Re: Sad Day- Langan coming off keto -

[Guest guest]

Hi ,

I'm just catching up here - I'm really sorry to hear about this - but

in some respects it must feel like a relief that the decision to

continue was taken out of your hands...

As I always tell myself - at least we are giving (and you gave) this

diet 110% - we will

never have to look back and say " if only we had tried the keto diet -

maybe it would have worked... "

I really hope you find the magic bullet for Langan- and I'm so glad

your sticking around - I have always enjoyed your posts and

appreciated your responses.

Hugs to Langan

> ,

>

> Thank you so much for the kind words and advice. This is really

sad

> but we are also hoping it is a new beginning. As the acidosis is

> resolving (or appears to be, knock on wood), we are seeing our

happy

> little girl again. She is giggling and full of energy, which we

> haven't seen in so long. Her grandfather actually got me in the

gut

> when he said, after we told him the decision, that " maybe we'll see

> her smile now. " That really hit hard. She certainly smiles on

> occasion but since this apparent mix of acidosis and keto, they

have

> been less frequent than before. I thought she was just having

> trouble adjusting to keto, and so I am SOOOO thankful that our

> wonderful keto dietician and neuro saw what was happening and did

the

> testing and here we are.

>

> As for the " cocktail " , I totally agree. I know there have been

> studies published recently about the AEDs being less effective when

> given together. I am pretty sure our neuro agrees, but I will not

> allow that to happen to Langan. She was on 2 meds twice- lamictal

> and keppra, and I took her off the keppra and the seizures stayed

the

> same, and lamictal and zonegran, and I took her off the zonegran

> after a wwek b/c she was so zoned out. I would rather live with

the

> occasional seizure than dope her up. On that we TOTALLY agree!

>

> Thanks again for everything! I'll be checking in to see how

> Francesca is faring. I hope all is well with you!

>

>

>