Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 > >Reply-To: pancreatitis >To: pancreatitis >Subject: New Member >Date: Tue, 02 Apr 2002 13:28:15 -0000 > >Hi Folks....I'm a new member here and just thought I'd introduce >myself. I'm Andi and I've been diagnosed with CP about 3 years ago. >I've had pancreatitis attacks for YEARS (since my early 20's) and, >always attributed the pain to my smoking (the pain kinda felt like a >pulmonary pain), however, when I still got these attacks after I quit >smoking, I finally had it checked and was diagnosed with CP. > >Anyway, right after diagnosis, I only had occasional attacks, but >now, 3 years, 3 ERCP scopes, 2 CT scans, one less gallbladder and >several hospitalizations later, the pain is just about constant. So >far, my Gastro MD says there is nothing that can be done except for >pain management (which he considers a constant supply of Percocet >and/or Morphine). This treatment regiment *IMO*, is not compatible >with being a parent of 2 small children and holding down a >supervisory position in a highly stressful and demanding industry. > >So, it's good to read about other people's experiences and, perhaps, >I'll find some insight into other possible treatment regimes. Any >suggestions would help... > >Thanks for letting me ramble.. > > > >Andi. > Andi: Welcome, I hope you will find this group as helpful as I have. I sometimes just leave a note and ramble about things going on in my life that aren't necessarily related to CP. Everyone has been very supportive. Life is tough with this disease. Pain meds don't help with leading an active lifestyle and I'm sure the kids keep you busy anyway.-- You are to busy to be sick :>). There are several members that have had some success with alternative therpapies reguarding pain managent. Maybe they can help. In the meantime welcome and feel free to ramble anytime. -I know I do. in SC _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 > >Reply-To: pancreatitis >To: pancreatitis >Subject: New Member >Date: Tue, 02 Apr 2002 13:28:15 -0000 > >Hi Folks....I'm a new member here and just thought I'd introduce >myself. I'm Andi and I've been diagnosed with CP about 3 years ago. >I've had pancreatitis attacks for YEARS (since my early 20's) and, >always attributed the pain to my smoking (the pain kinda felt like a >pulmonary pain), however, when I still got these attacks after I quit >smoking, I finally had it checked and was diagnosed with CP. > >Anyway, right after diagnosis, I only had occasional attacks, but >now, 3 years, 3 ERCP scopes, 2 CT scans, one less gallbladder and >several hospitalizations later, the pain is just about constant. So >far, my Gastro MD says there is nothing that can be done except for >pain management (which he considers a constant supply of Percocet >and/or Morphine). This treatment regiment *IMO*, is not compatible >with being a parent of 2 small children and holding down a >supervisory position in a highly stressful and demanding industry. > >So, it's good to read about other people's experiences and, perhaps, >I'll find some insight into other possible treatment regimes. Any >suggestions would help... > >Thanks for letting me ramble.. > > > >Andi. > Andi: Welcome, I hope you will find this group as helpful as I have. I sometimes just leave a note and ramble about things going on in my life that aren't necessarily related to CP. Everyone has been very supportive. Life is tough with this disease. Pain meds don't help with leading an active lifestyle and I'm sure the kids keep you busy anyway.-- You are to busy to be sick :>). There are several members that have had some success with alternative therpapies reguarding pain managent. Maybe they can help. In the meantime welcome and feel free to ramble anytime. -I know I do. in SC _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 > >Reply-To: pancreatitis >To: pancreatitis >Subject: New Member >Date: Tue, 02 Apr 2002 13:28:15 -0000 > >Hi Folks....I'm a new member here and just thought I'd introduce >myself. I'm Andi and I've been diagnosed with CP about 3 years ago. >I've had pancreatitis attacks for YEARS (since my early 20's) and, >always attributed the pain to my smoking (the pain kinda felt like a >pulmonary pain), however, when I still got these attacks after I quit >smoking, I finally had it checked and was diagnosed with CP. > >Anyway, right after diagnosis, I only had occasional attacks, but >now, 3 years, 3 ERCP scopes, 2 CT scans, one less gallbladder and >several hospitalizations later, the pain is just about constant. So >far, my Gastro MD says there is nothing that can be done except for >pain management (which he considers a constant supply of Percocet >and/or Morphine). This treatment regiment *IMO*, is not compatible >with being a parent of 2 small children and holding down a >supervisory position in a highly stressful and demanding industry. > >So, it's good to read about other people's experiences and, perhaps, >I'll find some insight into other possible treatment regimes. Any >suggestions would help... > >Thanks for letting me ramble.. > > > >Andi. > Andi: Welcome, I hope you will find this group as helpful as I have. I sometimes just leave a note and ramble about things going on in my life that aren't necessarily related to CP. Everyone has been very supportive. Life is tough with this disease. Pain meds don't help with leading an active lifestyle and I'm sure the kids keep you busy anyway.