Re: New here- 1 year old daughter with positional plagio

[Guest guest]

Hi and welcome to the group!

A premade helmet? It wasn't made from a cast or scan of her head?

Where are you going for treatment?

Natasha

Atlanta

>

> Hi all! A friend sent the link to this group, thought I'd see what

> kind of experiences you've had. My daughter just turned 1 in mid

> March. Since about 4 months we've been asking the pediatrician

about

> her head shape and consistently were told " it'll straighten out " .

It

> didn't, infact even with great diligence in repositioning, it

seemed

> to get worse. She's a face sleeper and sucks the same two fingers,

> so one side of her forehead is very flat, the other protrudes and

> the reverse is seen on the back of her head.

> At just before 1 I took her to see the other ped in the office for

> an unrelated issue, the Dr. commented quite strongly about her

head

> shape. The next week at her 1 year well-baby, I wanted answers;

was

> it ever going to round out on it's own, what are our options, etc.

> She prescribed the molding helmet and made the comment- " I've done

> worse to babies " .

> So, our insurance does not cover treatment for positional

> plagiocephaly- fortunately we can afford it, and I didn't have to

> wait for action from the insurance for referrals and approvals and

> the like. Anyway, we got a premade helmet fit to her, and have

been

> back twice in the last two weeks for fit issues. The orthotics

place

> and staff are very helpful and patient.

> So, anyone else start this late? What has been your experience?

how

> long have they been in it?

> TIA- Elaine

>

[Guest guest]

Hello and welcome to the group.

I have the same questions as Natasha had. Where are you going for

treatment, and what type of band is it? Did they do a scan or

cast. At your daughter's age you def need to have her in an active

band. You should still see good results at her age. We have many

kids here that weren't banded till later.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

>

> Hi all! A friend sent the link to this group, thought I'd see what

> kind of experiences you've had. My daughter just turned 1 in mid

> March. Since about 4 months we've been asking the pediatrician

about

> her head shape and consistently were told " it'll straighten out " .

It

> didn't, infact even with great diligence in repositioning, it

seemed

> to get worse. She's a face sleeper and sucks the same two fingers,

> so one side of her forehead is very flat, the other protrudes and

> the reverse is seen on the back of her head.

> At just before 1 I took her to see the other ped in the office for

> an unrelated issue, the Dr. commented quite strongly about her

head

> shape. The next week at her 1 year well-baby, I wanted answers;

was

> it ever going to round out on it's own, what are our options, etc.

> She prescribed the molding helmet and made the comment- " I've done

> worse to babies " .

> So, our insurance does not cover treatment for positional

> plagiocephaly- fortunately we can afford it, and I didn't have to

> wait for action from the insurance for referrals and approvals and

> the like. Anyway, we got a premade helmet fit to her, and have

been

> back twice in the last two weeks for fit issues. The orthotics

place

> and staff are very helpful and patient.

> So, anyone else start this late? What has been your experience?

how

> long have they been in it?

> TIA- Elaine

>

[Guest guest]

My son had his doc band from 14 to 18 months. We saw good

correction although there is still some plagio. If you are having

fit issues you need to go somewhere else quickly. At this age you

don't have alot of time so you need to get her into a good fitting

active band as soon as possible. We didn't start treatment until 8

months for our son because of the pediatrician not refering us

sooner. At 8 months we had 2 bad fitting helmets. By the time that

fiasco was over his head was worse shaped and we lost so much

correciton time that we can't get back.

Haylee

mom to andre doc band grad

>

> Hi all! A friend sent the link to this group, thought I'd see what

> kind of experiences you've had. My daughter just turned 1 in mid

> March. Since about 4 months we've been asking the pediatrician

about

> her head shape and consistently were told " it'll straighten out " .

It

> didn't, infact even with great diligence in repositioning, it

seemed

> to get worse. She's a face sleeper and sucks the same two fingers,

> so one side of her forehead is very flat, the other protrudes and

> the reverse is seen on the back of her head.

> At just before 1 I took her to see the other ped in the office for

> an unrelated issue, the Dr. commented quite strongly about her

head

> shape. The next week at her 1 year well-baby, I wanted answers;

was

> it ever going to round out on it's own, what are our options, etc.

