Re: consult for keto tomorrow/DIANE

[Guest guest]

matthew is nearly 10 now (his birthday is next week!!!) and he has

been on the diet for just over 2 years now. The diet has been the

only thing that has been successful for - he is med free now

and his life has been so much better since on the diet. His seizures

saw an over 85% reduction.

had very severe epilepsy before the diet and has suffered

brain damage as a result of the epilepsy, so he has the mind of about

a 15 month old baby (only without as much speech - that is getting

better with the diet though - albeit slowly!).

I would definitely recommend giving the diet a try - you have nothing

to lose and everything to possibly gain.

Good luck.

Emma - Mum to .

> > > Have to chime in here. Unhealthy? Hmmm. My keto kid eats

veggies

> > with every meal (my other kids eat mac and cheese and the

occasional

> > salad), my keto kid takes vitamins and supplements every day (my

> > other kids take them when they/I remember) My keto kid eats

organic

> > whole foods (my other kids eat pretty much whatever they are

hungry

> > for and this does include organic foods etc when I can get some of

> > the stuff into them )

> > >

> > > Now, I dont mean to say that my other kids fend for themselves

or

> > eat junk all the time. But before the keto diet hit our household

3

> > yrs ago, I didnt know as much about nutrition as I know now. My

kids

> > ate from the food groups, and had juice and the occasional snack

etc.

> > but some foods are not very nutritionally dense (like iceberg

> > lettuce) it is a good food, but not really giving you much

nutrition

> > wise when you eat it ya know?

> > >

> > > The ketogenic diet is as healthy as you want it to be. If you

want

> > to calculate 'snack' meals all the time, then the diet wont be

very

> > healthy, but if on the other hand, you want to calculate as many

good

> > foods in as you can, then the sky is pretty much the limit on what

> > you can come up with for your child.

> > >

> > > There are some awesome recipes at the keto recipe site,

nutritious

> > and snack ones as well.

> > >

> > > Whether or not you decide to try the diet, please do not base

your

> > decision on what you percieve to be unhealthy. I am sure there are

> > many parents here who would challenge that. My son has been on

the

> > diet for 3 years and he is as healthy as a horse (well, except for

> > his seizures, but those are again under control for now)

> > >

> > > Good luck with whatever you decide.

> > >

> > > Jenn

> > >

> > > P.S. Do not mean to offend anyone with this email, or invoke my

> > perceptions on anyone. Everyone has their own views on the diet

and

> > this is just mine. I do feel quite strongly that the diet is as

> > healthy as the meals that are calculated.

> > >

> > > Re: consult for keto tomorrow

> > >

> > >

> > > I am so worried to try it because it is sooooo unhealthy!

> > > Diane in Boston

> > >

> > >

[Guest guest]

Emma,

Thanks for giving me your input. It helps me with my decision. n is

2.7 years old and was a 26 week preemie who suffered a IVH (stroke). He

started with infantile spasms at 8 months of age and was treated with ACTH

which resolved it until 12 months old. He has been having seizures off and

on since but since March 2004 he started having them every 7 to 10 days and

in the last 3 weeks every 3 to 6 days. We've tried topamax triliptal keppra

and now zonagram. Currently he takes triliptal and zonagram. He is very

delayed just starting to crawl and be vocal. He has CVI and isn't a great

eater. I have to say though he has made pretty good gains with in the last

4 months. I just get so worried because he can't afford to lose anymore

ground developmentally. I so much want him to continue in the right

direction. Again, thanks for your input.

Diane

Re: consult for keto tomorrow

> > > >

> > > >

> > > > I am so worried to try it because it is sooooo unhealthy!

> > > > Diane in Boston

> > > >

> > > >