-- You are to busy to be sick :>). There are several members that have had some success with alternative therpapies reguarding pain managent. Maybe they can help. In the meantime welcome and feel free to ramble anytime. -I know I do. in SC _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 Hi Andi, Just wanted to take a minute to welcome you to the group You'll find a lot of compassionate people here walking in the same shoes as you and I. I'v been a member since August 2002 ( 9 months ago ). I had gall bladder surgery and from there my problems began. I'm currently in the process of finishing up " My story " so I can post it on Marks site. Although you may not see me posting a lot (I guess I'm still a bit shy ) .... I do read every message, everyday without fail. I'v learned so much from these people. I'm not sure where I would be without them Hope you'll feel as comfortable as I do once you get to know everyone. Just remember .. " Your not alone " ...... We've all " been there ... done that " Again Welcome to " Our little corner of the world " . ) If I can help in anyway, please don't hesitate to email me. God Bless Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 Hi Andi, Just wanted to take a minute to welcome you to the group You'll find a lot of compassionate people here walking in the same shoes as you and I. I'v been a member since August 2002 ( 9 months ago ). I had gall bladder surgery and from there my problems began. I'm currently in the process of finishing up " My story " so I can post it on Marks site. Although you may not see me posting a lot (I guess I'm still a bit shy ) .... I do read every message, everyday without fail. I'v learned so much from these people. I'm not sure where I would be without them Hope you'll feel as comfortable as I do once you get to know everyone. Just remember .. " Your not alone " ...... We've all " been there ... done that " Again Welcome to " Our little corner of the world " . ) If I can help in anyway, please don't hesitate to email me. God Bless Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 Dear Andi, First I would like to welcome you! I am sorry for what you have gone through. My name is and I too am a parent of two small children so I understand about the pain management. I stopped taking my pain meds over 2 weeks ago because it was making me too sleepy even though I would be pain free. I am dealing with the pain for now. I was diagnosed just with Pancreatitis and I am not sure if I have chronic. But, I am still hurting and it has been about a month or so ago since I was diagnosed with this. They kept me in the hospital for a day. I hurt so bad the day I went in. The made me NPO and fluids were going through me in my IV as well as morpine. The pain is not as severe as that first attack but, I am sick most days from nausia and pain. I am sure I am in no way as bad as many here in this group. Of course, I am probably getting started which makes me upset that I even got this in the first place. I am in my early twenties and I get scared I am never going to heal. I just wish that there was a way for me to be ok as well as everyone else here. Well, I am rambling too so I just wanted to say I am sorry for what you have been through and we are here to support you and welcome! Best to you! HUGS, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 Dear Andi, First I would like to welcome you! I am sorry for what you have gone through. My name is and I too am a parent of two small children so I understand about the pain management. I stopped taking my pain meds over 2 weeks ago because it was making me too sleepy even though I would be pain free. I am dealing with the pain for now. I was diagnosed just with Pancreatitis and I am not sure if I have chronic. But, I am still hurting and it has been about a month or so ago since I was diagnosed with this. They kept me in the hospital for a day. I hurt so bad the day I went in. The made me NPO and fluids were going through me in my IV as well as morpine. The pain is not as severe as that first