> She prescribed the molding helmet and made the comment- " I've done

> worse to babies " .

> So, our insurance does not cover treatment for positional

> plagiocephaly- fortunately we can afford it, and I didn't have to

> wait for action from the insurance for referrals and approvals and

> the like. Anyway, we got a premade helmet fit to her, and have

been

> back twice in the last two weeks for fit issues. The orthotics

place

> and staff are very helpful and patient.

> So, anyone else start this late? What has been your experience?

how

> long have they been in it?

> TIA- Elaine

>

[Guest guest]

Hi Elaine,

Welcome to the group. If you're getting a premade helmet, that means

it's a passive helmet. Which means your baby is going to get minimal

correction. Passive helmets rely totally on growth. The helmet sits on

the baby's head and eventually the baby's head grows into the shape of

the helmet, round. Once a baby hits 6 months old head growth slows

down significantly! Your baby needs to be put into an active band,

such as the DOCband, STARband or the Hangerband. Where are you located

>

> Hi all! A friend sent the link to this group, thought I'd see what

> kind of experiences you've had. My daughter just turned 1 in mid

> March. Since about 4 months we've been asking the pediatrician about

> her head shape and consistently were told " it'll straighten out " . It

> didn't, infact even with great diligence in repositioning, it seemed

> to get worse. She's a face sleeper and sucks the same two fingers,

> so one side of her forehead is very flat, the other protrudes and

> the reverse is seen on the back of her head.

> At just before 1 I took her to see the other ped in the office for

> an unrelated issue, the Dr. commented quite strongly about her head

> shape. The next week at her 1 year well-baby, I wanted answers; was

> it ever going to round out on it's own, what are our options, etc.

> She prescribed the molding helmet and made the comment- " I've done

> worse to babies " .

> So, our insurance does not cover treatment for positional

> plagiocephaly- fortunately we can afford it, and I didn't have to

> wait for action from the insurance for referrals and approvals and

> the like. Anyway, we got a premade helmet fit to her, and have been

> back twice in the last two weeks for fit issues. The orthotics place

> and staff are very helpful and patient.

> So, anyone else start this late? What has been your experience? how

> long have they been in it?

> TIA- Elaine

>

[Guest guest]

-

We're up in the Upper Peninsula of Michigan. We went to Petoskey for

the orthodics appointments. Why would they put her into something

that's not going to work? The orthodist that's working with her

seems to think we're going to see some correction...should I be

throwing a fit rather then expecting results?

Thanks for the info.

-Elaine

> >

> > Hi all! A friend sent the link to this group, thought I'd see

what

> > kind of experiences you've had. My daughter just turned 1 in mid

> > March. Since about 4 months we've been asking the pediatrician

about

> > her head shape and consistently were told " it'll straighten

out " . It

> > didn't, infact even with great diligence in repositioning, it

seemed

> > to get worse. She's a face sleeper and sucks the same two

fingers,

> > so one side of her forehead is very flat, the other protrudes

and

> > the reverse is seen on the back of her head.

> > At just before 1 I took her to see the other ped in the office

for

> > an unrelated issue, the Dr. commented quite strongly about her

head

> > shape. The next week at her 1 year well-baby, I wanted answers;

was

> > it ever going to round out on it's own, what are our options,

etc.

> > She prescribed the molding helmet and made the comment- " I've

done

> > worse to babies " .

> > So, our insurance does not cover treatment for positional

> > plagiocephaly- fortunately we can afford it, and I didn't have

to

> > wait for action from the insurance for referrals and approvals

and

> > the like. Anyway, we got a premade helmet fit to her, and have

been

> > back twice in the last two weeks for fit issues. The orthotics

place

> > and staff are very helpful and patient.

> > So, anyone else start this late? What has been your experience?

how

> > long have they been in it?

> > TIA- Elaine

> >

>

[Guest guest]

Hi Elaine,

Was your baby's head casted or scanned and then the helmet was made?

If your baby has a helmet that's just off the shelf, it's a passive

helmet. Do you know the type of band your baby will be getting?

There are active bands and passive bands. Do you know which one your

baby will be getting?

