Re: EEGs ???? Sleep deprived???????

[Guest guest]

Is sleep deprived the norm? I would like to know from other members of this

site, too. I thought the whole point was to keep them from seizuring, not to

induce seizures, and sleep deprivation will do that....

Ours, since the diet, are not sleep deprived. The neuro listed sleep deprived,

but I checked with the hospital that initiated the diet and they said " no. " Not

sleep deprived.

I think finding a good neuro is going to be primary to your daughter's care, and

I am so glad you found one.

Keep us posted. .

mdcherry0917 dmcherry@...> wrote:

I just wanted to update everyone.

We are doing a sleep deprieved EEG today. Can you beieve this

is our first one!?! She had a really hard time last night as I heard

her crying cause she was so tired.

We also get to meet our new local neuro today (thanks to our

wonderful new ped.!). I have my list ready and after we meet him

we will decide how we are going to proceed as far as who is

going to over see her on the diet. Please pray that this neuro

has a heart of gold and really has her best interests at heart! i'm

just not ready to give up on the diet yet!

Thank you all for allowing me to vent a couple of weeks ago.

This site has been very helpful to our family! I'll let you know how

it goes tomorrow when I am more awake!

~

Mother to almost 5 year old , diet since 1/2004. Still no

control but some improvement.

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

I think there are a variety of reasons to try for sleep deprived. Usually

the EEG techs want to catch the child in an awake state and an asleep state.

Much more likely to happen if they are deprived. Also, ironically enough,

it's better to catch a seizure on an EEG than not (unless you are shooting

for a clean EEG!). It will give you better info as to where the seizures

are originating from - and what types of seizure pattern there is...allowing

for possibly better treatment or the location of a focal point and therefore

allowing the consideration of surgery.

Barb Swoyer, Jake's mom

Re: EEGs ???? Sleep deprived???????

>

> Is sleep deprived the norm? I would like to know from other members of

this site, too. I thought the whole point was to keep them from seizuring,

not to induce seizures, and sleep deprivation will do that....

>

> Ours, since the diet, are not sleep deprived. The neuro listed sleep

deprived, but I checked with the hospital that initiated the diet and they

said " no. " Not sleep deprived.

>

> I think finding a good neuro is going to be primary to your daughter's

care, and I am so glad you found one.

>

> Keep us posted. .

>

> mdcherry0917 dmcherry@...> wrote:

>

> I just wanted to update everyone.

>

> We are doing a sleep deprieved EEG today. Can you beieve this

> is our first one!?! She had a really hard time last night as I heard

> her crying cause she was so tired.

>

> We also get to meet our new local neuro today (thanks to our

> wonderful new ped.!). I have my list ready and after we meet him

> we will decide how we are going to proceed as far as who is

> going to over see her on the diet. Please pray that this neuro

> has a heart of gold and really has her best interests at heart! i'm

> just not ready to give up on the diet yet!

>

> Thank you all for allowing me to vent a couple of weeks ago.

> This site has been very helpful to our family! I'll let you know how

> it goes tomorrow when I am more awake!

>

> ~

> Mother to almost 5 year old , diet since 1/2004. Still no

> control but some improvement.

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>

[Guest guest]

Most of Noah's EEGs have been sleep deprived in some form- usually they ask to

keep them up an hour or two later before bed and then wake up an hour or two

earlier in the morning. Our neuro suggests this for help on an EEG so that they

will be sleepier and more likely to fall asleep so they can get a sleep EEG as

well as an awake EEG. I know that even WITH sleep deprivation it can be very

difficult to get them to go to sleep!! So, the later bedtime and early wake up

help with that. Before Noah's diagnosis, our 1st neuro would administer a

sedative to help get him to sleep. I don't know how accurate that would have

been now that we know the meds affected his seizures. I would think the more

natural state is what you'd want for an EEG. I have never had to do an all-night

sleep deprivation. I think that is too much for the kid and mommy!!

Steph

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

frumpymumma@...> wrote:

Is sleep deprived the norm? I would like to know from other members of this

site, too. I thought the whole point was to keep them from seizuring, not to

induce seizures, and sleep deprivation will do that....

Ours, since the diet, are not sleep deprived. The neuro listed sleep deprived,

but I checked with the hospital that initiated the diet and they said " no. " Not

sleep deprived.

I think finding a good neuro is going to be primary to your daughter's care, and

I am so glad you found one.

