Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 , From what I've read and seen on TV, Myasthenia Gravis is now treated with Plasma Pheresis (not sure I spelled that right), and they are having great success with it in some patients. You might ask your doctor about that, and also get a second opinion to be sure. Keep us posted on how you are doing, 'k? Loving hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 I was diagosised with Myasthenia Gravis last week by a neuro opthmalologist. Does anyone else have this? I go to a neurologist on Thursday. Just wondering if anyone could provide info on their experience with this. I've been searching the web for medical information. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Dear , I have never heard of this illness, but hope others can help you. Also, I tried checking on internet. There is a www.myasthenia.org, a foundation for this disorder however I didn't really find any information about the disease itself. It's more about conferences, references, and other rences. I'm attaching something I found that looked like a more personal approach. It's a letter written by a person who is suffering from MG. Hope this helps. www.mdausa.org/publications/fa-mg Mojo Myasthenia Gravis > I was diagosised with Myasthenia Gravis last week by a neuro > opthmalologist. Does anyone else have this? I go to a neurologist > on Thursday. Just wondering if anyone could provide info on their > experience with this. I've been searching the web for medical > information. > Thanks > > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies > Quote Link to comment Share on other sites More sharing options...
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