> > >

> > > Hi all! A friend sent the link to this group, thought I'd see

> what

> > > kind of experiences you've had. My daughter just turned 1 in mid

> > > March. Since about 4 months we've been asking the pediatrician

> about

> > > her head shape and consistently were told " it'll straighten

> out " . It

> > > didn't, infact even with great diligence in repositioning, it

> seemed

> > > to get worse. She's a face sleeper and sucks the same two

> fingers,

> > > so one side of her forehead is very flat, the other protrudes

> and

> > > the reverse is seen on the back of her head.

> > > At just before 1 I took her to see the other ped in the office

> for

> > > an unrelated issue, the Dr. commented quite strongly about her

> head

> > > shape. The next week at her 1 year well-baby, I wanted answers;

> was

> > > it ever going to round out on it's own, what are our options,

> etc.

> > > She prescribed the molding helmet and made the comment- " I've

> done

> > > worse to babies " .

> > > So, our insurance does not cover treatment for positional

> > > plagiocephaly- fortunately we can afford it, and I didn't have

> to

> > > wait for action from the insurance for referrals and approvals

> and

> > > the like. Anyway, we got a premade helmet fit to her, and have

> been

> > > back twice in the last two weeks for fit issues. The orthotics

> place

> > > and staff are very helpful and patient.

> > > So, anyone else start this late? What has been your experience?

> how

> > > long have they been in it?

> > > TIA- Elaine

> > >

> >

>

[Guest guest]

She's in a Danmar and has been for about 3 weeks. I appreciate your

input but at this point I'm not changing the helmet. We are so far

along and she's not getting any younger- so to speak. I guess at

this point I have to rely on the expertise of my pediatrician and

orthodist. I'll remain dilligent about making sure fit isn't an

issue and continue making sure we hit the magic 23 hours each day.

-Elaine

> > > >

> > > > Hi all! A friend sent the link to this group, thought I'd

see

> > what

> > > > kind of experiences you've had. My daughter just turned 1 in

mid

> > > > March. Since about 4 months we've been asking the

pediatrician

> > about

> > > > her head shape and consistently were told " it'll straighten

> > out " . It

> > > > didn't, infact even with great diligence in repositioning,

it

> > seemed

> > > > to get worse. She's a face sleeper and sucks the same two

> > fingers,

> > > > so one side of her forehead is very flat, the other

protrudes

> > and

> > > > the reverse is seen on the back of her head.

> > > > At just before 1 I took her to see the other ped in the

office

> > for

> > > > an unrelated issue, the Dr. commented quite strongly about

her

> > head

> > > > shape. The next week at her 1 year well-baby, I wanted

answers;

> > was

> > > > it ever going to round out on it's own, what are our

options,

> > etc.

> > > > She prescribed the molding helmet and made the comment-

" I've

> > done

> > > > worse to babies " .

> > > > So, our insurance does not cover treatment for positional

> > > > plagiocephaly- fortunately we can afford it, and I didn't

have

> > to

> > > > wait for action from the insurance for referrals and

approvals

> > and

> > > > the like. Anyway, we got a premade helmet fit to her, and

have

> > been

> > > > back twice in the last two weeks for fit issues. The

orthotics

> > place

> > > > and staff are very helpful and patient.

> > > > So, anyone else start this late? What has been your

experience?

> > how

> > > > long have they been in it?

> > > > TIA- Elaine

> > > >

> > >

> >

>

[Guest guest]

Not all orthos know there are more active options. The closest CT location to you is Chicago. however, there are probably some Hanger and STARband providers a little bit closer.

Michigan Starband* Marquette General Hospital, 420 W. Magnetic, Marquette, MI 49855 906-225-4950 www.mgh.org/, www.orthomerica.com

look in the database herePlagiocephaly/database?query=michigan & method=reportRows & tbl=8