Keep us posted. .

mdcherry0917 dmcherry@...> wrote:

I just wanted to update everyone.

We are doing a sleep deprieved EEG today. Can you beieve this

is our first one!?! She had a really hard time last night as I heard

her crying cause she was so tired.

We also get to meet our new local neuro today (thanks to our

wonderful new ped.!). I have my list ready and after we meet him

we will decide how we are going to proceed as far as who is

going to over see her on the diet. Please pray that this neuro

has a heart of gold and really has her best interests at heart! i'm

just not ready to give up on the diet yet!

Thank you all for allowing me to vent a couple of weeks ago.

This site has been very helpful to our family! I'll let you know how

it goes tomorrow when I am more awake!

~

Mother to almost 5 year old , diet since 1/2004. Still no

control but some improvement.

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

had the sleep deprived kind, pre-keto, as they wanted to record a seizure

to see the origin, etc. That was the whole point, to see seizures, I thought.

And, you are right, she did go to sleep, so they got the sleep patterns too.

Since keto they are looking for a good report, I thought. Already have a

baseline for the bad....

I just may be way off on what they are going for??? I am not setting her up for

a seizure! Not for their information, or anyone else's!

Thanks.. .

jsprecourt@...> wrote:

Most of Noah's EEGs have been sleep deprived in some form- usually they ask to

keep them up an hour or two later before bed and then wake up an hour or two

earlier in the morning. Our neuro suggests this for help on an EEG so that they

will be sleepier and more likely to fall asleep so they can get a sleep EEG as

well as an awake EEG. I know that even WITH sleep deprivation it can be very

difficult to get them to go to sleep!! So, the later bedtime and early wake up

help with that. Before Noah's diagnosis, our 1st neuro would administer a

sedative to help get him to sleep. I don't know how accurate that would have

been now that we know the meds affected his seizures. I would think the more

natural state is what you'd want for an EEG. I have never had to do an all-night

sleep deprivation. I think that is too much for the kid and mommy!!

Steph

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

frumpymumma@...> wrote:

Is sleep deprived the norm? I would like to know from other members of this

site, too. I thought the whole point was to keep them from seizuring, not to

induce seizures, and sleep deprivation will do that....

Ours, since the diet, are not sleep deprived. The neuro listed sleep deprived,

but I checked with the hospital that initiated the diet and they said " no. " Not

sleep deprived.

I think finding a good neuro is going to be primary to your daughter's care, and

I am so glad you found one.

Keep us posted. .

mdcherry0917 dmcherry@...> wrote:

I just wanted to update everyone.

We are doing a sleep deprieved EEG today. Can you beieve this

is our first one!?! She had a really hard time last night as I heard

her crying cause she was so tired.

We also get to meet our new local neuro today (thanks to our

wonderful new ped.!). I have my list ready and after we meet him

we will decide how we are going to proceed as far as who is

going to over see her on the diet. Please pray that this neuro

has a heart of gold and really has her best interests at heart! i'm

just not ready to give up on the diet yet!

Thank you all for allowing me to vent a couple of weeks ago.

This site has been very helpful to our family! I'll let you know how

it goes tomorrow when I am more awake!

~

Mother to almost 5 year old , diet since 1/2004. Still no

control but some improvement.

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe

[Guest guest]

I think you are right, Barbara.... but on keto we are going for a clean slate!

That is why it seems counterproductive for those of us trying to work this diet

to our child's best advantage to do a sleep deprived one????

At the beginning of the diet they get a baseline with all the nasties going on.

Hopefully, after a stint on the diet they get nice ones, showing healing. My

thoughts, only... I don't know! .

Barbara Swoyer bswoyer@...> wrote:

I think there are a variety of reasons to try for sleep deprived. Usually

the EEG techs want to catch the child in an awake state and an asleep state.

Much more likely to happen if they are deprived. Also, ironically enough,

it's better to catch a seizure on an EEG than not (unless you are shooting

for a clean EEG!). It will give you better info as to where the seizures

are originating from - and what types of seizure pattern there is...allowing

for possibly better treatment or the location of a focal point and therefore

allowing the consideration of surgery.

Barb Swoyer, Jake's mom

Re: EEGs ???? Sleep deprived???????

>

> Is sleep deprived the norm? I would like to know from other members of

this site, too. I thought the whole point was to keep them from seizuring,

not to induce seizures, and sleep deprivation will do that....

