Re: Hey, I'm new! :)

[Guest guest]

HI ,

I am , HAYLEY's mom - she is 14 now and profoundly deaf.

I wanted you to know, since you're posting about the cause of the

hearing loss....sure there might have been a gene, but there is just

a great a chance that it was some fluke. I for one don't have much

of a clue as to why Hayley is deaf. And as time went on, and she

had issues that concerned me a bit more than the hearing loss, I

kind of didn't pursue it. She tested negative for Connexin 26, but

positive for CMV, but then so do most people.

I just wanted you not to think that you caused anything.

I am also one of the moderators of Listen Up.

Welcome to the group!

mary

-- In Listen-Up , " "

wrote:

>

> Hey Everyone, I'm new and I just wanted to introduce myself. My

name

> is , I'm 22 years old and a mother of two children, Hailey

who

> is 2 years old and Waylon " Fisher " who is almost 3 months old,

born

> July 26 of this year. I've been married for almost 3 years now

and am

> loving the family life! There is nothing greater than being a

mom!

>

> So, my son, Fisher, has a Moderate Hearing Loss that he was born

> with. My first child, Hailey, never had any health issues or

> anything, so I've sort of been thrown for a loop with all this

with

> Fisher. I guess it hasn't really sunk in yet. I don't know

anything

> about hearing loss, so I am trying to take in as much as I can.

As

> far as the cause of his hearing loss, it is unknown. I saw

something

> online about how a mother can carry the gene and only pass it on

to

> male offspring, so that would explain why Hailey didn't get it and

why

> Fisher did, but we really don't know why at this point. Anyways,

> Fisher failed both hearing tests in both ears at the hospital when

he

> was born. Then we were referred to an audiologist where they did

a

> diagnostic ABR test and found that he has '55dB threshold to click

> stimuli' (I have no clue what this means). All I know is what

they

> told me, Moderate Hearing Loss, and that he requires hearing

aids.

> So, now we are jumping through hoops trying to get another ABR

done

> which will be more detailed so she can tune the hearing aids just

> right and we are having a lovely time with medicaid on getting the

> aids, yay...

>

> I'm glad to be a part of your group and hope I can learn a lot

from

> everyone! Thanks!

>

[Guest guest]

Kudos to you, , for already jumping in and

trying to learn as much as you can! My son is 2 1/2

yrs. old, and he has been wearing hearing aids since

he was 3 months old. He has a mild-to-moderate loss

in both ears, and same thing - cause is unknown. It's

a lot to take in, but great you are already trying to

learn more. My son is doing wonderfully. Speaking

all the time. He has no issues as of now. I owe it

all to early detection, and early intervention where

he receives regular clinician visits. If you are not

enrolled in that, I would highly recommend it. Make

sure if you do get hearing aids that they have the

battery protection so he cannot chew into it. My son

was gnawing on his aids a lot, but then they grow out

of it and it's like putting on shoes, socks, etc.

phine

--- haileysmom52104@...> wrote:

> Hey Everyone, I'm new and I just wanted to introduce

> myself. My name

> is , I'm 22 years old and a mother of two

> children, Hailey who

> is 2 years old and Waylon " Fisher " who is almost 3

> months old, born

> July 26 of this year. I've been married for almost

> 3 years now and am

> loving the family life! There is nothing greater

> than being a mom!

>

> So, my son, Fisher, has a Moderate Hearing Loss that

> he was born

> with. My first child, Hailey, never had any health

> issues or

> anything, so I've sort of been thrown for a loop

> with all this with

> Fisher. I guess it hasn't really sunk in yet. I

> don't know anything

> about hearing loss, so I am trying to take in as

> much as I can. As

> far as the cause of his hearing loss, it is unknown.

> I saw something

> online about how a mother can carry the gene and

> only pass it on to

> male offspring, so that would explain why Hailey

> didn't get it and why

> Fisher did, but we really don't know why at this

> point. Anyways,

> Fisher failed both hearing tests in both ears at the

> hospital when he

> was born. Then we were referred to an audiologist

> where they did a

> diagnostic ABR test and found that he has '55dB

> threshold to click

> stimuli' (I have no clue what this means). All I

> know is what they

> told me, Moderate Hearing Loss, and that he requires

> hearing aids.

> So, now we are jumping through hoops trying to get

> another ABR done

> which will be more detailed so she can tune the

> hearing aids just

> right and we are having a lovely time with medicaid

> on getting the

> aids, yay...

