Re: May - sign language

[Guest guest]

We did get a video, but I don't think that is the one. And we got a book. Ebay

purchases. She only has one full hand but has learned a lot of signing, and has

had a chance to use a bit of it. Fun! And I have read it is the third most

used language of this country! ........mum to dear , keto kid since

May

kathy j irwin kathyirwin@...> wrote:May -- just a suggestion -- " Talking

with your Hands " is an awesome sign

language video for children. My 6 year old loves learning the sign

language (and my keto 9 year old likes to repeat each of the words as

they say it).

Kathy

On Wed, 21 Jul 2004 12:48:54 -0700 (PDT) Falk

frumpymumma@...> writes:

> Hi!

>

> I know this is off the subject... but was the movie about Helen

> Keller and Annie Sullivan a video? Do you have the name? My seven

> year old has read of them and began to learn sign language after

> reading of them... and a bit of braille. Thanks. This board is a

> wealth of info! ... mum to dear , age 5, keto kid since

> May

>

> " K. McNeil " pamcneil@...> wrote:

> We're in that stage, too. Good to hear some improvements are seen

> down

> the road. I just watched that movie about Helen Keller and her

> teacher

> Ann Sullivan and the patience she had to have to work through every

> behavior problem with tough love, and each little situation as a

> teaching opportunity. And look what great results she got! BUT it

> took

> years of perseverance and dedication. Wow! Hits home.

> Thanks for writing.

> , son Tyler, 3

>

> & Rose behavior struggles

>

> You conversation is quite interesting to me. We've endured

> epilepsy,

> autism, mental delays and all....yet the number one thing that has

> about

> " done me in " through it all is behavior issues. It is VERY hard to

> punish, knowing full well that the behavior is coming from the

> disorder

> and/or treatments (yet, at other times, you have to count to 10 to

> save

> your child from being over punished --- from pinching their head

> off).

> Yet, we must force our kids to live in the " real " world which means

> that

> we must teach them what is appropriate and what is not. This is

> extra

> hard with some of our kids (like mine) because they just don't

> understand. I'm very thankful that is finally starting to

> understand consequences....but trust me, it has been a loooong time

> coming (several years) of following through on promises/threats.

> And

> we've had to try to make everyone in his life follow this also.

> This

> has

> been extra hard because most people " feel sorry " for him & will give

> in

> (and give him stickers, even though they threatened to take them

> away if

> he threw the toys). Well, he knows that & will " milk " it for

> everything

> he has got. As parents, we can't feel sorry for them, we must

> exercise

> " hard love " by sticking to our punishment/rewards with no

> exceptions.

> Yes, it is hard..... but trust me -- I can now look at in a

> store &

> tell him that if he wants to ride his car (battery operated) when we

> get

> home, he'd better stop spitting (or whatever). He understands it

> now &

> will change his behavior (most of the time). As I said, it has been

> a

> long hard battle, but now we are reaping the rewards. He knows I'm

> serious & will not change my mind if he doesn't change his behavior.

>

> I've been criticized by friends and family -- that I'm too hard on

> him

> (but they don't have a clue what all we've been through with

> behavior).

> We've had to learn as we go. My husband also uses the same

> techniques,

> so knows that if we threaten or promise......... it will

> happen, no

> exceptions.

> Sorry to ramble. This is what has worked with us. I hope

> I

> haven't sounded as if I'm preaching.... but I just wanted to share.

> I

> also want you to know that you are not alone in " pulling your hair

> out "

> over behavior issues. This area is extra hard. Hang in there!

> Kathy - mom to - keto since 02/00 (seizures 90-95% reduced), 9

> yr

> old, epilepsy, autism, can drive a mean 4-wheeler!

> On Sun, 18 Jul 2004 21:09:55 -0500 Atwater

> .Atwater@...> writes:

> > Hello Rose...

