[BULK] Re: Reasons for a gluten challenge

[Guest guest]

Maureen,

What is refractory sprue? At this point everyone is not in a hurry to do much more in the way of testing. They all tell me that we will wait and wait. But all the while she is still on a plateau on her weight and I just want to make sure we are not overlooking something.

_._,___

[Guest guest]

Maureen,

What is refractory sprue? At this point everyone is not in a hurry to do much more in the way of testing. They all tell me that we will wait and wait. But all the while she is still on a plateau on her weight and I just want to make sure we are not overlooking something.

_._,___

[Guest guest]

Maureen,

What is refractory sprue? At this point everyone is not in a hurry to do much more in the way of testing. They all tell me that we will wait and wait. But all the while she is still on a plateau on her weight and I just want to make sure we are not overlooking something.

_._,___

[Guest guest]

I am *not* an expert, but I'll tell you what I know from hearing

experts speak. " Refractory sprue " is a type of celiac that does not

improve with just a GF diet and needs further intervention. Exactly

what that is, I'm not sure. I think I remember hearing that sometimes

steroids are used to treat it.

Recently I heard Dr. Grey (Stanford Celiac Clinic) speak about

malabsorption, and how underrecognized it is even though it is fairly

prevalent in celiacs, even by celiac aware doctors. There are tests

for it that can measure how much of what goes in comes out

undigested/unabsorbed (poop tests!). Fat is frequently malabsorbed, as

a certain vitamins and iron (my son's case) - these things can effect

growth.

To try to compensate for my son's malabsorption, we've learned to make

every calorie count - his breakfast is usually homemade pancakes or

waffles that we've fortified (we do big batches on the weekend and

freeze) then we add nut butter or maybe ham/sausage with it and

Pediasure. Lunches and dinners we also try to cram in the nutrition.

Plus he gets iron twice a day, vitamins, probiotics, and allergy meds -

poor kid gets about 9 pills a day!

Maureen

>

> Maureen,

>

> What is refractory sprue? At this point everyone is not in a hurry

to do

> much more in the way of testing. They all tell me that we will wait

and

> wait. But all the while she is still on a plateau on her weight and

I just

> want to make sure we are not overlooking something.

>

>

> _._,___

>