>

> I'm glad to be a part of your group and hope I can

> learn a lot from

> everyone! Thanks!

>

>

>

__________________________________________________

[Guest guest]

Wow, I didn't even know that the younger babies may chew on the

hearing aids!! lol I will have to ask the audiologist about that

when we go next time. She said that he would probably get fitted for

aids a lot while he's young since his ears are growing. We picked

out the colors last time we went and I got baby blue for the part

behind the ear and clear for the inside part. I wanted to do funky

colors, but figured that we needed to adjust to them first, so I did

the clear. I really want him to have the aids now, I'm tired of

waiting lol. I'm weird, but I think he'll look cute with them. I

love it when people pay attention to my kids, because of course I

think they are gorgeous lol, so he'll just get extra attention and

I'll be eating it up!

With Moderate hearing loss, I'm thinking about learning sign

language. Wouldn't hurt right? I'm hoping that my mom's friend, who

has a hearing loss(don't know what level) can teach me. Anyone know

any good books on it?

>

> > Hey Everyone, I'm new and I just wanted to introduce

> > myself. My name

> > is , I'm 22 years old and a mother of two

> > children, Hailey who

> > is 2 years old and Waylon " Fisher " who is almost 3

> > months old, born

> > July 26 of this year. I've been married for almost

> > 3 years now and am

> > loving the family life! There is nothing greater

> > than being a mom!

> >

> > So, my son, Fisher, has a Moderate Hearing Loss that

> > he was born

> > with. My first child, Hailey, never had any health

> > issues or

> > anything, so I've sort of been thrown for a loop

> > with all this with

> > Fisher. I guess it hasn't really sunk in yet. I

> > don't know anything

> > about hearing loss, so I am trying to take in as

> > much as I can. As

> > far as the cause of his hearing loss, it is unknown.

> > I saw something

> > online about how a mother can carry the gene and

> > only pass it on to

> > male offspring, so that would explain why Hailey

> > didn't get it and why

> > Fisher did, but we really don't know why at this

> > point. Anyways,

> > Fisher failed both hearing tests in both ears at the

> > hospital when he

> > was born. Then we were referred to an audiologist

> > where they did a

> > diagnostic ABR test and found that he has '55dB

> > threshold to click

> > stimuli' (I have no clue what this means). All I

> > know is what they

> > told me, Moderate Hearing Loss, and that he requires

> > hearing aids.

> > So, now we are jumping through hoops trying to get

> > another ABR done

> > which will be more detailed so she can tune the

> > hearing aids just

> > right and we are having a lovely time with medicaid

> > on getting the

> > aids, yay...

> >

> > I'm glad to be a part of your group and hope I can

> > learn a lot from

> > everyone! Thanks!

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

>

>

> With Moderate hearing loss, I'm thinking about learning sign

> language. Wouldn't hurt right? I'm hoping that my mom's friend, who

> has a hearing loss(don't know what level) can teach me. Anyone know

> any good books on it?

>

>

Signing Time (now on PBS in some areas) is a good place to start.

www.signingtime.com is their website. They have videos and books. I

haven't seen the books, but the videos are entertaining for the kids.

They just came out with Baby signing time videos too. They teach

vocabulary. If you want your child to really learn American Sign

language, you'll have to learn grammer too. Many community colleges

offer ASL classes.

Take care,

Cheryl

[Guest guest]

Hello! My daughter n has a moderate/moderately severe loss and

started wearing hearing aids at 11 weeks, so I remember that time.

A few suggestions for protecting the hearing aids from baby eating them,

pulling them out, etc: Hanna Andersson pilot caps (they even have cute

ones now with little ears on top), toupee tape to keep them on the head

(we did not do well with this, but others did), connecting them to one

another with a string/embroidery floss/yarn and then threading the yarn

through the tag of baby's shirt/hat (at least they won't get lost when

they do come out since they are hooked to the clothing), and then there

are things to buy as well that can do similar jobs.

As far as sign language goes---I have heard people being surprised that

we decided to use sign language along with spoken English with our

daughter. I was even told that with hearing aids and her loss she just

would not need it. I have found reasons that it has been very helpful

for us, especially with situations that are noisy and with understanding

her beginning attempts at speaking so that we could model the word that

she was actually trying to say. For example, she would sign and say a

word and we would recognize the sign and know which word to repeat back

to her so she could hear the word again with the correct pronounciation.

