Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hello, I would suggest you go see an opthomoligist about your eye condition if you haven't already. I had problems with my right eye for almost a year. I ended up taking Minocycline for 3 months for it and now that I have stopped it hasn't flared up again yet and it's been a few weeks without. It wouldn't hurt to take the doxycycline for a while to see if it helps. My eyes feel better then they have in years right now. I think the problem was developing in my eyes for a long time without my knowledge. I also take flax oil pills and they put moisture in my eyes from the inside I highly recommend it. You can find them at grocery stores and drug stores. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hello, I would suggest you go see an opthomoligist about your eye condition if you haven't already. I had problems with my right eye for almost a year. I ended up taking Minocycline for 3 months for it and now that I have stopped it hasn't flared up again yet and it's been a few weeks without. It wouldn't hurt to take the doxycycline for a while to see if it helps. My eyes feel better then they have in years right now. I think the problem was developing in my eyes for a long time without my knowledge. I also take flax oil pills and they put moisture in my eyes from the inside I highly recommend it. You can find them at grocery stores and drug stores. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hello, I would suggest you go see an opthomoligist about your eye condition if you haven't already. I had problems with my right eye for almost a year. I ended up taking Minocycline for 3 months for it and now that I have stopped it hasn't flared up again yet and it's been a few weeks without. It wouldn't hurt to take the doxycycline for a while to see if it helps. My eyes feel better then they have in years right now. I think the problem was developing in my eyes for a long time without my knowledge. I also take flax oil pills and they put moisture in my eyes from the inside I highly recommend it. You can find them at grocery stores and drug stores. Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Hello and welcome! Would you mind posting the ingredients for Liquimat? I found the website for the manufacturer (http://www.summerslab.com/Shop/acne/liquimat.asp), but they don't list the inactive ingredients. Thanks and good luck to you! - > I am a new member of the group, had symptons appear in late fall > 2000, and it has progressed rapidly to a fed mask face and pustules > and papules that are ever increasing. I am sure I have a combination > of cea and Seborrheic Dermatitis. I have gained much insight from > the group information, especially Dr. Nase, and hope I can help with > a small chronicle of my own as I have prioritized the control of this > disease. > I started with Tetracycline which worked for a short time and then > failed. I then moved to Doxycycl combined with Metrogel. This > really did not work, and the Metrogel was too drying. I am now off > the oral, and moved to a combination of washing with Plexion and > applying Noritate. In the last few days, I have started cea LTD- > III. I followed the cea LTD, and found that it has given me good > results in a short period of time, but they do not want you to use it > with anything else. I found that I had almost constant burning, and > went to applying Noritate which took the burning away in about an > hour. I am going to combine cea-LTD at night with Plexion wash > and Noritate in the morning. The last thing I use is a product > called Liquimat which is primarily sulfer but comes in skin tone and > I feel reallyhelps reduce papules and pustules as well as give the > complexion an acceptable public appearance. Also, I have an appt with > my Dermo to inquire about compound pharmacy for some of the Noritate > combinations of Dr. Nase's. Additionally, I have two consult app't > for Photoderm this week, and hope to get started on that treatment. > A good Dr. friend of mine recommended Dr. Weiss in Baltimore, > but I am wanting to see who is local first. > Last, a question. One of the photoderm groups actually use an > Epilight but assured me that they are changing out filters and making > different energy settings to treat cea. With these changes, Is > this as good as a straight Photoderm application? > > > I will keep the group updated as too my treatment and progress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Hello and welcome! Would you mind posting the ingredients for Liquimat? I found the website for the manufacturer (http://www.summerslab.com/Shop/acne/liquimat.asp), but they don't list the inactive ingredients. Thanks and good luck to you! - > I am a new member of the group, had symptons appear in late fall > 2000, and it has progressed rapidly to a fed mask face and pustules > and papules that are ever increasing. I am sure I have a combination > of cea and Seborrheic Dermatitis. I have gained much insight from > the group information, especially Dr. Nase, and hope I can help with > a small chronicle of my own as I have prioritized the control of this > disease. > I started with Tetracycline which worked for a short time and then > failed. I then moved to Doxycycl combined with Metrogel. This > really did not work, and the Metrogel was too drying. I am now off > the oral, and moved to a combination of washing with Plexion and > applying Noritate. In the last few days, I have started cea LTD- > III. I followed the cea LTD, and found that it has given me good > results in a short period of time, but they do not want you to use it > with anything else. I found that I had almost constant burning, and > went to applying Noritate which took the burning away in about an > hour. I am going to combine cea-LTD at night with Plexion wash > and Noritate in the morning. The last thing I use is a product > called Liquimat which is primarily sulfer but comes in skin tone and > I feel reallyhelps reduce papules and pustules as well as give the > complexion an acceptable public appearance. Also, I have an appt with > my Dermo to inquire about compound pharmacy for some of the Noritate > combinations of Dr. Nase's. Additionally, I have two consult app't > for Photoderm this week, and hope to get started on that treatment. > A good Dr. friend of mine recommended Dr. Weiss in Baltimore, > but I am wanting to see who is local first. > Last, a question. One of the photoderm groups actually use an > Epilight but assured me that they are changing out filters and making > different energy settings to treat cea. With these changes, Is > this as good as a straight Photoderm application? > > > I will keep the group updated as too my treatment and progress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Hello and welcome! Would you mind posting the ingredients for Liquimat? I found the website for the manufacturer (http://www.summerslab.com/Shop/acne/liquimat.asp), but they don't list the inactive ingredients. Thanks and good luck to you! - > I am a new member of the group, had symptons appear in late fall > 2000, and it has progressed rapidly to a fed mask face and pustules > and papules that are ever increasing. I am sure I have a combination > of cea and Seborrheic Dermatitis. I have gained much insight from > the group information, especially Dr. Nase, and hope I can help with > a small chronicle of my own as I have prioritized the control of this > disease. > I started with Tetracycline which worked for a short time and then > failed. I then moved to Doxycycl combined with Metrogel. This > really did not work, and the Metrogel was too drying. I am now off > the oral, and moved to a combination of washing with Plexion and > applying Noritate. In the last few days, I have started cea LTD- > III. I followed the cea LTD, and found that it has given me good > results in a short period of time, but they do not want you to use it > with anything else. I found that I had almost constant burning, and > went to applying Noritate which took the burning away in about an > hour. I am going to combine cea-LTD at night with Plexion wash > and Noritate in the morning. The last thing I use is a product > called Liquimat which is primarily sulfer but comes in skin tone and > I feel reallyhelps reduce papules and pustules as well as give the > complexion an acceptable public appearance. Also, I have an appt with > my Dermo to inquire about compound pharmacy for some of the Noritate > combinations of Dr. Nase's. Additionally, I have two consult app't > for Photoderm this week, and hope to get started on that treatment. > A good Dr. friend of mine recommended Dr. Weiss in Baltimore, > but I am wanting to see who is local first. > Last, a question. One of the photoderm groups actually use an > Epilight but assured me that they are changing out filters and making > different energy settings to treat cea. With these changes, Is > this as good as a straight Photoderm application? > > > I will keep the group updated as too my treatment and progress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 In a message dated 2/16/02 10:33:25 PM US Eastern Standard Time, mmadrona@... writes: > I am in Vermont and trying to find a doctor on the East coast who is good > with > Pancreatitis diagnosis. Hi Morgaine, Welcome to the PAI. At this time I believe there is a member by the name of E who lives in NY. I also know someone in Buffalo, NY who has a good GI. I will try and get a name to you. We don't have anyone else who is registered who lives in Vermont. So, it is nice to have you. Be sure and go to the poll and register where you live. Karyn KarynWms@... " >Karyn , RN/Founder/President http://www.pancassociation.org " >Pancreatitis Association International Phone 1- / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 My doctor is Dr. Schapiro in Boston, MA, who is affiliated with Harvard University and Mass. General Hospital. I think he's the greatest, and is just very interested in pancreatitis cases in general. I highly recommend him. He's a very busy man, so I'm not sure if he'll accept new patients, but he's fantastic. > > > > > Dear list, > I am new to the list. I suspect that I have chronic > pancreatitis, caused by the spastic closing of my pancreatic and > common bile ducts from auto immune disorder. This necessitated 3 > surgeries to open the ducts. I am in Vermont and trying to find a > doctor on the East coast who is good with pancreatitis > diagnosis. I have been told for years by the Vermont docs that > it was all in my head. I had to go to Boston and Pennsylvania for the > surgery. I am in constant pain, for 10 years now, much improved since I > went off of dietary gluten (celiac disease)? But have gotten weaker > and less able to function normally. I was told to go to a Dr > Gregg in the Boston area. he told me to get my records but I can > not-the hospital and doctors here have obviously labeled me a > " crazy' case and my records just never get sent no matter how > many times requested. I did have the MRI scan done he requested but I > dont know if he ever received the results. I wonder if anyone > knows of anyone else on the East coast or in New York City that is > really good as my husband works there. > > Thank you > Morgaine Madrona > Vermont > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Welcome! you're in the right place. You're not alone. You'll see that alot of us have been and are in the same boat. God Bless, ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 , You are totally welcome here. We are here to support