Re: Could This Be the Trileptal??

[Guest guest]

Hi

Claire only has 225mg Trileptal at night and it stopped the seizures she

was having during sleep. When we gave her the same dose during the daytime

she had head nods all day long!

Dosing just at night has worked for Claire and she is now 11 weeks seizure

free and making great strides in development. She is now going to bed

later and rising earlier than she was before Trileptal but I put that down

to her not needing so much sleep, since what she is getting now is restful

sleep. Before Trileptal she was having gen seizures all night long!

Good luck

Jill

At 07:41 AM 19/08/2004, you wrote:

>Hello all. As I wrote a while back, because of Langan's dangerous

>acidosis levels, we have reluctantly agreed to start her on

>trileptal and slowly wean keto. Well, no surprise that we are now

>in a quandry!!

>

>For the first 4 days of trileptal, I worried that Langan wasn't

>napping at all and wasn't going to sleep until 10pm each night. Days

>5 and 6, she was taking long naps in the day and seemed too sleepy.

>Night 6 (last night) she was up ALL NIGHT playing. And then today

>she has been super sleepy and cranky. Could it be the trileptal

>doing this to her sleep schedule? It is just crazy. And I am having

>a tough time with the sleep deprivation- worse than usual b/c she

>won't just " play " at night alone- she demands company and it has to

>be mommy. = 0

>

>I also checked her blood ketones this evening, during her beauty

>sleep, and her ketones are off the charts. They shouldn't be that

>high on this lower keto ratio and haven't been that high since we

>lowered, that I have found. Could the trileptal be interacting with

>the diet?

>

>The neuro and I kept missing each other today b/c I was stuck in

>court, but it sounds like they are leaving the next step up to me.

>Any advice? No seizures in 10 days and developmentally, until this

>sleep thing became a problem, Langan has made big advances. So it

>is tempting to leave well enough alone. At the same time, this

>strange sleep thing and Langan's lethargy during the day and these

>high ketones have me concerned. Ketones naturally drop overnight,

>right, so I am wondering if that's why the energy bursts

>overnight??? No one told me I would need a neuro degree and a bio-

>chem degree to raise a child. But since there are so many super keto

>experts here, I thought I would see if I could get some help from

>you guys!

>

>Thanks!

>

>, mom to Langan, 2 yrs old and keto kid since 11/03

>

>

>

>

>

>

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[Guest guest]

I am not sure about Trileptal but I know that when was on

depakote it made him extremely ketotic. So much that we had to be on the 2:1

ratio

and he still had high ketones.

As far as the sleep, I would look up the side effects of Trileptal and see

if it is a possible side effect.

Good luck