For resources, I highly suggest Signing Time! (www.signingtime.com)

products. They are also on about 70 percent of local public television

stations, so you could check them out for free on tv, possibly. Also,

many libraries have copies of some of them to borrow. We also have a

ton of signing dictionaries and have checked out a few other video

series. If you lived near me, I would invite you to my signing

playgroup, but I can suggest you check and see if there is one in your

area.

Early Childhood Intervention is a good place to start looking for

resources in your area. However, they may or may not know much about

hearing loss. It all depends upon where you live, I guess. I would

definitely find out about having your son be evaluated for services.

He would probably qualify for speech therapy and possibly a specialist

for Deaf and Hard of Hearing children (we don't have those around here

so I don't know what their actual titles are.)

in Manassas, VA

mom to Lillian 4 hearing, n 22 months moderate/moderately severe

SNHL

www.pwcasl.org

> Wow, I didn't even know that the younger babies may chew on the

> hearing aids!! lol I will have to ask the audiologist about that

> when we go next time. She said that he would probably get fitted for

> aids a lot while he's young since his ears are growing. We picked

> out the colors last time we went and I got baby blue for the part

> behind the ear and clear for the inside part. I wanted to do funky

> colors, but figured that we needed to adjust to them first, so I did

> the clear. I really want him to have the aids now, I'm tired of

> waiting lol. I'm weird, but I think he'll look cute with them. I

> love it when people pay attention to my kids, because of course I

> think they are gorgeous lol, so he'll just get extra attention and

> I'll be eating it up!

>

> With Moderate hearing loss, I'm thinking about learning sign

> language. Wouldn't hurt right? I'm hoping that my mom's friend, who

> has a hearing loss(don't know what level) can teach me. Anyone know

> any good books on it?

>

[Guest guest]

I just saw this (missed the first time)...I don't think it would

hurt to learn sign language. I bet your daughter Hailey would love

it. Sign language could be a bridge to spoken language. I commend

you for starting early. You can look here:

http://www.buttepublications.com

for simple signs. Also if you type " ASL Browser " in a google

search, U of Michigan has a good website.

> >

>

> >

> > With Moderate hearing loss, I'm thinking about learning sign

> > language. Wouldn't hurt right? I'm hoping that my mom's

friend, who

> > has a hearing loss(don't know what level) can teach me. Anyone

know

> > any good books on it?

> >

> >

>

> Signing Time (now on PBS in some areas) is a good place to start.

> www.signingtime.com is their website. They have videos and

books. I

> haven't seen the books, but the videos are entertaining for the

kids.

> They just came out with Baby signing time videos too. They teach

> vocabulary. If you want your child to really learn American Sign

> language, you'll have to learn grammer too. Many community

colleges

> offer ASL classes.

>

> Take care,

> Cheryl

>

[Guest guest]

Hi

My son Andy, is 9 months and got his aids at 6 months. He has a mild

loss in his right and moderate to severe in his left. Be prepared

for your daughter to pull her aids out. Andy did for the first few

weeks. However, now he does great. Word of caution - we finally

figured out that the reason he kept pulling just the right hearing

aid out was because the settings were too loud, once they were

adjusted (after a 2nd sedated ABR), he hasn't touched them since.

UNTIL today when, in the car, he pulled the right one out,

disconnected the ear mold and was attempting to get the whole

hearing aid in his mouth when I got the car pulled over and rescued

him and the aid. The scarey part is that he could have choked if

either the mold or the aid had actually gotten in.

The toupee tape has worked great because it keeps the aids from

flopping around. We found it at a beauty supply store. We also used

the Hanna Andersson caps for a while (they are great). However, he's

at the point now where he can figure out how to take the hat off so

we can't use it as a preventative measure (though it would slow him

down - probably enough that I would have time to pull over and step

in before the aid actually gets in his mouth )

And you are right about the looking cute! I was apprehensive at

first about the aids. But they are great, Andy looks adorable

(though I am biased). We've had so many people ask about them and to

this point, I haven't felt like anyone has treated us different or

badly. Rather, more interest and curiosity, which I'll take any day.

I love when other kids stare at his hearing aids. When I ask if they

want to look at them and learn what they do, they always say " yes " .

The parents always seems relieved that I'm open and then they end up

asking a ton of questions.