na, DOC Grad X2 Feb 04, Tort ResolvedKiersten, DOC Grad 4/4/06, Tort Resovledwww.thefilyaws.com/plagio/plagio.html> > >> > > Hi all! A friend sent the link to this group, thought I'd see > what > > > kind of experiences you've had. My daughter just turned 1 in mid > > > March. Since about 4 months we've been asking the pediatrician > about > > > her head shape and consistently were told "it'll straighten > out". It > > > didn't, infact even with great diligence in repositioning, it > seemed > > > to get worse. She's a face sleeper and sucks the same two > fingers, > > > so one side of her forehead is very flat, the other protrudes > and > > > the reverse is seen on the back of her head. > > > At just before 1 I took her to see the other ped in the office > for > > > an unrelated issue, the Dr. commented quite strongly about her > head > > > shape. The next week at her 1 year well-baby, I wanted answers; > was > > > it ever going to round out on it's own, what are our options, > etc. > > > She prescribed the molding helmet and made the comment- "I've > done > > > worse to babies". > > > So, our insurance does not cover treatment for positional > > > plagiocephaly- fortunately we can afford it, and I didn't have > to > > > wait for action from the insurance for referrals and approvals > and > > > the like. Anyway, we got a premade helmet fit to her, and have > been > > > back twice in the last two weeks for fit issues. The orthotics > place > > > and staff are very helpful and patient. > > > So, anyone else start this late? What has been your experience? > how > > > long have they been in it?> > > TIA- Elaine> > >> >>

[Guest guest]

Okay, I looked at the star band and I'm not seeing a big difference

in function between the star band and the danmar. What am I missing?

Ours is a bi-valve. It's adjustable and kept tight (I'm hoping I'm

explaining that the right way).

> > > >

> > > > Hi all! A friend sent the link to this group, thought I'd see

> > what

> > > > kind of experiences you've had. My daughter just turned 1 in

mid

> > > > March. Since about 4 months we've been asking the

pediatrician

> > about

> > > > her head shape and consistently were told " it'll straighten

> > out " . It

> > > > didn't, infact even with great diligence in repositioning, it

> > seemed

> > > > to get worse. She's a face sleeper and sucks the same two

> > fingers,

> > > > so one side of her forehead is very flat, the other protrudes

> > and

> > > > the reverse is seen on the back of her head.

> > > > At just before 1 I took her to see the other ped in the

office

> > for

> > > > an unrelated issue, the Dr. commented quite strongly about

her

> > head

> > > > shape. The next week at her 1 year well-baby, I wanted

answers;

> > was

> > > > it ever going to round out on it's own, what are our options,

> > etc.

> > > > She prescribed the molding helmet and made the comment- " I've

> > done

> > > > worse to babies " .

> > > > So, our insurance does not cover treatment for positional

> > > > plagiocephaly- fortunately we can afford it, and I didn't

have

> > to

> > > > wait for action from the insurance for referrals and

approvals

> > and

> > > > the like. Anyway, we got a premade helmet fit to her, and

have

> > been

> > > > back twice in the last two weeks for fit issues. The

orthotics

> > place

> > > > and staff are very helpful and patient.

> > > > So, anyone else start this late? What has been your

experience?

> > how

> > > > long have they been in it?

> > > > TIA- Elaine

> > > >

> > >

> >

>

[Guest guest]

Hi,

The difference is active bands are adjusted weekly or bi weekly. The

inside of the band is shaved away.

Whether or not a band is active or passive has nothing to do with it

having a bi-valve.

> > > > >

> > > > > Hi all! A friend sent the link to this group, thought I'd see

> > > what

> > > > > kind of experiences you've had. My daughter just turned 1 in

> mid

> > > > > March. Since about 4 months we've been asking the

> pediatrician

> > > about

> > > > > her head shape and consistently were told " it'll straighten

> > > out " . It

> > > > > didn't, infact even with great diligence in repositioning, it

> > > seemed

> > > > > to get worse. She's a face sleeper and sucks the same two

> > > fingers,

> > > > > so one side of her forehead is very flat, the other protrudes

> > > and

> > > > > the reverse is seen on the back of her head.

> > > > > At just before 1 I took her to see the other ped in the

> office

> > > for

> > > > > an unrelated issue, the Dr. commented quite strongly about

> her

> > > head

> > > > > shape. The next week at her 1 year well-baby, I wanted

> answers;

> > > was

> > > > > it ever going to round out on it's own, what are our options,

> > > etc.

> > > > > She prescribed the molding helmet and made the comment- " I've

> > > done

> > > > > worse to babies " .

