Re: Geng is everything ok?

[Guest guest]

I met up with in December when I had a meeting in Florida. In

my book...she deserved a personal hug and thanks for starting this

site, allowing information to be easily distributed, and all the

time and energy she has given this cause! We wouldn't have a happy

ending without the info I got from this site and the Late Talker

book. Everyone is so very busy. She was well in Dec when I saw her

and her boys are great!

I am working on getting an apraxia/autism study funded, so as I

mentioned in a previous post - everyone will hear less from me too,

because there is just not enough time in the day. However I see that

many other families experiencing success with high-dose omega 3/vit

E are helping to spread the word, and that is just great. (Takes

some pressure off me, since I think this information really needs to

get out to the apraxia community). I can't imagine ph trapped

in a body that just wouldn't work for him (his old body)...looking

at him now and realizing there is actually a clinical cure out there

for at least some of these children. I will continue to post new

information as I get it. One would think that with the extra time I

have... no longer having 3X a week 1-hour speech therapy sessions, 2

special ed group speech (useless, but what the district gave us),

and 2 occupational therapy sessions a week - I would have so much

more time on my hands. What I am regaining is a little of my sanity,

and realizing how much my other 2 children have been neglected by

mommy through all this. It was so nice at Christmas to not have to

explain to anyone " what is wrong " with ph. No one would believe

we went through all this with him if they first met him now. He's

totally fine and now excelling in his abilities. He goes on skis for

the first time next week.

I will post a summary of the information 50 of you have sent to me

or posted (I summarized it as best I can, but this is not an ideal

way to gather preliminary data from the scientific perspective...but

you work with what you have). Some of you may see your own

children's results in this. But it is something you can print out

and give to your pediatrician for more information. I plan to write

it up in a ped developmental journal at some point in the next few

months and if/when something is published I will again let you all

know. -

> Haven't seen a post from since September. If anyone knows

> anything, please pass it on.

>

> all the best,

> Joanne

>

> Joanne,

> Jeanne here. I also haven't spoken to her either, I hope she is ok

too.

>

[Guest guest]

Funny ... I was thinking the same thing. I miss her insightful posts!

_____________________

Warmly,

Oakes-Hauf

Mom to , 3.8 (verbal apraxia,

but doing amazingly well) and 1.6 (talking away!)

howdiette wrote:

>

> Haven't seen a post from since September. If anyone knows

> anything, please pass it on.

>

> all the best,

> Joanne

>

> Joanne,

> Jeanne here. I also haven't spoken to her either, I hope she is ok too.

>

>

[Guest guest]

I met up with in December when I had a meeting in Florida. In

my book...she deserved a personal hug and thanks for starting this

site, allowing information to be easily distributed, and all the

time and energy she has given this cause! We wouldn't have a happy

ending without the info I got from this site and the Late Talker

book. Everyone is so very busy. She was well in Dec when I saw her

and her boys are great!

I am working on getting an apraxia/autism study funded, so as I

mentioned in a previous post - everyone will hear less from me too,

because there is just not enough time in the day. However I see that

many other families experiencing success with high-dose omega 3/vit

E are helping to spread the word, and that is just great. (Takes

some pressure off me, since I think this information really needs to

get out to the apraxia community). I can't imagine ph trapped

in a body that just wouldn't work for him (his old body)...looking

at him now and realizing there is actually a clinical cure out there

for at least some of these children. I will continue to post new

information as I get it. One would think that with the extra time I

have... no longer having 3X a week 1-hour speech therapy sessions, 2

special ed group speech (useless, but what the district gave us),

and 2 occupational therapy sessions a week - I would have so much

more time on my hands. What I am regaining is a little of my sanity,

and realizing how much my other 2 children have been neglected by

mommy through all this. It was so nice at Christmas to not have to

explain to anyone " what is wrong " with ph. No one would believe

we went through all this with him if they first met him now. He's

totally fine and now excelling in his abilities. He goes on skis for

the first time next week.

I will post a summary of the information 50 of you have sent to me

or posted (I summarized it as best I can, but this is not an ideal

way to gather preliminary data from the scientific perspective...but

you work with what you have). Some of you may see your own

children's results in this. But it is something you can print out

and give to your pediatrician for more information. I plan to write

it up in a ped developmental journal at some point in the next few

months and if/when something is published I will again let you all

know. -

> Haven't seen a post from since September. If anyone knows

> anything, please pass it on.

>

> all the best,

> Joanne

>

> Joanne,

> Jeanne here. I also haven't spoken to her either, I hope she is ok

too.

>

[Guest guest]

Funny ... I was thinking the same thing. I miss her insightful posts!

_____________________

Warmly,

Oakes-Hauf

Mom to , 3.8 (verbal apraxia,

but doing amazingly well) and 1.6 (talking away!)

howdiette wrote:

>

> Haven't seen a post from since September. If anyone knows

> anything, please pass it on.

>

> all the best,

> Joanne

>

> Joanne,

> Jeanne here. I also haven't spoken to her either, I hope she is ok too.

>

>

[Guest guest]

,

Thanks for your post. Glad 's busy and her boys are doing great.

Silence is not golden in my line of work, so I put out APBs . . .

Hope you dont mind .

All the best,

Joanne

[Guest guest]

>

> Haven't seen a post from since September. If anyone knows

> anything, please pass it on.

>

> all the best,

> Joanne

>

> Joanne,

> Jeanne here. I also haven't spoken to her either, I hope she is ok

too.

>

Hi all,

Jeanne here. I just talked to she is very busy getting her house

back in order, after living in a trailer for a year, from the last

hurricane.

[Guest guest]

,

Thanks for your post. Glad 's busy and her boys are doing great.

Silence is not golden in my line of work, so I put out APBs . . .

Hope you dont mind .

All the best,

Joanne

[Guest guest]

Me, too. You always felt like you were getting expert comments when

" Kiddietalk " popped up, right? Plus, I am still hoping for her expert input on

Efalex re: its very high DHA and very low EPA, that some of us have been

wondering about. Since she said that originally she might have worked with

Efalex instead of with Nordic Naturals, but that Efalex was in the UK and all

the phone bills, etc., were getting out of sight, I am wondering if then the

focus would have been on a product with high DHA instead of high EPA. Or

whether Efalex would have changed its formula to a high EPA.

Not to be argumentative at all. I am curious, for one thing, but also I have

been searching for a product similar to the ProEFA that does not contain lemon

or citrus. EyeQ (Equazen) is a wonderful product and works very, very well, and

their company is outstanding to deal with. But again, it is from the UK, and it

gets pricey. This will change once they have a US distributor. But the three,

ProEFA, EyeQ, and Efalex are referred to as those to use. So you see why I am

confused about this EPA/DHA thing and how Efalex fits in with the other two

products, since it is so different.

I'm glad and family are doing well. I don't know how she could find the

time to keep up with this site for so long. Without this site that she has

spent so much of her time on, truly we personally would be absolutely lost.

This has all been a miracle.

Suzanne

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