attack but, I am sick most days from nausia and pain. I am sure I am in no way as bad as many here in this group. Of course, I am probably getting started which makes me upset that I even got this in the first place. I am in my early twenties and I get scared I am never going to heal. I just wish that there was a way for me to be ok as well as everyone else here. Well, I am rambling too so I just wanted to say I am sorry for what you have been through and we are here to support you and welcome! Best to you! HUGS, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 Dear Andi, First I would like to welcome you! I am sorry for what you have gone through. My name is and I too am a parent of two small children so I understand about the pain management. I stopped taking my pain meds over 2 weeks ago because it was making me too sleepy even though I would be pain free. I am dealing with the pain for now. I was diagnosed just with Pancreatitis and I am not sure if I have chronic. But, I am still hurting and it has been about a month or so ago since I was diagnosed with this. They kept me in the hospital for a day. I hurt so bad the day I went in. The made me NPO and fluids were going through me in my IV as well as morpine. The pain is not as severe as that first attack but, I am sick most days from nausia and pain. I am sure I am in no way as bad as many here in this group. Of course, I am probably getting started which makes me upset that I even got this in the first place. I am in my early twenties and I get scared I am never going to heal. I just wish that there was a way for me to be ok as well as everyone else here. Well, I am rambling too so I just wanted to say I am sorry for what you have been through and we are here to support you and welcome! Best to you! HUGS, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 Andi, welcome to the group. I hope you find some of the answers you are looking for in this group. I know that anti-oxidant therapy is one alternative to the pain meds. check out this website on the antioxidants: http://www.jr2.ox.ac.uk/bandolier/band5/b5-4.html Also, a couple of the group use a TENS unit. Ask in a post and I'm sure they'll send an explanatory post on what that is. I'm in the process of trying the antioxidants, but I had to return part of the ones I purchased as they had an ingreadient in the binders I'm allergic to, so i have to find another brand. Note, you should use only organic antioxidant brands or PharmaNord's Antox formula (http://pharmanord.dk/). PharmaNord is the company who supplied the antioxidants for the study. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 Andi, welcome to the group. I hope you find some of the answers you are looking for in this group. I know that anti-oxidant therapy is one alternative to the pain meds. check out this website on the antioxidants: http://www.jr2.ox.ac.uk/bandolier/band5/b5-4.html Also, a couple of the group use a TENS unit. Ask in a post and I'm sure they'll send an explanatory post on what that is. I'm in the process of trying the antioxidants, but I had to return part of the ones I purchased as they had an ingreadient in the binders I'm allergic to, so i have to find another brand. Note, you should use only organic antioxidant brands or PharmaNord's Antox formula (http://pharmanord.dk/). PharmaNord is the company who supplied the antioxidants for the study. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 Hi! I just joined your group in hopes of finding information on helping my daughter " heal her gut " . My daughter is 10 years old and has High Functioning Autism. We have done things in the past such as TMG and enzymes (started enzymes again), and now feel she is old enough to start understanding that her diet is a very important part of her health. Her diet is still limited, but not to the extent that it used to be. I'm hoping to implement the diet in our entire family, as I'm sure we could all do a better job of taking care of ourselves. I'm anxious to start learning more and am off to read some of the message archives. Thanks for letting me join! ~Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 Hi Penny, Welcome to the list! I am so glad that your entire family will be doing SCD. When I first decided to do SCD,I was scared that my husband would get upset to do another diet. I was pleasantly surprised that it helped his reflux. He now tries to eat SCD even when he travels. I have read on other SCD lists about how the spouses of SCDers also benefit. Many are unaware that they have hidden GI problems and are delighted to see improvements in their energy levels. Some spouses report that their eczema and other problems vanish with SCD. Mimi Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.