Chippy / Did you just forget sunblock?

[Guest guest]

Dear Chippy,

I'm curious.....did you use sunblock, or hat ,or umbrella....and still get the rash?

or did you just forget.....I don't dare even peek outside without sunblock,and a hat even in winter, and it's overcast!

I have to wear a hat because I've got a bald spot right on top of my head,and don't want to take a chance that the sun on top of my head will set off a flare.

I know what you mean about people acting like you've got the Plague.....When my rash is flaring......it always starts on my neck, then spreads to my shoulders,back,chest, then starts up on my face. I don't have Discoid Lupus, I've got the Subacute Cutaneous Lupus, and have only had the Butterfly rash once.....when I walked to the mailbox at the street without sunblock,or hat!!

That was right after I just got diagnosed, and was still in denial....

I 'll never forget the time I went grocery shopping, without covering my rash on my face with makeup.....people looked at me like they wanted to run screaming.....It broke my heart !!

C.

i am not at all happy

I thought when winter would end and spring would begin, it would begradual...nope not in South La. It was eighty four today...the firstday of spring...and the sun is closer to the earth now so the rays arestronger. I went outside for five minutes today to load my truck upwith props that my daughter is to use as the mascot of an arena footballleague...I looked in the mirror and I do realize why they call it thewolf...i looked like a wolf with the red discoid lupus rash that came upjust that quick. I have also had asthma the last week. I have had thatsince birth but it had been dormant for a while. I am very self conscious with the rash...I almost did not go to thearena football game tonite...people do tend to look at you strange...and act like it is something they can catch...I usually just tellthem it is lupus and I am not contagious and then I give them a big hugand kiss...hehe...IDK if lupus can activate asthma...but I am sure asthe sun gets hotter, the rash is gonna get worse on my face, down myneck and on my tummy. I sometimes do not even like to comment on my little stuff cause yallhave more involved health issues and mine sound dumb. But I am tryingto learn about this autoimmune disease. My friends will not speak to meabout it...they think it is a death sentence of sorts...and it isnot...so it is hard for me to talk about it with my friends...i do notwant them to pity me, I want them to just be the same to me as theywere when the rash was not there. I am the same chippy...it is just theoutside packaging that has changed a little. that is all...not too bad."The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies