Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 Are these readings still happening Tracey? I think there is a later post from you saying his ketones have now gone too high? I always check bhbs twice (like one straight after another) if readings come out to be not quite as expected, as I have found over the years that the home kit can give some dicey levels, and always feel safer when I double (sometimes even triple) check. Has he lost any weight to explain the v high bhbs? Burning body fat at the same time as caloric fat in a highish ratio can send them over the top, and sometimes the ratio needs lowering down until weight has stabilised again. 's bhb level on the home test kit varies from about 2.7 (morning) to 4.0-4.5 by late afternoon/night time, depending on his activity level, but usually within these ranges. Has the twitching stopped, have you changed anything? ----- Original Message ----- From: & Hill Hi Tracey, Er, not feeling overly confident I can answer this, certainly not with a Dr heading - yikes - no thanks but I will have a go tomorrow - my messages got away on me, and I got a bit snowed under, but hopefully will make better inroads in the morning, ----- Original Message ----- From: tflourie@... If you read my last posting, you'll know we're having some seizure *activity* which up til last week has been absent, at least by day. Today was the second time Skyler's face 'twitched.' After both episodes, I checked his blood ketones on the Medisense...they were 2.9 and 3.3 respectively. Last week when this happened, his ketones came back up to 5.something a few hours later. Is there *normal* fluctuations like that throughout a day? Care to speculate on why the range would be so wide. Our goal is for Skyler's blood ketones to be at least in the high 5's using the home meter...in the 6's on a venous draw. Because of his size (140 lbs) and age (17), he needs to have these higher levels for seizure control. He'd been doing SO well ....it has been devastating to see these twitches... Thanks. Tracey [ Quote Link to comment Share on other sites More sharing options...
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