home from the hospital / what a trip!

[Guest guest]

Hi everyone,

Princess Adrielle and I are now home from the hospital. Actually, we

came home late in the day on Fri. 11/5. I wanted to check in with

you all sooner, but it has been busy here as you all can imagine

with starting the diet and other life stuff.

Our hospital visit was absolutely horrible! It was the worst week I

have ever had with my little princess. She ended up getting the flu

and was vomitting for almost 2 days. She couldn't even keep down

2cc of water. She lost 6 pounds, looked horrible and was incredibly

weak. Believe me when I tell you that she didn't have 6 pounds to

lose. She is somewhat tall for her age but very slender. Her eyes

were dark and sunken into her head, you could count every rib, every

bump in her spine, her shoulder blades were clearly defined and her

little tummy was sunk in too. The image in my mind is still very

clear and if I think on it to long I begin to cry.

Lets move on..... our dietician..... not great. The only thing she

taught me was how to calculate meals, period. Reading " the book " is

required before you enter the hospital and now I know why, she

doesn't plan on teaching you anything while you are there. I asked

as many questions as I could, but with " A " being in the condition

she was and getting very little sleep, I could barely think

straight! I thought she would at least cover the basics if nothing

else. Wrong, wrong wrong. She had a very " hands off " approach the

entire time we were there and she definitely doesn't follow a strict

Hopkins protocol. The hospital itself is poorly set up for

beginning the diet. They say they have a keto team but it is

obvious that they do not communicate well.... the right hand has no

idea what the left hand is doing. The kitchen staff has no training

in the diet other than knowing how to weigh the food. Therefore,

they substitute items because they don't know they can't. We

calculated for regular non-sweet applesauce for lunch/dinner...

sometimes it was regular(w/sugar)applesauce, sometimes baby food

applesauce.... big difference! One day we didn't get breakfast

until lunch time!!!!!!!!!!!!!!!

Well, amazingly enough we successfully started the diet in spite of

everything. I couldn't wait to get home so I could get things in

order myself. I knew I had all of you to turn to with questions and

for support. Sorry if I rambled a bit but you are the only people I

have to talk to who can truly understand my frustrations.

So now on a good note...... Princess Adrielle has not had one

seizure since beginning the diet!!! Wha-hoo!! Most days we were

seeing around 50-60 per day so you can imagine my joy! She is still

a little weak and of course tired, but she is recovering well. I

know I have questions, but I'll have to save them for later. It's

time for her royal highness to have breakfast!

Love to all,

& Princess Adrielle, keto-kid & seizure free since 11/5!!!