Tana

[Guest guest]

Hi Tana and welcome.

Hair loss is something I have always experienced when flaring. It falls

out really bad and seeing it I can pretty much tell I'm having a flare

without any test. When I was first diagnosed 17 I hardly had any hair left

with two bare spots. They grow back when do better, but adjusting your hair

style to having lupus is also something most of us have to do.

I'm sorry you had the symptoms for a long time. Thank goodness you now

know what is happening to you and you can take steps to be better

Mojo

Thanks for the welcome

> Hi all,

>

> Thank you for all of your welcoming e-mails. My name is Tana and I've

> had lupus for what I believe is a long time. But I've only had a

> diagnosis for a couple of years. It's been very frustrating as I'm

> sure you all know. I've got three kids - ages 21, 16, and 14, a great

> husband and a black lab who is my partner in pain with cancer. I'm a

> technical writer and fortunately get to work from home most of the

> time.

>

> I usually don't talk to anyone but family about having lupus, but I

> think it would be great to hear from some of you who know what it's

> like. I've been trying to take better care of myself and I think it's

> helping.

>

> I have one question that seems kind of dumb, but I've been losing a

> lot of hair in the last six months or so. Fortunately I had thick

> hair to start off with. It's bad enough to feel lousy, but if it

> keeps up, I'll start to look awful too. I'm currently on plaquenil

> and medication for heart problems (Tambocor), so who knows if it's a

> side effect or from lupus. Any thoughts?

>

> Thanks,

> Tana

>

>

>

>

>

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