which med to drop first?

[Guest guest]

Stella who is 5, is taking lamictal, diazepam, and diamox, she's been

on the diet now for 2 months, we've tweeked it and tweeked it, the last

being a 50 cal drop to 1225 day with protein at 21g/day. Other than

dropping her cals and not using a food exchange list, I calculate each

food seperately, and adding MCT oil (also using flax and coconut at

times too) what else is there other than to drop some meds right?

Since starting the diet she had gained 4lbs, thinking that might be the

culprit we've drop from 1325 to 1225, yet to see any improvement.

We have a doc apt next friday and I want to go in there prepared, I

really want to start lowering her meds and seeing if the diet improves

on it's own. I think because of her tendency to have status seizures

her doc might be reluctant to lower them since she is still having

seizures. (usually every other day or two)

This am, she's had 4 tonic clonics all in her sleep started at 6:30am

and it's been about every 45 mins or when she drops off into sleep

again. She's back to being non verbal, just moaning, her body can't

hold itself up and she is very shaky, (just about to check her blood

sugar level).

With every change that is made her seizures seem to be more persistant

and more frequent, I know the fine tuning process can take a long time,

but it's so frustrating and sad watching her fall back into the old

pattern of non stop seizures. If she continues today I " ll have to give

her the diastat and that's more valium. AAAAHHHH

So my question is for those far more experience than myself, what would

you do next?

amanda