live Search today!

>

>http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us&FORM=WLMTAG

> >

> >

> >

> >

> >

> >

> >---------------------------------

> >Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

> >countries) for 2¢/min or less.

> >

> >

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, welcome to the group!

I'm Jill, mom to a D/HOH high school junior. Not a little boy anymore, and

not quite a man. Ian had the kind of loss you describe, but originally in the

moderate range for quite a long time. He has a progressive loss, so his gets

a little worse each time he tests. But for years is was just the cookie bite

you describe. (A couple years ago it became almost flat across.) As a

result, I could whistle for him in stores. He didn't hear me call, but he could

hear me whistle.

We didn't learn of Ian's loss until he was older than your daughter, but I

do know that he seems to hear far better than he does and always has. That's

how he fooled everyone, including doctors into thinking that his hearing was

fine. He taught himself to lip read, and can read body language and other

visual clues like a pro. But he really can't hear and there are days when I am

bluntly reminded of that.

Ian constantly confuses us into thinking he can hear us, even when his aids

are out. He is a pro at seeing clues, things like shadows in doorways

indicating someone has walked into the room, or smelling them before they

actually

arrive in a room (I apparently often smell of dishwashing soap). That makes

him look towards us, as though he heard our footsteps, and once looking at me,

the boy can lip read me without even thinking about it.

Another things D/HOH kids do is they take what they've partially heard and

then figure out what was said. Ian uses his strong logic and reasoning skills

to figure out the gist of what we're saying. That doesn't mean he picked up

every word, or even the important ones, but often he figures out what I'm

saying from very few clues.

Our kids are amazing when it comes to coping.

All that being said, little ones are notoriously difficult to test. Some

parents play games like dropping a ball into a bucket when a tone is played,

imitating the testing situation. Some little ones get enthusiastic and just

start dropping blocks without waiting for sounds. But with practice, they can

learn how to booth test.

We never went through that, as I said, Ian was too old, but I know other

parents here can give you pointers on things to try in order to get the best and

most reliable results.

Best -- Jill

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, welcome to the group!

I'm Jill, mom to a D/HOH high school junior. Not a little boy anymore, and

not quite a man. Ian had the kind of loss you describe, but originally in the

moderate range for quite a long time. He has a progressive loss, so his gets

a little worse each time he tests. But for years is was just the cookie bite

you describe. (A couple years ago it became almost flat across.) As a

result, I could whistle for him in stores. He didn't hear me call, but he could

hear me whistle.

We didn't learn of Ian's loss until he was older than your daughter, but I

do know that he seems to hear far better than he does and always has. That's

how he fooled everyone, including doctors into thinking that his hearing was

fine. He taught himself to lip read, and can read body language and other

visual clues like a pro. But he really can't hear and there are days when I am

bluntly reminded of that.

Ian constantly confuses us into thinking he can hear us, even when his aids

are out. He is a pro at seeing clues, things like shadows in doorways

indicating someone has walked into the room, or smelling them before they

actually

arrive in a room (I apparently often smell of dishwashing soap). That makes

him look towards us, as though he heard our footsteps, and once looking at me,

the boy can lip read me without even thinking about it.

Another things D/HOH kids do is they take what they've partially heard and

then figure out what was said. Ian uses his strong logic and reasoning skills

to figure out the gist of what we're saying. That doesn't mean he picked up

every word, or even the important ones, but often he figures out what I'm

saying from very few clues.

Our kids are amazing when it comes to coping.

All that being said, little ones are notoriously difficult to test. Some

parents play games like dropping a ball into a bucket when a tone is played,

imitating the testing situation. Some little ones get enthusiastic and just

start dropping blocks without waiting for sounds. But with practice, they can

learn how to booth test.

We never went through that, as I said, Ian was too old, but I know other

parents here can give you pointers on things to try in order to get the best and

most reliable results.

Best -- Jill

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In a message dated 9/21/2006 12:33:05 P.M. Eastern Standard Time,

katie.naughton.qpgc@... writes:

I bet this would bead deaf/hoh kids great investigators/I bet this

they become adults!

LOL ... I never thought about that, but you're right! Another potential

career for Ian to consider.

Jill

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In a message dated 9/21/2006 12:33:05 P.M. Eastern Standard Time,

katie.naughton.qpgc@... writes:

I bet this would bead deaf/hoh kids great investigators/I bet this

they become adults!

LOL ... I never thought about that, but you're right! Another potential

career for Ian to consider.