each other and to offer education to each other and anyone else interested. I sincerely hope your son does not have CF but if he does know that we are all here for you. Reading your email brought back so many memories to me. My daughter , now 3 was diagnosed with CF about 1 1/2 years ago. July 27, 2000 at 4:00pm to be exact. It was a very bad day but we are doing ok and we will continue to do ok no matter what we get dealt with this disease. I was a nursing student when Allie was a baby. I may have been a little bit overcautious but I thought she had CF. Either that or Celiac Disease. I breast fed her so her poop was loose for a while but even after I weaned her, her poops were weird, she had some pneumonia, bronchitis, bronchiolitis, she was never hospitalized for any of it. I did the same thing and brought her in every time she sniffled. Celiac disease, if you are not familiar with it, is a gluten allergy, a protein found in most breads, grains, etc. That causes you to malabsorb your food, just like CF. It is easily treated by a gluten free diet. No shortened life expectancy involved. I remember crying at the thought that my baby would never be able to eat a cookie if she had that disease, Ha, how I wish it was that simple now. I put her on the Celiac gluten free diet but still no change in her poops. Finally, my denial wore off. I got pushy with her pediatrician and he sweat tested her which came back positive. So here we are. Allie has never had weight problems but she always chowed down. She was compensating, I think. I know you must be very worried about it. CF is a very scary thing when you are reading about it for the first time. So much information and most of it looks pretty bad. Then you look at you little baby and think.... NO, this can't be, not my baby! at least I did. But the truth of the matter is, those books can tell you data, and statistics but every kid is different. And reading statistics doesn't let you know the person at all. Some people are noncompliant with their care and die younger. I look at my little girl now, she is the same old kid, just with a nasty little aside problem called Cystic Fibrosis. I love her like crazy and we are fighting this disease every day. I am trying to give her a good sense of fight so she can live a long, full life. And at the end of this life of mine. I hope to look back and know that my kids had great lives, loved God, loved each other and the world they live in and we will all be together again in a land forever where there is no CF. :-) Keep your chin up!!! It's going to be okay, whether he has it or not. Love New member Buy Stock for $4. No Minimums. FREE Money 2002. http://us.click.yahoo.com/BgmYkB/VovDAA/ySSFAA/b0SolB/TM ---------------------------------------------------------------------~-> PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Welcome , no appology needed. :-) It certainly sounds like your son needs a definative diagnosis of some sort. I hope it isn't cf, but then again if it is then at least you will have your answer and can begin to get him as healthy as possible. Pattimae is our 14 month old with cf. She started out by sneezing continously, then came a terrible cough and then the battle to gain weight. What tests are they doing? Are they doing the sweat tests or the blood tests or both? Dawn mom of 4, 6 and under, the youngest wcf --- tcamp01@... wrote: > > Let me begin by making an apology. My child as of > yet > has not been diagnosed with cf. So if I am not > supposed > to be here, feel free to let me know. I have been > trying to research cf. It just makes me feel better > to > prepare for the worst. The doctors really aren't > sure > if they think he has it or not. Though there must > be > some suspicion or he wouldn't be getting these > tests. > He is just about 9 mo. He has had chest congestion > every day of his little life. He has already gotten > > tubes in his ears but they haven't helped. He has > had > pneumonia 2 x's, bronchitis once, and bronchiolitis > once. He has had many, many, many ear infections. > He > is usually sick with a fever every other week. I > take > him in all the time. He has never gotten so sick he > was > in the hospital, probably because I take him in so > much. > But it is so hard to tell if its the normal > congestion > he always has or if its something worse. He also > has > reflux. He is doing the specialist thing. He is > gaining weight fine though. That is the main reason > > they think he may not have cf. He also had terrible > > diapers until we tried pregestemil last month and > they > changed to near normal. He is having diahrea again > and > we are not sure if its the bug he has or the > formula. > Its a wait and see. I was told to try neocare next. > I > guess I am just looking, learning, and exploring. > Thank > you. > -- > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hi , welcome to the group! I would recommend that you refer your doc to the following site: http://www.ambrygen.com/cysticfibrosistest.htm For a few months now the test there is available and to me it is the test many of us have waited for. They check the blood of your child for almost all known mutations and the result is far better than the sweat test. A false positive is impossible and a false negative should be rare. It costs only 285$ and the result will be back within one month, maybe earlier. I think this is much better than fiddling around with sweat tests, the Genzyme test or whatever else the docs offer that may leave you in the dark for a long time. The uncertainty you have to go through is terrible and the earlier you have a diagnosis for your child the better. Good Luck! Peace Torsten, dad of Fiona 5wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 , Alot of children with Cf dont have any problem