Re: /New the group

[Guest guest]

Hello ,

Welcome to the group. You are so lucky to have a wonderful husband that is

there to help you. I know how important it is since I was diagnosed a few

months after getting married. When I was diagnosed I had to hospitalized for

two months and my hubby was there each and every day. It is now 17 years

later and he's still here, helping me and giving me more strength.

It is good that you have diagnosis, you can now treat the disease.

I know you'll find lots of support here. Please feel free to participate

in some or all conversations going on.

Mojo

New the group

> Thank you for all of your kind and welcoming emails. My husband of 2

> 1/2 years and I just moved to land from Italy. He is Navy, so

> moving is a common occurance in our lives. I am 30 years old and have

> a Golden Retriever named " Ellie " . I have a wonderful marriage and a

> happy homelife - thank goodness. I have found that my marraige has

> been strengthened through the miserable process of becoming ill and

> going through the motions of testing with some of the most awful

> doctors I have ever met. I am glad that he was my strength on days

> when I didn't have any more to give.

>

> I became very sick when we first got to Italy (2 yrs ago). I spent 10

> days in the hospital and underwent a battery of tests for the next

> year and a half. We finally gave up and requested to be returned to

> the U.S. for better healthcare access.

>

> I was home a week and went to visit the Rheumatologist who diaganosed

> me with Lupus. I have a very rare disorder called Eosinophilic

> Gastroenteritis, pericardial inflammation, arthritis, fatigue, and

> sleep problems.

>

> I have been on prednisone for the past 4 months and am almost tapered

> off. I have started Plaquenil and am taking Zoloft at night to help

> me sleep.

>

> I look forward to having a support group and some people to share

> some experiences with.

>

> I am not online all of the time, so please don't think I am ignoring

> you if I only chime in now and again.

>

> Thank you,

> Elam

>

>

>

>

>

>

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