Jill

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Share on other sites

In a message dated 9/21/2006 12:33:05 P.M. Eastern Standard Time,

katie.naughton.qpgc@... writes:

I bet this would bead deaf/hoh kids great investigators/I bet this

they become adults!

LOL ... I never thought about that, but you're right! Another potential

career for Ian to consider.

Jill

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Share on other sites

I bet this would bead deaf/hoh kids great investigators/detectives when

they become adults!

________________________________

From: Listen-Up [mailto:Listen-Up ] On

Behalf Of JillcWood@...

Sent: Thursday, September 21, 2006 10:56 AM

To: Listen-Up

Subject: Re: Hello

, welcome to the group!

I'm Jill, mom to a D/HOH high school junior. Not a little boy anymore,

and

not quite a man. Ian had the kind of loss you describe, but originally

in the

moderate range for quite a long time. He has a progressive loss, so his

gets

a little worse each time he tests. But for years is was just the cookie

bite

you describe. (A couple years ago it became almost flat across.) As a

result, I could whistle for him in stores. He didn't hear me call, but

he could

hear me whistle.

We didn't learn of Ian's loss until he was older than your daughter, but

I

do know that he seems to hear far better than he does and always has.

That's

how he fooled everyone, including doctors into thinking that his hearing

was

fine. He taught himself to lip read, and can read body language and

other

visual clues like a pro. But he really can't hear and there are days

when I am

bluntly reminded of that.

Ian constantly confuses us into thinking he can hear us, even when his

aids

are out. He is a pro at seeing clues, things like shadows in doorways

indicating someone has walked into the room, or smelling them before

they actually

arrive in a room (I apparently often smell of dishwashing soap). That

makes

him look towards us, as though he heard our footsteps, and once looking

at me,

the boy can lip read me without even thinking about it.

Another things D/HOH kids do is they take what they've partially heard

and

then figure out what was said. Ian uses his strong logic and reasoning

skills

to figure out the gist of what we're saying. That doesn't mean he picked

up

every word, or even the important ones, but often he figures out what

I'm

saying from very few clues.

Our kids are amazing when it comes to coping.

All that being said, little ones are notoriously difficult to test. Some

parents play games like dropping a ball into a bucket when a tone is

played,

imitating the testing situation. Some little ones get enthusiastic and

just

start dropping blocks without waiting for sounds. But with practice,

they can

learn how to booth test.

We never went through that, as I said, Ian was too old, but I know other

parents here can give you pointers on things to try in order to get the

best and

most reliable results.

Best -- Jill

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I bet this would bead deaf/hoh kids great investigators/detectives when

they become adults!

________________________________

From: Listen-Up [mailto:Listen-Up ] On

Behalf Of JillcWood@...

Sent: Thursday, September 21, 2006 10:56 AM

To: Listen-Up

Subject: Re: Hello

, welcome to the group!

I'm Jill, mom to a D/HOH high school junior. Not a little boy anymore,

and

not quite a man. Ian had the kind of loss you describe, but originally

in the

moderate range for quite a long time. He has a progressive loss, so his

gets

a little worse each time he tests. But for years is was just the cookie

bite

you describe. (A couple years ago it became almost flat across.) As a

result, I could whistle for him in stores. He didn't hear me call, but

he could

hear me whistle.

We didn't learn of Ian's loss until he was older than your daughter, but

I

do know that he seems to hear far better than he does and always has.

That's

how he fooled everyone, including doctors into thinking that his hearing

was

fine. He taught himself to lip read, and can read body language and

other

visual clues like a pro. But he really can't hear and there are days

when I am

bluntly reminded of that.

Ian constantly confuses us into thinking he can hear us, even when his

aids

are out. He is a pro at seeing clues, things like shadows in doorways

indicating someone has walked into the room, or smelling them before

they actually

arrive in a room (I apparently often smell of dishwashing soap). That

makes

him look towards us, as though he heard our footsteps, and once looking

at me,

the boy can lip read me without even thinking about it.

Another things D/HOH kids do is they take what they've partially heard

and

then figure out what was said. Ian uses his strong logic and reasoning

skills

to figure out the gist of what we're saying. That doesn't mean he picked

up

every word, or even the important ones, but often he figures out what

I'm

saying from very few clues.

Our kids are amazing when it comes to coping.

All that being said, little ones are notoriously difficult to test. Some

parents play games like dropping a ball into a bucket when a tone is

played,

imitating the testing situation. Some little ones get enthusiastic and

just

start dropping blocks without waiting for sounds. But with practice,

they can

learn how to booth test.