> > > > > So, our insurance does not cover treatment for positional

> > > > > plagiocephaly- fortunately we can afford it, and I didn't

> have

> > > to

> > > > > wait for action from the insurance for referrals and

> approvals

> > > and

> > > > > the like. Anyway, we got a premade helmet fit to her, and

> have

> > > been

> > > > > back twice in the last two weeks for fit issues. The

> orthotics

> > > place

> > > > > and staff are very helpful and patient.

> > > > > So, anyone else start this late? What has been your

> experience?

> > > how

> > > > > long have they been in it?

> > > > > TIA- Elaine

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Elaine,

My son is getting the DOcBand on Friday. I heard the same thing from

my doctor about 's head. He is one of triplets and the way he was

positioned in utero, I am sure had something to do with the

positioning. I have tried Repo and it did not work. Keep us posted

and good look.

Jess

Mother to , and Noah (1 Year Old Triplets with plagio and

tort)

> > > > >

> > > > > >

> > > > > > Hi all! A friend sent the link to this group, thought I'd

see

> > > > what

> > > > > > kind of experiences you've had. My daughter just turned 1

in

> > mid

> > > > > > March. Since about 4 months we've been asking the

> > pediatrician

> > > > about

> > > > > > her head shape and consistently were told " it'll

straighten

> > > > out " . It

> > > > > > didn't, infact even with great diligence in

repositioning, it

> > > > seemed

> > > > > > to get worse. She's a face sleeper and sucks the same two

> > > > fingers,

> > > > > > so one side of her forehead is very flat, the other

protrudes

> > > > and

> > > > > > the reverse is seen on the back of her head.

> > > > > > At just before 1 I took her to see the other ped in the

> > office

> > > > for

> > > > > > an unrelated issue, the Dr. commented quite strongly

about

> > her

> > > > head

> > > > > > shape. The next week at her 1 year well-baby, I wanted

> > answers;

> > > > was

> > > > > > it ever going to round out on it's own, what are our

options,

> > > > etc.

> > > > > > She prescribed the molding helmet and made the comment-

" I've

> > > > done

> > > > > > worse to babies " .

> > > > > > So, our insurance does not cover treatment for positional

> > > > > > plagiocephaly- fortunately we can afford it, and I didn't

> > have

> > > > to

> > > > > > wait for action from the insurance for referrals and

> > approvals

> > > > and

> > > > > > the like. Anyway, we got a premade helmet fit to her, and

> > have

> > > > been

> > > > > > back twice in the last two weeks for fit issues. The

> > orthotics

> > > > place

> > > > > > and staff are very helpful and patient.

> > > > > > So, anyone else start this late? What has been your

> > experience?

> > > > how

> > > > > > long have they been in it?

> > > > > > TIA- Elaine

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Orthotists are doing things they shouldn't do every day. Ours had

our son in a band that left red marks all over his head to the point

that one spot was bleeding. He and the plastic surgeon wanted us to

continue using the band. When we stopped using it he was 10 months

old and his head had become a more assymetrical shape than it was in

the first place. When he was 14 months old we managed to get a

properly fitting band from another facility. He received great

correction from it. If all they can offer is a passive band they

may think they are doing you a favour. At the age of one you would

probably get better results from all your time and effort from an

active band.

Haylee

> > > > >

> > > > > Hi all! A friend sent the link to this group, thought I'd

> see

> > > what

> > > > > kind of experiences you've had. My daughter just turned 1

in

> mid

> > > > > March. Since about 4 months we've been asking the

> pediatrician

> > > about

> > > > > her head shape and consistently were told " it'll

straighten

> > > out " . It

> > > > > didn't, infact even with great diligence in repositioning,

> it

> > > seemed

> > > > > to get worse. She's a face sleeper and sucks the same two

> > > fingers,

> > > > > so one side of her forehead is very flat, the other

> protrudes

> > > and

> > > > > the reverse is seen on the back of her head.

> > > > > At just before 1 I took her to see the other ped in the

> office

> > > for

> > > > > an unrelated issue, the Dr. commented quite strongly about

> her

> > > head

> > > > > shape. The next week at her 1 year well-baby, I wanted

> answers;

> > > was

> > > > > it ever going to round out on it's own, what are our

> options,

> > > etc.

> > > > > She prescribed the molding helmet and made the comment-

> " I've

> > > done

> > > > > worse to babies " .

