Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Hi Saro, Well great news about Rohan's growth, but ugh to the increased seizures. I'm sorry to hear that. What is happening with the VNS? Yes, puberty can do that can't it, about 5 or so yrs to go here before we face that new challenge, gee, can't wait - not 's height growth had stopped completely again from about Feb-June, but after some cal, prt, and ratio tweaking, he has slowly gained a cm over the past 2 mths, so at least it is movement in the right direction. The topomax/dep/diet combo is not ideal as far as growth and chronic acidity goes, (poss tied in together in D's case I think as opposed to the last period of absolutely no growth which was a cal issue only I think) far from it I guess, but as long as he has little growth spurts now and then, while staying seizure free, I'll be happy. ----- Original Message ----- > Hi , > Glad to see that is on a lower ratio and > getting new foods. Has he started growing taller? > I know you had some concerns just like I had > re. Rohan. > We had an appt. with the endocrinologist > last week and she was very pleased that Rohan was > showing a sharp upward curve in growth. She thinks > it's puberty kicking in, which would help the bones > too. So these kids will catch up in height even if > they slow down on the diet. > Suddenly though, Rohan seems to be having a very > bad time with seizures - might be the downside of > puberty > > Saro Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Hi , The waiting list for VNS was 6 months. We saw the surgeon in June so hopefully it'll be around Christmas, probably after. It is good that 's growing taller even if it is slower than desired, the main thing is being sz-free. Saro & Hill wrote: > Hi Saro, > Well great news about Rohan's growth, but ugh to the increased seizures. >I'm sorry to hear that. What is happening with the VNS? > Yes, puberty can do that can't it, about 5 or so yrs to go here before we >face that new challenge, gee, can't wait - not > 's height growth had stopped completely again from about Feb-June, >but after some cal, prt, and ratio tweaking, he has slowly gained a cm over >the past 2 mths, so at least it is movement in the right direction. > The topomax/dep/diet combo is not ideal as far as growth and chronic >acidity goes, (poss tied in together in D's case I think as opposed to the >last period of absolutely no growth which was a cal issue only I think) far >from it I guess, but as long as he has little growth spurts now and then, >while staying seizure free, I'll be happy. > > > > ----- Original Message ----- > > > > Hi , > > Glad to see that is on a lower ratio and > > getting new foods. Has he started growing taller? > > I know you had some concerns just like I had > > re. Rohan. > > We had an appt. with the endocrinologist > > last week and she was very pleased that Rohan was > > showing a sharp upward curve in growth. She thinks > > it's puberty kicking in, which would help the bones > > too. So these kids will catch up in height even if > > they slow down on the diet. > > Suddenly though, Rohan seems to be having a very > > bad time with seizures - might be the downside of > > puberty > > > > Saro > > > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
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