Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 michelle paulson wrote: > Also, I was reading something about PH and making sure > there is a balance between acidity and alkalinity - > that often keto kids are too alkaline? Especially > before bedtime and that's sometimes what causes night > time seizures (which is what we have). Keto kids tend to be more acidic than alkaline. The ketones are acid bodies and make their bloodwork more acidic. Some people have tried using more alkaline foods to try to counter some of the acidity but I am not sure how well that really works. Lowering or raising ratio would be best way to affect acidity......the higher the ratio, the more acidic they will likely be. Unless you have seen issues with acidity with , I wouldn't worry too much about that issue at the moment , 's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hill wrote: > Okay, I failed miserably again - can't post those keto diet glucose > levels in the files, having no joy in creating a new file at ALL > Could someone else have a go, (maybe just use those emails from > earlier on today as the content?) would you let me know as I have > another paper in rich text format that I could email direct to > whoever, to be included in the file as well. It is a research paper on > the role of low glucose levels in seizure control, Could you email that last paper to me direct? I can't put it in the files sections for you (am only computer literate when things work as I have been shown) but would like to see it Thanks , 's mom mmc@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 I'll send a couple of posts thru in a min that I have , with suggested glucose levels for keto kids. You are right, info is few and far between, and I feel bad for not posting this stuff I have in the files section before now - I was intending to ages ago, and something happened, as it does.....and I completely forgot. I am also not the best with the techno stuff, so I am not that sure I will succeed, but will give it a go. The 49 figure sounds a bit on the low side, but the 63 is probably in the right range. Fluctuations do def occur, depending on when in relation to a meal that you test. BS levels will rise upwards from eating for about 90 mins or so - but this also depends on what type of foods were eaten - like where those foods are on the glycemic index. Carrots for instance turn to sugar very quickly, and would see a surge upwards more rapidly than the more complex carbs, which increase glucose at a slower more steady level. One off glucose/bhb checks unfortunately probably won't tell you everything you need to know, we had to do many in the course of a day over a few days before we had a def pattern established. That .4 bhb sounds like a worry - did you test twice to make sure it was an accurate reading? As much as I prefer blood ketone monitoring to urine, the accuracy of the kit always leaves me suspicious when I see very low or high ones - so I usually do a 2nd, sometimes 3rd strip to make sure. Also - testing soon after a seizure will probably show an inaccurate result - v frustrating , as that is the time you want to know where the levels are. If he has them at certain times, can you nip in before one is 'expected' and test then? Otherwise stress response to the seizure can raise glucose and lower ketones. Alternatively -if a particularly convulsive one, and a lot of energy is expended, ketones can go up from the body fat burnt as a result. I know - enough to drive you loopy.... Re the new foods introduced, I have never found a def reaction time if there is an adverse reaction. Poor old had the same meal day after day for months and months while I was trying to figure his remaining seizures out. And this past few months has seen us able to introduce a lot of new foods without seeing any nasties, so I'm prob not the best one to answer that question. Will send those glucose posts thru in a min, ----- Original Message ----- From: michelle paulson OK - dumb question here - but 3 nights ago, I decided to kick it into gear and check blood ketones AND blood glucose levels in the morning and at night in hopes of determining if these early morning seizures (4-6am) are a result of barometric pressure changes or low ketones. (NEVER thought of glucose being a possibility until AFTER reading a recent posting from ) DUH! Up til now, I've been thinking it's weather conditions but a few days ago, I checked blood ketones following an early morning seizure and it registered .4. Lowest ever that I've checked (which isn't many). Now, there was also a temp. drop and rain from the day before but surely weather wouldn't actually lower ketones??? Anyway, MY QUESTION: can't find normal ranges ANYWHERE for kids on keto diet for glucose readings. I've spent way too long trying to find these ranges - maybe I'm just too pooped to think clearly. Dunno. At any rate, we've been getting anywhere from 49 to 63. Is it normal to fluctuate and is there anything to watch out for? Also, I was reading something about PH and making sure there is a balance between acidity and alkalinity - that often keto kids are too alkaline? Especially before bedtime and that's sometimes what causes night time seizures (which is what we have). I only raise this question b/c to be honest, since I believe is so sensitive to certain foods, I've really only been giving him chicken, cauliflower, green beans, mushrooms (tons), green pepper, brazil nuts,oils, and almond butter. I know I need to introduce more foods but it seems that everytime I do, he has seizures. Coincidence, I'm sure but scared to make changes for fear of those darned myoclonic jerks coming back. I read that you need to give more acidic foods (fish, nuts, fruits) to counter the alkaline foods. What do you all think? Also, as an after thought, I posed the question a few days ago about a normal time frame for seizure activity to occur after introducing new foods if the new foods are a seizure trigger. has had increased seizure activity anywhere from 12 to 24 hours following intro. to new foods. Is this common or should the seizure activity take place say 2-4 hours after intro.? Just trying to see if food really is to blame or other variables entering the playing field (i.e. weather, ph, glucose, etc.). As always, trying to figure things out. THANKS! (mom to - 2.5 yrs. old - ketokid since 6/03 - med free since 3/27/04 - working on kicking those night time seizures! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Okay, I failed miserably again - can't post those keto diet glucose levels in the files, having no joy in creating a new file at ALL Could someone else have a go, (maybe just use those emails from earlier on today as the content?) would you let me know as I have another paper in rich text format that I could email direct to whoever, to be included in the file as well. It is a research paper on the role of low glucose levels in seizure control, Thanx ----- Original Message ----- From: Hill To: ketogenic I'll send a couple of posts thru in a min that I have , with suggested glucose levels for keto kids. You are right, info is few and far between, and I feel bad for not posting this stuff I have in the files section before now - I was intending to ages ago, and something happened, as it does.....and I completely forgot. I am also not the best with the techno stuff, so I am not that sure I will succeed, but will give it a go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 I'll send it thru to your addy in a sec , but I am sure you have already got it - I sent it to you about a yr ago I think? Let me know if it is the same one, ----- Original Message ----- From: mmc@... Hill wrote: > Okay, I failed miserably again - can't post those keto diet glucose > levels in the files, having no joy in creating a new file at ALL > Could someone else have a go, (maybe just use those emails from > earlier on today as the content?) would you let me know as I have > another paper in rich text format that I could email direct to > whoever, to be included in the file as well. It is a research paper on > the role of low glucose levels in seizure control, Could you email that last paper to me direct? I can't put it in the files sections for you (am only computer literate when things work as I have been shown) but would like to see it Thanks , 's mom mmc@... Quote Link to comment Share on other sites More sharing options...
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