> > > > > So, our insurance does not cover treatment for positional

> > > > > plagiocephaly- fortunately we can afford it, and I didn't

> have

> > > to

> > > > > wait for action from the insurance for referrals and

> approvals

> > > and

> > > > > the like. Anyway, we got a premade helmet fit to her, and

> have

> > > been

> > > > > back twice in the last two weeks for fit issues. The

> orthotics

> > > place

> > > > > and staff are very helpful and patient.

> > > > > So, anyone else start this late? What has been your

> experience?

> > > how

> > > > > long have they been in it?

> > > > > TIA- Elaine

> > > > >

> > > >

> > >

> >

>

[Guest guest]

okay, I've heard what you all have had to say. Thanks for those who have answered my questions. We are continuing with the approach that we have begun and will be happy with the results. I wish we had started earlier but we didn't. I wish we were made of money so that I could hop on down to Chicago and get her in some fancy band- but we're not. We're a military family and our insurance doesn't cover any of this. We're doing the very best that we can. Thanks for the input and I wish you all luck. stripes6060 <taime@...> wrote: Hi,The difference is active bands are adjusted weekly or bi weekly. Theinside of the band is shaved away. Whether or not a band is active or passive has nothing to do with ithaving a bi-valve. > > > > >> > > > > Hi all! A friend sent the link to this group, thought I'd see> > > what> > > > > kind of experiences you've had. My daughter just turned 1 in > mid> > > > > March. Since about 4 months we've been asking the >

pediatrician> > > about> > > > > her head shape and consistently were told "it'll straighten> > > out". It> > > > > didn't, infact even with great diligence in repositioning, it> > > seemed> > > > > to get worse. She's a face sleeper and sucks the same two> > > fingers,> > > > > so one side of her forehead is very flat, the other protrudes> > > and> > > > > the reverse is seen on the back of her head.> > > > > At just before 1 I took her to see the other ped in the > office> > > for> > > > > an unrelated issue, the Dr. commented quite strongly about > her> > > head> > > > > shape. The next week at her 1 year well-baby, I wanted > answers;> > > was> > > > > it ever going to round out

on it's own, what are our options,> > > etc.> > > > > She prescribed the molding helmet and made the comment- "I've> > > done> > > > > worse to babies".> > > > > So, our insurance does not cover treatment for positional> > > > > plagiocephaly- fortunately we can afford it, and I didn't > have> > > to> > > > > wait for action from the insurance for referrals and > approvals> > > and> > > > > the like. Anyway, we got a premade helmet fit to her, and > have> > > been> > > > > back twice in the last two weeks for fit issues. The > orthotics> > > place> > > > > and staff are very helpful and patient.> > > > > So, anyone else start this late? What has been your > experience?> > >

how> > > > > long have they been in it?> > > > > TIA- Elaine> > > > >> > > >> > >> >>

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[Guest guest]

Hi. Sorry I haven't responded to you. Just read your last message

about being a military family and insurance not covering. We are a

Air Force family and tricare would not cover my twins either. I went

to the state but was turned down too. Not sure which branch your

family is in but the Air Force has Air Force Aid which wrote us a

grant check to cover our twins helmets. Please email me at

sunshinyday01@... if you want more information. I am pretty

sure all military branchs have some type of Aid you can go to. I know

for sure the Army does, not sure what they call it. Also talk to your

chain of command someone should know how to help. VA is usless tried

them. But American Legion and VFW may be able to help too. Please get

back to me if you want more info. Again sorry I did not get back to

you sooner about all of this. I wish you much luck with your

daughter. Oh ya my twin sons got there starbands at 1 year and have

made progress. Good luck and I wish you well.

Sunshine mother of and Vedder Conyer, 1 year old, Starbands

Beale AFB, CA

Proud Security Forces Wife

> > > > > >

> > > > > > Hi all! A friend sent the link to this group, thought I'd

see

> > > > what

> > > > > > kind of experiences you've had. My daughter just turned 1

in

> > mid

> > > > > > March. Since about 4 months we've been asking the

> > pediatrician

> > > > about

> > > > > > her head shape and consistently were told " it'll

straighten

> > > > out " . It

> > > > > > didn't, infact even with great diligence in

repositioning, it

> > > > seemed

> > > > > > to get worse. She's a face sleeper and sucks the same two

> > > > fingers,

> > > > > > so one side of her forehead is very flat, the other

protrudes

> > > > and

> > > > > > the reverse is seen on the back of her head.

