Children's Milwaukee - Ugh!!!!!!

[Guest guest]

I just wanted to update you all on the situation. Well, the day after x-mas Dr.

Simms called me and said that the blood that they took to find out if Lucas had

Hunter's syndrome was not shipped out in time. Okay, this blood was drawn on

Dec 7th and they waited until the 26th to tell me that. Nice!! He also stated

that they lost the blood that they were going to use to see if Lucas has

diabetes. The lab also forgot to get a urine sample. I WAS SHOCKED!!! This is

supposed to be one of the best hospitals in WI. WHATEVER!! So on the 28th we

had to go to a local lab in Neenah and have my son poked and terified again adn

have more blood drawn. We were also sent a cup and we had to do out own urine

sample and sent it back to them. He did say that the x-rays show bone

abnormailities so the outlook is not good. I am so stressed out right now. We

will need to wait another 3 weeks to find out results. Oh yeah!! Children's

said that they will not charge us for the 2nd

time that the blood was drawn. How nice of them.

Just wanted to update you all (and vet a littel bit too). Thanks for all of

your support!!!

Jill

angelakroberts <angelakroberts@...> wrote:

Isn't it ironic how the social interractions our children need most

are the ones that can cause us parents the most pain?

Not comparing my LT daughter (, 25 mos) to other, more advanced

children her age is a constant struggle. No matter how mentally

prepared I think I may be to handle situations like birthday parties,

playgroups or family functions, I'm always caught off guard by things

that happen and ultimately end up somewhat depressed.

There is one friend of mine who has a daughter the same age as

and I seem to run into her everywhere... the grocery store, the drug

store, the super-center, etc. She is a constant reminder to me of how

far behind is. Another little girl 's age in our playgroup

is already potty trained and asking her mom to take her to go, " poo

poo " . Then, like another poster wrote, I always end up seeing a child

whose condition is much worse than 's and I feel both relief and

shame.

I've found that when my feelings of depression start to sneak up on

me, it's a sign I need to take a break and do something good for

myself. A brisk walk alone, a hot bubble bath with my favorite CD, a

trip to the mall alone, a piece of chocolate cake, etc.

I've also started dealing with my roller coaster of emotions by

writing a daily journal. Throughout the day I'll jot down the

positive things does and at night I'll put them in my journal.

No matter how exhausting the day has been, it helps me focus on the

positive things has done and ultimately (along with a good cry

sometimes) helps me sleep at night.

Best wishes to you. You have lots of company.

Cyber hug,

Emma Maeve - advanced 3.5 yrs

Olivia - loveable LT 25 mos

>

> My #1 commandment for " keeping the faith " is not to compare my LT

to

> other kids, only to himself...so...why have I fallen prey to this

> pitfall so badly in the past couple days?

>

> It started on Thursday when I picked my son up from preschool and

> overheard another child chatting away telling the teacher about a

> story from home. I don't know why, but I instantly longed for

> to share an embarrassing home story at school.

>

> Then at home, my younger non-LT son (20 months) is constantly

> tickling me with the silly animated things he says. 's SLP

told

> me with 100% confidence that WILL NOT let his little brother

> surpass him, but for some reason today, doubt crept in on me.

>

> And then today, the birthday party at a gymnastics place. Overall

I

> think did great and had a good time, but I couldn't help but

> feel like I constantly had to keep 's attention and at task in

> terms of following the teacher's instruction. And for the first

time

> I felt other parents eyes on and me.

>

> I know how important it is for me to stay positive, but I am just

so

> down today ~ and when I get like this I start second guessing all

> the other decisions that I have made for - such as putting him

> in a regular pre-school in a younger class.

>

> I know I am rambling at this point, but just needed a quick pick me

> up from folks who have gotten past this point with success.

>

> Thanks for reading.

>

>

> 4.10

> 3.7 my LT

> 1.8

>

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