Re: Tana

[Guest guest]

-Hi Tana- My hair always falls out , more so during a flare. I've

noticed that it's a lot thinner than it used to be, but I don't have

any bald spots. I sometimes get new growth too so I have a little

mohawk that sticks up in the part of my hair (truly lovely

looking!!!) Hang in there, misery loves company!!! Welcome to the

group!!! Talk to ya soon...

-- In LUPIES , " Mojo (Joanna) " <askam@o...> wrote:

> Hi Tana and welcome.

>

> Hair loss is something I have always experienced when flaring. It

falls

> out really bad and seeing it I can pretty much tell I'm having a

flare

> without any test. When I was first diagnosed 17 I hardly had any

hair left

> with two bare spots. They grow back when do better, but adjusting

your hair

> style to having lupus is also something most of us have to do.

>

> I'm sorry you had the symptoms for a long time. Thank goodness

you now

> know what is happening to you and you can take steps to be better

>

> Mojo

>

> Thanks for the welcome

>

>

> > Hi all,

> >

> > Thank you for all of your welcoming e-mails. My name is Tana

and I've

> > had lupus for what I believe is a long time. But I've only had a

> > diagnosis for a couple of years. It's been very frustrating as

I'm

> > sure you all know. I've got three kids - ages 21, 16, and 14, a

great

> > husband and a black lab who is my partner in pain with cancer.

I'm a

> > technical writer and fortunately get to work from home most of

the

> > time.

> >

> > I usually don't talk to anyone but family about having lupus,

but I

> > think it would be great to hear from some of you who know what

it's

> > like. I've been trying to take better care of myself and I

think it's

> > helping.

> >

> > I have one question that seems kind of dumb, but I've been

losing a

> > lot of hair in the last six months or so. Fortunately I had

thick

> > hair to start off with. It's bad enough to feel lousy, but if it

> > keeps up, I'll start to look awful too. I'm currently on

plaquenil

> > and medication for heart problems (Tambocor), so who knows if

it's a

> > side effect or from lupus. Any thoughts?

> >

> > Thanks,

> > Tana

> >

> >

> >

> >

> >

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> >

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> >

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> >