> > > > > > At just before 1 I took her to see the other ped in the

> > office

> > > > for

> > > > > > an unrelated issue, the Dr. commented quite strongly

about

> > her

> > > > head

> > > > > > shape. The next week at her 1 year well-baby, I wanted

> > answers;

> > > > was

> > > > > > it ever going to round out on it's own, what are our

options,

> > > > etc.

> > > > > > She prescribed the molding helmet and made the comment-

" I've

> > > > done

> > > > > > worse to babies " .

> > > > > > So, our insurance does not cover treatment for positional

> > > > > > plagiocephaly- fortunately we can afford it, and I didn't

> > have

> > > > to

> > > > > > wait for action from the insurance for referrals and

> > approvals

> > > > and

> > > > > > the like. Anyway, we got a premade helmet fit to her, and

> > have

> > > > been

> > > > > > back twice in the last two weeks for fit issues. The

> > orthotics

> > > > place

> > > > > > and staff are very helpful and patient.

> > > > > > So, anyone else start this late? What has been your

> > experience?

> > > > how

> > > > > > long have they been in it?

> > > > > > TIA- Elaine

> > > > > >

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi Elaine,

My daughter has been wearing a doc-band since she was 11 months

old. She had torticollis since birth and developed plagio. It took

me a long time to finally get the help she needed. I just wanted to

let you know she's wearing a second band and is now close to 16

months old. With older babies sometimes it takes longer to see

correction. I hope your baby grows much faster than mine. That is

a big issue when they get closer to the age of one.

Good luck.

Zofia

>

> Hi all! A friend sent the link to this group, thought I'd see what

> kind of experiences you've had. My daughter just turned 1 in mid

> March. Since about 4 months we've been asking the pediatrician

about

> her head shape and consistently were told " it'll straighten out " .

It

> didn't, infact even with great diligence in repositioning, it

seemed

> to get worse. She's a face sleeper and sucks the same two fingers,

> so one side of her forehead is very flat, the other protrudes and

> the reverse is seen on the back of her head.

> At just before 1 I took her to see the other ped in the office for

> an unrelated issue, the Dr. commented quite strongly about her

head

> shape. The next week at her 1 year well-baby, I wanted answers;

was

> it ever going to round out on it's own, what are our options, etc.

> She prescribed the molding helmet and made the comment- " I've done

> worse to babies " .

> So, our insurance does not cover treatment for positional

> plagiocephaly- fortunately we can afford it, and I didn't have to

> wait for action from the insurance for referrals and approvals and

> the like. Anyway, we got a premade helmet fit to her, and have

been

> back twice in the last two weeks for fit issues. The orthotics

place

> and staff are very helpful and patient.

> So, anyone else start this late? What has been your experience?

how

> long have they been in it?

> TIA- Elaine

>

[Guest guest]

Hello Elaine

Do you have Tricare Prime? I know they do not cover. We were one

of the fortunate families that did get it approved due to a glitch

in the system so I've learned later on. We were stationed in

Germany when we had my daughter banded.

What branch is your husband? There is always a money pool

somewhere so I was told in Germany by her ped which is a LtCol at

that time. He said that you can go through the unit, or the Meddac

where you are to find out how to apply for this money. I would def

go around and see if you can do that. Atleast maybe get covered

what you guys started anyway. Have you seen any correction yet? I

hope the band works for you.

Where are you stationed? I'm sorry if I missed all this, but I just

started posting again. )

Sandy Willow's Mom (6-2-2003) (We are stationed at Ft )

Torticollis resolved (02-2004)

Cranio Germany Grad (02-2004)

www.geocities.com/samipa74/Willow_Lanette.html

www.palmerfamily.armedforcesfamilies.com

www.drmy.net/spalmer

> > > > > >

> > > > > > Hi all! A friend sent the link to this group, thought

I'd see

> > > > what

> > > > > > kind of experiences you've had. My daughter just turned

1 in

> > mid

> > > > > > March. Since about 4 months we've been asking the

> > pediatrician

> > > > about

> > > > > > her head shape and consistently were told " it'll

straighten

> > > > out " . It

> > > > > > didn't, infact even with great diligence in

repositioning, it

> > > > seemed

> > > > > > to get worse. She's a face sleeper and sucks the same two

> > > > fingers,

> > > > > > so one side of her forehead is very flat, the other

protrudes

> > > > and

> > > > > > the reverse is seen on the back of her head.