> >

> > I jumped in this because I watch and read when I can. Your

> > explanation of

> > control and your issues are so incredibly familiar, that I was so

>

> > glad (not

> > in that sense) to hear that I wasn't alone. It sounds exactly

> like

> > my

> > daughter! She's almost 6 and has " periodic spasms " and the head

> > drops are

> > now making her fall to the ground. She's been on the diet for a

> > month and

> > I can't seem to get her high enough to tell if it's working. She

>

> > won't

> > take the fats of the cream and it makes it extremely difficult to

>

> > control. I now reason, beyond reasoning, to get her to where she

>

> > needs to

> > be...160. I need to see if it works and I believe she changes

> after

> > the

> > initial hospital visit for the better. When she came down to

> > moderate, her

> > head drops were hard and stronger than ever. But, when she gets

> > higher, I

> > think she seems to change and the diet works. I'm struggling

> daily

> > to keep

> > her in keto range and the " control " she works on having is exactly

>

> > the way

> > you explained it. My family makes me crazy when they just " don't

>

> > get

> > it " . I explain and explained for the last almost 2 years since

> this

> > has

> > happened that it's very difficult for her and I'm certainly not

> > happy with

> > the behavior, but we are working on it the best we can. Most of

> the

> > time,

> > she's so sweet...and then ---- at a snap of a finger, she's really

>

> > upset

> > about absolutely nothing that would make sense to you and I.

> >

> > Sooo...in all, thanks for this explanation. I really felt I was

> > doing

> > something wrong. Thank you for explaining to me that I'm not a

> bad

> > Mom for

> > not yelling when people think I should or not putting up a chart.

>

> > People

> > think I'm not working on her behavior and letting it just go. I

> > really

> > don't, but it's very hard to differentiate what are the meds,

> > behavior or

> > just plain confusion to her. How do you get angry for something

> > they

> > really can't help sometimes? It's definitely tough.

> >

> > Have a wonderful night and thank you again......

> >

> > , Sheridan's Mom

> >

> >

> > At 02:57 AM 7/18/2004, you wrote:

> > >Hi

> > >

> > >Sorry you're having a rough ride too. I wish I could understand

> why

> > Ben

> > >sometimes

> > >behaves the way he does so that I can explain things to my

> family,

> > but you

> > >just have a

> > >gut feeling that what they're doing is out of their control,

> don't

> > you,

> > >and that

> > >explanation doesn't wash! My mum is quite understanding but the

> > others

> > >find it

> > >difficult. Even my husband struggles with it but then he's not

> > around very

> > >much so

> > >he's not observing him continually.

> > >

> > >I have tried throughout the epilepsy (diagnosed June 99) to solve

>

> > bad

> > >behaviour

> > >problems by various means - getting cross (a no-no - Ben just

> > panics and

> > >hides),

> > >promising rewards (useless if he is angry enough), star charts

> (no

> > good -

> > >couldn't

> > >seem to look far enough into the future to want to change his

> > behaviour at

> > >the

> > >present moment) etc etc. In fact sometimes if you told him off he

>

> > looked

> > >totally

> > >humiliated and recently when we have discussed his behaviour

> > together he

> > >just keeps

> > >saying " I am such an idiot " . I think he has a really low

> > self-esteem too.

> > >Our neuro-

> > >psychologist also said something very interesting when she

> assessed

> > him

> > >recently:

> > >that children with frequent seizures regularly experience a loss

> of

> >

> > >control over their

> > >lives (ie when they are fitting) and that they often exhibit

> > controlling

> > >behaviour which

> > >can be very frustrating for people if they don't understand

> what's

> > going

> > >on. A good

> > >example of this is Ben might try to take an unsuitable toy with

> us

> > in the

> > >car, and I will

> > >say " Ben can you give that to me " . He will then put the toy down

>

> > somewhere

> > >instead

> > >of giving it to me. I know this seems like a ridiculously

> > unimportant

> > >incident but it's

> > >an example of understanding you want him to do something and him

>

> > wanting

> > >to be

> > >obedient but also wanting to control the situation by making a

> > decision

> > >himself. This

> > >would make some members of my family mad, because it looks as

> > though he is

> > >deliberately not quite doing what he is told.

> > >Ben also gets upset at extremely little things, and this can

> result

> > in him

> > >seeming to be

> > >quite rude to me. Some members of my family are appalled at this

> as

> > we have a

> > >tradition of bringing up our kids quite strictly. I have had to

> > learn to

> > >reason him

> > >through it and try not to take it too personally!

> > >

> > >Anway I won't go on any more or I'll end up writing our life

> > story.

> > >

> > >Take care

> > >Rose

> > >

> > >

> > >

> > > " The Ketogenic Diet....a realistic treatment option, NOT just

> a

> > last

> > > resort! "

> > >

> > > List is for parent to parent support only.

> > > It is important to get medical advice from a

> > > professional keto team!

> > > Subscribe: ketogenic-subscribe

> > > Unsubscribe:

> > ketogenic-unsubscribe

> > >

> > >

> > >

> > >

> > >