We are doing sign with Andy as well. We fully expect that he will be

able to communicate verbally but we figure it doesn't hurt to give

him a head start. He's just started signing " more " and " help " this

past week and definately understands " no " and " good boy " and " eat " .

Unfortunately, he doesn't always listen to the " no " !

Sounds like you are off to a good start and have a great outlook! I

too have an older child (Amelia who is 3) who had no issues so

Andy's completely threw us for a loop. But you will be surprised at

how quickly it all becomes normal.

>

>

>

> I just saw this (missed the first time)...I don't think it would

> hurt to learn sign language. I bet your daughter Hailey would

love

> it. Sign language could be a bridge to spoken language. I commend

> you for starting early. You can look here:

>

>

> http://www.buttepublications.com

>

>

> for simple signs. Also if you type " ASL Browser " in a google

> search, U of Michigan has a good website.

>

> > >

> >

> > >

> > > With Moderate hearing loss, I'm thinking about learning sign

> > > language. Wouldn't hurt right? I'm hoping that my mom's

> friend, who

> > > has a hearing loss(don't know what level) can teach me.

Anyone

> know

> > > any good books on it?

> > >

> > >

> >

> > Signing Time (now on PBS in some areas) is a good place to

start.

> > www.signingtime.com is their website. They have videos and

> books. I

> > haven't seen the books, but the videos are entertaining for the

> kids.

> > They just came out with Baby signing time videos too. They

teach

> > vocabulary. If you want your child to really learn American Sign

> > language, you'll have to learn grammer too. Many community

> colleges

> > offer ASL classes.

> >

> > Take care,

> > Cheryl

> >

>

[Guest guest]

Hi , and welcome! I'm , mom to Maggie who is 15 and has a

bilateral mod-severe loss and she was diagnosed at almost 4 years old. She did

Auditory Verbal and is now in high school, taking honors classes and listens to

an Ipod and talks on a cell phone. So I'm not much help with ideas about babies

with hearing aids! But glad you found us and glad to have you as part of our

group. The great thing about this group is that we all realize that there isn't

one " right " way for all kids, but there probably is one " right " way for your

child and your family and hopefully we can help you find that. Make yourself at

home.

[Guest guest]

I just wanted to say thank you to everyone and that I appreciate how

welcoming you all have been! I am lucky to have found this

group! I searched and searched on myspace for a hearing impaired

group and found 2 for childrent, but there are only a few members,

and there is hardly any activity in the group. I am big into the

groups on myspace, addicted is a better word for it We have

games and things we play on the groups too, but we also have

discussions and all that. If any of you are on myspace and would

like to friend request me please feel free! I'm still very new to

the Yahoo thing, so I'm trying to learn how to get around it in

here. oh, but my myspace link is on my profile on here, you can

just click it to get to my page. Again, thanks so much for

welcoming me to your group!! You all have already been a TON of

help!!!

-

>

> Hey Everyone, I'm new and I just wanted to introduce myself. My

name

> is , I'm 22 years old and a mother of two children, Hailey

who

> is 2 years old and Waylon " Fisher " who is almost 3 months old,

born

> July 26 of this year. I've been married for almost 3 years now

and am

> loving the family life! There is nothing greater than being a

mom!

>

> So, my son, Fisher, has a Moderate Hearing Loss that he was born

> with. My first child, Hailey, never had any health issues or

> anything, so I've sort of been thrown for a loop with all this

with

> Fisher. I guess it hasn't really sunk in yet. I don't know

anything

> about hearing loss, so I am trying to take in as much as I can.

As

> far as the cause of his hearing loss, it is unknown. I saw

something

> online about how a mother can carry the gene and only pass it on

to

> male offspring, so that would explain why Hailey didn't get it and

why

> Fisher did, but we really don't know why at this point. Anyways,

> Fisher failed both hearing tests in both ears at the hospital when

he

> was born. Then we were referred to an audiologist where they did

a

> diagnostic ABR test and found that he has '55dB threshold to click

> stimuli' (I have no clue what this means). All I know is what

they

> told me, Moderate Hearing Loss, and that he requires hearing

aids.

> So, now we are jumping through hoops trying to get another ABR

done

> which will be more detailed so she can tune the hearing aids just

> right and we are having a lovely time with medicaid on getting the

> aids, yay...

>

> I'm glad to be a part of your group and hope I can learn a lot

from

> everyone! Thanks!

>