Poor (Long}

[Guest guest]

I too am experincing the same symptoms you describe Poor as having. I

am sorry that had the unfortunate experience at the ER

It is just such instances that make it imperative that we educate and arm

ourselves with as much information as

possible as a defense against just such

assaults by so called medical professionals.

__________________________________________

Dr. Oro at the Chiair Clinic in Columbia Missouri is my neurosurgeon (no

surgery yet) and a wonderful man. My surgery is pending and will depend

upon the outcome of examination of a " movement specialist " .

Dr. Oro told me my symnptoms are Dystonic Movements. I saw my PCP, Dr.

Spurlock, yesterday afternoon for my annual physical.

As luck would have it (if you want to call it that) I experienced one of my

" seizures " while in his office. Dr. Spurlock confirmed this as Dystonia.

Dr. Oro has referred me to Dr. Oh, a neurological " movement specialist " .

A movement disorders specialist is a neurologist who has taken additional

training in the subspecialty in neurology called movement disorders ( as

compared to other subspecialties in neurology).

This encompasses disorders such as Parkinson's disease (and the

Parkinson-Plus disorders such as Shy Drager Syndrome and Progressive

Supranuclear Palsy), Essential Tremor, Dystonia, Restless Leg Syndrome, and

's disease. Movement Specialists are found at major medical

institutions.

http://www.geocities.com/pdcaregiver/MovementDisorder.htmlclonus

Here is a site from 's Hopkins:

http://www.neuro.jhmi.edu/MvtDis/home.html

Parkinson's Disease | Essential Tremor | Dystonia

Ataxia | Multiple System Atrophy | Progressive Supranuclear Palsy

PD is a chronic, progressive neurodegenerative disorder. The three classic

symptoms are slowness of movement, rigidity, and a resting tremor.

The age of onset is normally between the ages of 50 and 60, but 5 to 10

percent of those diagnosed experience young onset Parkinson's Disease.

There are even rare cases of juvenile onset PD. The incidence is about 20

per 100,000

people, and one percent of those over age 65 have PD.

Multiple medications are available to control the symptoms of Parkinson's

Disease and Functional

Neurosurgery is available here the s Hopkins Hospital through the

Department of Neurosurgery.

Essential Tremor is a neurologic disorder in which individuals experience a

rhythmic trembling of the hands, head, legs, trunk and/or voice.

Tremor is the only symptom of this disorder and other neurological problems

rarely occur. It is estimated that four to five million people in the United

States

have such tremor.

In most cases the disease is familial. Treatment includes

several medications to control symptoms. Neurosurgical

procedures including thalamotomy and deep brain stimulation are currently

performed here.

Dystonia refers to a movement disorder in which sustained muscle

contractions cause twisting, repetitive movement, and abonormal posture.

The movement is involuntary and may affect a single muscle or a group of

muscles, including those in the hands (writer's cramp), arms, legs, neck

(cervical dystonia),

eyelid (blepharospasm) and/or the entire body. There

are multiple treatments, which the physician individualizes.

Medications may be effective. Botulinum toxin injected into the affected

muscle often provdes temporary relief of the spasm.

Surgical intervention may be considered when all other options fail.

Ataxia means " without muscular coordination " . This disorder may be a symptom

of a number of disorders

caused by a slow deterioration of nerve cells in

the spinal cord and cerebellum. In some cases, the condition is hereditary

and known to be caused by a defective gene.

This disorder affects an estimated 150,000 individuals in the United States.

Treatment strategies are

aimed at maintaining independence through the use of physical and

occupational therapies and preventing complications.

Multiple System Atrophy is a condition in which there are features of

Parkinson's Disease as well as impairment of the autonomic nervous system.

Symptoms may include lightheadedness, urinary incontinence, urinary

retention, impotence, spasticity, and lack of coordination.

Treatment includes the medications commonly used to treat Parkinson's

Disease.

Progressive Supranuclear Palsy (PSP) is another condition in which there are

features of Parkinson's Disease.

The name refers to a weakness or paralysis of the muscles that move the

eyeballs.

This weakness makes moving the eyes upward and downward difficult. Most

frequently, the first symptom of this disorder is a loss of balance, which

contributes to falls.

Forgetfulness and personality changes may also occur early in this illness.

Treatment includes a trial of medications used for Parkinson's Disease.

Management of the individual to promote independence and prevent

complications is imperitive.

____________________________________________

Here is another link you might like to explore:

http://cpmcnet.columbia.edu/dept/neurology/movdis/learn/learn.htm

I hope this information will be helpful to any member experiecing similar

problems.

, please tell that I am praying for her.

Charlotte in MO

ACM1 4/19/2002

Surgery pending