We never went through that, as I said, Ian was too old, but I know other

parents here can give you pointers on things to try in order to get the

best and

most reliable results.

Best -- Jill

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In a message dated 9/20/2006 5:26:15 P.M. Eastern Standard Time,

wendymattinglycarroll@... writes:

My mother-in-law still thinks she will " grow out of it " . I wish

it were true...

My mother tried that line as well for a while. And my automatic response

became: " right after he outgrows being male. "

Best -- Jill

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In a message dated 9/20/2006 5:26:15 P.M. Eastern Standard Time,

wendymattinglycarroll@... writes:

My mother-in-law still thinks she will " grow out of it " . I wish

it were true...

My mother tried that line as well for a while. And my automatic response

became: " right after he outgrows being male. "

Best -- Jill

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Welcome!

When JD's loss was first diagnosed, I too thought hearing would be an all or

nothing deal. An easy way to think of it is this, think of hearing as the

notes/keys on a piano. Just because you can play/hear some of the notes,

doesn't mean you can hear them all. In this analogy, speech/words are like

the tune being played. You may hear some parts of it, but you may not hear

enough of it to appreciate it. The notes most important in comprehending

speech would be the middle octaves. Think of what your favorite song would

sound like if you could only hear the high or low notes. A cookie bite loss

would be one where a bunch of keys in the middle don't work.

I've found that most of the time, if a child has a hearing loss, it's not

obvious. The parent usually just has a big question. My personal opinion is

that if a parent questions their child's hearing that alone is reason enough

to test. My son's hearing loss would have been caught a year earlier if it

would have been done that way - and I'm sure many of the other parents here

could tell you the same.

>>A great book to help you understand how the hearing loss works and how it

>>affects brain development is Carol Flexer's " Facilitating Hearing and

>>Listening in Young Children. " You can probably get it via interlibrary

>>loan at your library. <<

Here is a page with excerpts from the book:

http://www.listen-up.org/oral/flexer.htm

-Kay

Kay

kay@...

The Listen-Up Web

http://www.listen-up.org

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Welcome!

When JD's loss was first diagnosed, I too thought hearing would be an all or

nothing deal. An easy way to think of it is this, think of hearing as the

notes/keys on a piano. Just because you can play/hear some of the notes,

doesn't mean you can hear them all. In this analogy, speech/words are like

the tune being played. You may hear some parts of it, but you may not hear

enough of it to appreciate it. The notes most important in comprehending

speech would be the middle octaves. Think of what your favorite song would

sound like if you could only hear the high or low notes. A cookie bite loss

would be one where a bunch of keys in the middle don't work.

I've found that most of the time, if a child has a hearing loss, it's not

obvious. The parent usually just has a big question. My personal opinion is

that if a parent questions their child's hearing that alone is reason enough

to test. My son's hearing loss would have been caught a year earlier if it

would have been done that way - and I'm sure many of the other parents here

could tell you the same.

>>A great book to help you understand how the hearing loss works and how it

>>affects brain development is Carol Flexer's " Facilitating Hearing and

>>Listening in Young Children. " You can probably get it via interlibrary

>>loan at your library. <<

Here is a page with excerpts from the book:

http://www.listen-up.org/oral/flexer.htm

-Kay

Kay

kay@...

The Listen-Up Web

http://www.listen-up.org

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Share on other sites

Welcome!

When JD's loss was first diagnosed, I too thought hearing would be an all or

nothing deal. An easy way to think of it is this, think of hearing as the

notes/keys on a piano. Just because you can play/hear some of the notes,

doesn't mean you can hear them all. In this analogy, speech/words are like

the tune being played. You may hear some parts of it, but you may not hear

enough of it to appreciate it. The notes most important in comprehending

speech would be the middle octaves. Think of what your favorite song would

sound like if you could only hear the high or low notes. A cookie bite loss

would be one where a bunch of keys in the middle don't work.

I've found that most of the time, if a child has a hearing loss, it's not

obvious. The parent usually just has a big question. My personal opinion is

that if a parent questions their child's hearing that alone is reason enough

to test. My son's hearing loss would have been caught a year earlier if it

would have been done that way - and I'm sure many of the other parents here

could tell you the same.

>>A great book to help you understand how the hearing loss works and how it

>>affects brain development is Carol Flexer's " Facilitating Hearing and

>>Listening in Young Children. " You can probably get it via interlibrary

>>loan at your library. <<

Here is a page with excerpts from the book:

http://www.listen-up.org/oral/flexer.htm

-Kay

Kay

kay@...

The Listen-Up Web

http://www.listen-up.org

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