Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Jen, Chances are that her doctor was referring to brain slump, which is a rare, but serious complication that sometimes happens after decompression surgery. Sometimes a surgeon removes too much skull, and in essence, over decompresses the posterior fossa, so the brain slumps down into the foramen magnum. It is possible that she misunderstood what her doctor was intending to say, in a way the brain does collapse down, but it is usually referred to as brain slumping. That's just my guess, take care. Joanna/Atlanta (16 years) Chiari 1 Malformation- 17mm Syrinx from C1-T6 <---------dissipating as we speak! Neurocardiogenic Syncope (Resulting from miscommunications between my brainstem and heart). My medications are helping tremendously! Decompression, Laminectomy, Duraplasty-7/27/01 Dura exploration and surgical debridement of staph infection-9/8/01 IV antibiotic allergic reaction (gave me 105 fever for a week and shut my bone marrow down). -9/15/01-9/24/01 Serum Sickness from reactions/allergies to so many meds-9/25/01-9/30/01 STILL allergic to EVERYTHING, but hoping not to make any more trips to the ER anytime soon! I have some residual problems, but I am doing very well, and life is great! ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~* The first thing the angels sang is peace... ~*~*~*~*~*~*~*~*~**~*~*~*~*~*~*~*~*~*~*~*~**~* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hey guys, got a question. I recieve a private e-mail from a group member & her Doctor told her something I thought was pretty crazy, so I asked my Doctor, he also said it's a quite far fetched notion, but I wanted to ask all of you if you have heard of such a thing... also, if you choose to reply to this question please be aware I will be forwarding them to another member in the group whom originally asked the question, anyway.... Her Doctor told her that she can't have decompression surgery because she runs the risk of her brain collapsing!!! --- Has anyone else ever heard of such a thing, please let me know. -Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 The brain isn't an organ that collapses like a lung. I wonder what this doctor thought he was talking about. I'm sure he/she has a real concern, but obviously didn't actually explain that concern in any realistic terms. The only things I can think he/she might have meant would be things to do with sagging tonsils, something with the dura, or reduced CSF/ICP issues. My suggestion would be to have you freid ask the doctor to explain what he was talking about. > Hey guys, got a question. I recieve a private e-mail from a group > member & her Doctor told her something I thought was pretty crazy, so > I asked my Doctor, he also said it's a quite far fetched notion, but > I wanted to ask all of you if you have heard of such a thing... also, > if you choose to reply to this question please be aware I will be > forwarding them to another member in the group whom originally asked > the question, anyway.... Her Doctor told her that she can't have > decompression surgery because she runs the risk of her brain > collapsing!!! --- Has anyone else ever heard of such a thing, > please let me know. > -Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 I believe the term is called " brain slumping " though I am not sure. I have come across the idea before in my independant research of Chiari via the internet. I did ask my NS about it before my surgery and asked about the risk and he said it was a slight risk for me, and it seemed that he implied it was from too much space bieng added? I am not sure, any post-op's know what web page might have that? Hannah > > Date: 2002/07/31 Wed PM 12:09:19 EDT > To: chiari > Subject: Brain Collapse??? > > Hey guys, got a question. I recieve a private e-mail from a group > member & her Doctor told her something I thought was pretty crazy, so > I asked my Doctor, he also said it's a quite far fetched notion, but > I wanted to ask all of you if you have heard of such a thing... also, > if you choose to reply to this question please be aware I will be > forwarding them to another member in the group whom originally asked > the question, anyway.... Her Doctor told her that she can't have > decompression surgery because she runs the risk of her brain > collapsing!!! --- Has anyone else ever heard of such a thing, > please let me know. > -Jen > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
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