Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 , I don't think that seizures can affect ketones. It is more likely that the low ketones caused the seizure. Bill michelle paulson wrote: > Hi - > I check blood ketones. His ketones are consistently > high at bedtime and he is now waking w/mod. ketones > " MOST " days. Granted, I only spot check. Mornings > following seizures ketones are down and glucose is up > but figured they were lower as a natural response to > the seizure. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hey there, - Yes, for us - ketones are down and glucose is up every time I have checked following a seizure (I don't always check). Even when had myoclonic jerks - glucose increased quite a bit and ketones went down. So I know that to be true for Coop. I raised 's ratio from 3:1 to 3.5:1 very close to one month ago. The last time he had a seizure was about 1.5 wks. ago (early am). About 4-5 days ago, I noticed his morning ketones jumped from 1.4 upon awakening (or about) to 2.7 where they have consistently stayed this past wk. It seems his metabolism has steadied as a result of raising the ratio. I'm praying that the rise in early morning ketones will be enough to " ward off " those nasties early morning. IF he has a seizure in the next week - then I'm going to either add a " snack " or raise his ratio at bedtime. I'll check in before I make the change but hopefully I won't have to. When you get a chance - how's doing w/the wean? Did he get over his cold virus OK?? --- & Hill rich.sue.hill@...> wrote: > Yes, lower than optimum ketones can cause the > seizure, but also - the act of having a seizure can > trigger a glucose stress response. Higher glucose > (usually) = lower ketones. Testing either blood > level just after a seizure is therefore not v > accurate, well it never was here anyways... > - the one move that definitely made a > difference with 's waking ketones was changing > his spacing to yes, 5 meals per day, instead of 4, > and one of those meals just before bed is not the > snack it used to be, it is now really what you would > call a full meal - I assumed this could result in > higher glucose readings and therefore lower ketones > on waking, but the opposite happened with him. > His spacing (though it may not apply to as > they are obviously diff ages with different things > going on in their day..with much larger calories > here) is breakfast (400 cals) as soon as he wakes at > 8 am, a snack (75 cals) at 10.30, lunch at 12.30 pm > (400 cals) , I guess you would call it dinner at > 4.30 pm, (375 cals) and 'supper' (300 cals) at 7.30 > pm, bed at 7.45 pm. That last meal before bed last > yr (and the yr before) used to be a 100 cal snack, > but for it was obviously not enough to carry > him though till the early hrs of the morn, he was > prob using glucose from muscle etc to carry him > thru, which is why his ketones were so much lower on > waking. That's the theory anyways > > > ----- Original Message ----- > From: Bill Barber > > , > > I don't think that seizures can affect ketones. > It is more likely that > the low ketones caused the seizure. > > Bill > > michelle paulson wrote: > > Hi - > > I check blood ketones. His ketones are > consistently > > high at bedtime and he is now waking w/mod. > ketones > > " MOST " days. Granted, I only spot check. > Mornings > > following seizures ketones are down and > glucose is up > > but figured they were lower as a natural > response to > > the seizure. > > > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hopefully you are right, and having those waking ketones increase and stabilise like that may finally be your answer. That is a similar change to 's morn ketones, he used to be down around the 1.5-1.7 mark last yr too, now he is 2.5 - 3.0 on waking. In our case I think it was the meal spacing change responsible, but whatever the reason there, I hope 's early am seizures have disappeared with the low ketones just as 's did. His cold is all but gone, and the resp issues settled a few days ago, so we went ahead with the 3rd dep reduction today. Here we go again.... Tomorrow is the 12 mth anniversary of the beginning of his hosp admission for that revolting 2 mth stay, so seeing him heading off to school today in good spirits, looking forward to fireworks here tonight (Guy Fawkes day today - this time last yr wasn't even aware of the fireworks going off all around him, it was awful, I knew he was gonna be headed for hosp the next day - ick) is a pretty poignant feeling. Anyways, mebbe this yr he will finally be able to enjoy it all as much as and , now I have to try and work a sausage into his meal tonight so he can join in the BBQ ----- Original Message ----- From: michelle paulson Hey there, - Yes, for us - ketones are down and glucose is up every time I have checked following a seizure (I don't always check). Even when had myoclonic jerks - glucose increased quite a bit and ketones went down. So I know that to be true for Coop. I raised 's ratio from 3:1 to 3.5:1 very close to one month ago. The last time he had a seizure was about 1.5 wks. ago (early am). About 4-5 days ago, I noticed his morning ketones jumped from 1.4 upon awakening (or about) to 2.7 where they have consistently stayed this past wk. It seems his metabolism has steadied as a result of raising the ratio. I'm praying that the rise in early morning ketones will be enough to " ward off " those nasties early morning. IF he has a seizure in the next week - then I'm going to either add a " snack " or raise his ratio at bedtime. I'll check in before I make the change but hopefully I won't have to. When you get a chance - how's doing w/the wean? Did he get over his cold virus OK?? Quote Link to comment Share on other sites More sharing options...
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