with weight especially at such a young age as your son. My 4 1/2 yr old has never had weight issues, she grows normally. New member > > Let me begin by making an apology. My child as of yet > has not been diagnosed with cf. So if I am not supposed > to be here, feel free to let me know. I have been > trying to research cf. It just makes me feel better to > prepare for the worst. The doctors really aren't sure > if they think he has it or not. Though there must be > some suspicion or he wouldn't be getting these tests. > He is just about 9 mo. He has had chest congestion > every day of his little life. He has already gotten > tubes in his ears but they haven't helped. He has had > pneumonia 2 x's, bronchitis once, and bronchiolitis > once. He has had many, many, many ear infections. He > is usually sick with a fever every other week. I take > him in all the time. He has never gotten so sick he was > in the hospital, probably because I take him in so much. > But it is so hard to tell if its the normal congestion > he always has or if its something worse. He also has > reflux. He is doing the specialist thing. He is > gaining weight fine though. That is the main reason > they think he may not have cf. He also had terrible > diapers until we tried pregestemil last month and they > changed to near normal. He is having diahrea again and > we are not sure if its the bug he has or the formula. > Its a wait and see. I was told to try neocare next. I > guess I am just looking, learning, and exploring. Thank > you. > -- > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Welcome, . We also have an uncertain diagnosis, really frustrating. My daughter has weight problems, frequent infections, asthma and one identified mutation. I wish they'd just phone and say no it isn't CF. In the meantime there is lots of support and answers on this list. Jane tcamp01@... wrote: > Let me begin by making an apology. My child as of yet > has not been diagnosed with cf. So if I am not supposed > to be here, feel free to let me know. I have been > trying to research cf. It just makes me feel better to > prepare for the worst. The doctors really aren't sure > if they think he has it or not. Though there must be > some suspicion or he wouldn't be getting these tests. > He is just about 9 mo. He has had chest congestion > every day of his little life. He has already gotten > tubes in his ears but they haven't helped. He has had > pneumonia 2 x's, bronchitis once, and bronchiolitis > once. He has had many, many, many ear infections. He > is usually sick with a fever every other week. I take > him in all the time. He has never gotten so sick he was > in the hospital, probably because I take him in so much. > But it is so hard to tell if its the normal congestion > he always has or if its something worse. He also has > reflux. He is doing the specialist thing. He is > gaining weight fine though. That is the main reason > they think he may not have cf. He also had terrible > diapers until we tried pregestemil last month and they > changed to near normal. He is having diahrea again and > we are not sure if its the bug he has or the formula. > Its a wait and see. I was told to try neocare next. I > guess I am just looking, learning, and exploring. Thank > you. > -- > > > > PLEASE do not post religious emails to the list. > > ------------------------------------------- > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 , No apology needed. You are welcome here whether you child has cf or not. This is a great group and you can learn a lot by reading all the posts. Also, there are some very good as well as very diverse treatments for cf kids. We hope and pray that your son has something simpler to treat but, these days cf is a lot more manageable than in the past to keep your child healthier. Welcome to the group. Aunt B ----------------- to Rodney 11 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 , You are more than welcome here, and I think, just my opinion here, but I think that being as prepared as possible is a good thing, and if it happens he doesnt have cf, then you have alot of info you can share with others to make them aware of it for those of us who have it in our families, and if he does have cf, then you already have a jump on it, so either way, we cant lose with you on our list. Take care, , mommy of 4, (17), and now a permitted driver, oh I am either getting old or just prematurely gray, Caleb (7) and still bossing the others around thinking he is the man of the house even though his daddy is home, (6) she is gonna be my artist and support her momma, since none of them are ever leaving home so they say, and (2 1/2) I believe he will be a baseball player, has the best throw of anyone I know, and I have the bruises to prove it, a big ole attitude, bright blue eyes and a devlish little grin, oh yeah, and he has CF. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 , welcome to the group. I hope you find these people as wonderful and caring as i have. I have learned alot more on pancreatitis from these people then any of my doctors have given me. Let us know more about you. What state are you in if you are in the US. If not in US, what country? Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 , welcome to the group. I hope you find these people as wonderful and caring as i have. I have learned alot more on pancreatitis from these people then any of my doctors have given me. Let us know more about you. What state are you in if you are in the US. If not in US, what country? Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Hello To Everyone In The Group, My name is Sonya and I have a daughter Elishia (16) we both live in South Australia and would love to chat with someone with the same problem as we have. As yet I never have met anyone out side of my family with chronic pancreatitis. I noticed that there is a message stating that there is a chat in the evenings, well I hope to log in around the correct time so that I can meet up with some of you. Looking Forward To Seeing You On-line Best Wishes Sonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Hello To Everyone In The Group, My name is Sonya and I have a daughter Elishia (16) we both live in South Australia and would love to chat with someone with the same problem as we have. As yet I never have met anyone out side of my family with chronic pancreatitis. I noticed that there is a message stating that there is a chat in the evenings, well I hope to log in around the correct time so that I can meet up with some of you. Looking Forward To Seeing You On-line Best Wishes Sonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Hello To Everyone In The Group, My name is Sonya and I have a daughter Elishia (16) we both live in South Australia and would love to chat with someone with the same problem as we have. As yet I never have met anyone out side of my family with chronic pancreatitis. I noticed that there is a message stating that there is a chat in the evenings, well I hope to log in around the correct time so that I can meet up with some of you. Looking Forward To Seeing You On-line Best Wishes Sonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 > Hi,I ran across this as I was doing some research. It looked like a > great idea so I joined. I am 22 years old and have had pancreatitis > for a long time. We think that my case is hereditary since my father > also has suffered from it. Right now I am doing good. I had surgery > up at the Mayo clinic in 1997 and have only had to be hospitalized > once since then. Have started to have pain bouts again more > frequently though so I will probably try to get in and see the doc > for a reevaluation. > My prayers are with all of you fellow pancreatitans. God bless you. > Hi , I wanted to welcome you to our group and tell you that this is a great place to come to air your feelings, ask questions and share your story with others who understand. Seeing your doctor for a reevaluation sounds like a good idea if you are starting to have more pain. It sounds as though the surgery done in 1997 was quite effective if you've only been in the hospital once since then....but checkups with your doctor help to keep things manageable, and it's good to know what's going on. Feel free to post whenever you have any comments or questions. With hope and prayers, Heidi in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 > Hi,I ran across this as I was doing some research. It looked like a > great idea so I joined. I am 22 years old and have had pancreatitis > for a long time. We think that my case is hereditary since my father > also has suffered from it. Right now I am doing good. I had surgery > up at the Mayo clinic in 1997 and have only had to be hospitalized > once since then. Have started to have pain bouts again more > frequently though so I will probably try to get in and see the doc > for a reevaluation. > My prayers are with all of you fellow pancreatitans. God bless you. > Hi , I wanted to welcome you to our group and tell you that this is a great place to come to air your feelings, ask questions and share your story with others who understand. Seeing your doctor for a reevaluation sounds like a good idea if you are starting to have more pain. It sounds as though the surgery done in 1997 was quite effective if you've only been in the hospital once since then....but checkups with your doctor help to keep things manageable, and it's good to know what's going on. Feel free to post whenever you have any comments or questions. With hope and prayers, Heidi in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 > Hi,I ran across this as I was doing some research. It looked like a > great idea so I joined. I am 22 years old and have had pancreatitis > for a long time. We think that my case is hereditary since my father > also has suffered from it. Right now I am doing good. I had surgery > up at the Mayo clinic in 1997 and have only had to be hospitalized > once since then. Have started to have pain bouts again more > frequently though so I will probably try to get in and see the doc > for a reevaluation. > My prayers are with all of you fellow pancreatitans. God bless you. > Hi , I wanted to welcome you to our group and tell you that this is a great place to come to air your feelings, ask questions and share your story with others who understand. Seeing your doctor for a reevaluation sounds like a good idea if you are starting to have more pain. It sounds as though the surgery done in 1997 was quite effective if you've only been in the hospital once since then....but checkups with your doctor help to keep things manageable, and it's good to know what's going on. Feel free to post whenever you have any comments or questions. With hope and prayers, Heidi in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2002 Report Share Posted March 31, 2002 Sonya, nice to meet you and your daughter. I have chronic pancreatitis from a pancreatic divisum (divided duct). I hope you find this group as welcoming and wonderful as I have. Anytime you want to say something, whether to vent, scream or just say hi, please do so, or even to reply to a post sent to someone else - just jump right in. We all do so. Tell us more about yourself and your daughter. Do you have hereditary pancreatitis? I think we have at least a few members with hereditary pancreatitis. We also have a couple of other members from Australia. Kimber -- Kimber hominid2@... California State Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
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