> > > > > > At just before 1 I took her to see the other ped in the

> > office

> > > > for

> > > > > > an unrelated issue, the Dr. commented quite strongly

about

> > her

> > > > head

> > > > > > shape. The next week at her 1 year well-baby, I wanted

> > answers;

> > > > was

> > > > > > it ever going to round out on it's own, what are our

options,

> > > > etc.

> > > > > > She prescribed the molding helmet and made the comment-

" I've

> > > > done

> > > > > > worse to babies " .

> > > > > > So, our insurance does not cover treatment for positional

> > > > > > plagiocephaly- fortunately we can afford it, and I

didn't

> > have

> > > > to

> > > > > > wait for action from the insurance for referrals and

> > approvals

> > > > and

> > > > > > the like. Anyway, we got a premade helmet fit to her,

and

> > have

> > > > been

> > > > > > back twice in the last two weeks for fit issues. The

> > orthotics

> > > > place

> > > > > > and staff are very helpful and patient.

> > > > > > So, anyone else start this late? What has been your

> > experience?

> > > > how

> > > > > > long have they been in it?

> > > > > > TIA- Elaine

> > > > > >

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi Elaine, My son was banded at about 1 year with a local helmet, which is not one of the "official" active helmets and we saw a decent, in my opinion correction in 10 weeks that he has worn it. The helmet that we used had a slot on its side which had to be readjusted a few times per day. I must admit though that although my son's head did round out, the helmet that we used didn't really correct the forehead bossing. We are goign for a consult to CT on Monday to hear their opinion on Mark's head. We just need to now that we exausted all reasonable options before we call it quits. Good Luck!!! ValElaine Placido <mommaplacido@...> wrote: okay, I've heard what you all have had to say. Thanks for those who have answered my questions. We are continuing

with the approach that we have begun and will be happy with the results. I wish we had started earlier but we didn't. I wish we were made of money so that I could hop on down to Chicago and get her in some fancy band- but we're not. We're a military family and our insurance doesn't cover any of this. We're doing the very best that we can. Thanks for the input and I wish you all luck. stripes6060 <taime@...> wrote: Hi,The difference is active bands are adjusted weekly or bi weekly. Theinside of the band is shaved away. Whether or not a band is active or passive has nothing to do with ithaving a bi-valve. > > > > >> > > > > Hi all! A friend sent the link to this group, thought I'd see> > > what> > > > > kind of experiences you've had. My daughter just turned 1 in > mid> > > > > March. Since about 4 months we've been asking the > pediatrician> > > about> > > > > her head shape and consistently were told "it'll straighten> > > out". It>

> > > > didn't, infact even with great diligence in repositioning, it> > > seemed> > > > > to get worse. She's a face sleeper and sucks the same two> > > fingers,> > > > > so one side of her forehead is very flat, the other protrudes> > > and> > > > > the reverse is seen on the back of her head.> > > > > At just before 1 I took her to see the other ped in the > office> > > for> > > > > an unrelated issue, the Dr. commented quite strongly about > her> > > head> > > > > shape. The next week at her 1 year well-baby, I wanted > answers;> > > was> > > > > it ever going to round out on it's own, what are our options,> > > etc.> > > > > She prescribed the molding helmet and made the comment- "I've>

> > done> > > > > worse to babies".> > > > > So, our insurance does not cover treatment for positional> > > > > plagiocephaly- fortunately we can afford it, and I didn't > have> > > to> > > > > wait for action from the insurance for referrals and > approvals> > > and> > > > > the like. Anyway, we got a premade helmet fit to her, and > have> > > been> > > > > back twice in the last two weeks for fit issues. The > orthotics> > > place> > > > > and staff are very helpful and patient.> > > > > So, anyone else start this late? What has been your > experience?> > > how> > > > > long have they been in it?> > > > > TIA- Elaine> > > > >> > > >> >

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