>

> Ours, since the diet, are not sleep deprived. The neuro listed sleep

deprived, but I checked with the hospital that initiated the diet and they

said " no. " Not sleep deprived.

>

> I think finding a good neuro is going to be primary to your daughter's

care, and I am so glad you found one.

>

> Keep us posted. .

>

> mdcherry0917 dmcherry@...> wrote:

>

> I just wanted to update everyone.

>

> We are doing a sleep deprieved EEG today. Can you beieve this

> is our first one!?! She had a really hard time last night as I heard

> her crying cause she was so tired.

>

> We also get to meet our new local neuro today (thanks to our

> wonderful new ped.!). I have my list ready and after we meet him

> we will decide how we are going to proceed as far as who is

> going to over see her on the diet. Please pray that this neuro

> has a heart of gold and really has her best interests at heart! i'm

> just not ready to give up on the diet yet!

>

> Thank you all for allowing me to vent a couple of weeks ago.

> This site has been very helpful to our family! I'll let you know how

> it goes tomorrow when I am more awake!

>

> ~

> Mother to almost 5 year old , diet since 1/2004. Still no

> control but some improvement.

>

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>

[Guest guest]

Noah's last EEG was a month ago and he was to be sleep deprived 2 hours before

bed and then woken up earlier in the morning. He has been seizure-free for 7

months, so we didn't think it would cause a seizure, and he was able to sleep

through the EEG... absolutely clean EEG- NORMAL. If your child has been

seizure-free for a while, you may not have to worry about it, but if you are

newly seizure-free, I can understand!! I also wouldn't want to stay up all

night, so you might want to verify with the doctor exactly what he means by

sleep-deprived. They may just mean a few hours.

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

frumpymumma@...> wrote:

had the sleep deprived kind, pre-keto, as they wanted to record a seizure

to see the origin, etc. That was the whole point, to see seizures, I thought.

And, you are right, she did go to sleep, so they got the sleep patterns too.

Since keto they are looking for a good report, I thought. Already have a

baseline for the bad....

I just may be way off on what they are going for??? I am not setting her up for

a seizure! Not for their information, or anyone else's!

Thanks.. .

jsprecourt@...> wrote:

Most of Noah's EEGs have been sleep deprived in some form- usually they ask to

keep them up an hour or two later before bed and then wake up an hour or two

earlier in the morning. Our neuro suggests this for help on an EEG so that they

will be sleepier and more likely to fall asleep so they can get a sleep EEG as

well as an awake EEG. I know that even WITH sleep deprivation it can be very

difficult to get them to go to sleep!! So, the later bedtime and early wake up

help with that. Before Noah's diagnosis, our 1st neuro would administer a

sedative to help get him to sleep. I don't know how accurate that would have

been now that we know the meds affected his seizures. I would think the more

natural state is what you'd want for an EEG. I have never had to do an all-night

sleep deprivation. I think that is too much for the kid and mommy!!

Steph

Mom to Noah- age 3, med-free, & seizure-free on the keto diet

frumpymumma@...> wrote:

Is sleep deprived the norm? I would like to know from other members of this

site, too. I thought the whole point was to keep them from seizuring, not to

induce seizures, and sleep deprivation will do that....

Ours, since the diet, are not sleep deprived. The neuro listed sleep deprived,

but I checked with the hospital that initiated the diet and they said " no. " Not

sleep deprived.

I think finding a good neuro is going to be primary to your daughter's care, and

I am so glad you found one.

Keep us posted. .

mdcherry0917 dmcherry@...> wrote:

I just wanted to update everyone.

We are doing a sleep deprieved EEG today. Can you beieve this

is our first one!?! She had a really hard time last night as I heard

her crying cause she was so tired.

We also get to meet our new local neuro today (thanks to our

wonderful new ped.!). I have my list ready and after we meet him

we will decide how we are going to proceed as far as who is

going to over see her on the diet. Please pray that this neuro

has a heart of gold and really has her best interests at heart! i'm

just not ready to give up on the diet yet!

Thank you all for allowing me to vent a couple of weeks ago.

This site has been very helpful to our family! I'll let you know how

it goes tomorrow when I am more awake!

~

Mother to almost 5 year old , diet since 1/2004. Still no

control but some improvement.

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

Subscribe: ketogenic-subscribe

Unsubscribe: ketogenic-unsubscribe