Re: Suggestions needed!!!!

[Guest guest]

,

Is also drinking more fluids now in addition to the lowered

ratio? If you can get her to drink more, I would try that first. If

she's not drinking enough, her urine will be concentrated and might

give falsely high values for ketones. However, if she's not feeling

well, her ketones probably are too high for her.

My next thought would be to consider increasing her calories. How

has her weight been since she's been on the diet? What about

height? If she's not gained much weight and her calories are too

low, she might be burning her own body fat, which will increase

ketosis. If she's pretty active physically, that may call for a

small calorie increase too. Is she hungry (not " starving " but ready

to eat) at mealtimes? If not, that would be another indication that

her calories may be too low. How much protein is she getting per

day? Has she had any lab tests done recently? I can't remember if

you have a keto team to work with or if you are doing the diet on

your own. If you have a team, do they have any suggestions?

Cammie

>

> Hi!

>

> I need some suggestions! My daughter was on a 2.5:1 ratio and her

> ketones were getting consistently too high and would keep her awake

> at nights. They would start low in the morning and build all day

and

> she would have too high by nightime. Made her very irritable and

> uncomfortable. Multistix would turn dark immediately. Just

plainly

> too high.

>

> So..... last week I lowered the ratio to 2:1 and we are having the

> same problems, again! Seemed better for the first few days she was

> on the lower ratio, but she is back to super high ketones at night

> and cannot sleep because of them. They are too high.

>

> I know from past experience to give her apple juice to get them

down

> temporarily, but this is not a permanent " fix. " Does anyone have

any

> idea what might be going on? Should I stick it out for the two

week

> settling in period before lowering the ratio again? Seizure wise

she

> is doing well. Only one seizure this month; one last month.

>

> With almost everyone upping their ratios for better control, it

seems

> odd that I am having to continually be lowering hers.

>

> The only other person I have heard of at such low ratios..even

> lower.. is Rhonda's daughter, Shan.

>

> I NEED SOME SUGGESTIONS. Am I missing something???? She goes

crazy

> with these high ketones. They are really miserable when they go

too

> high, and I don't want her seizuring so it is back to the apple

juice!

>

> Thanks. ...'s mumma (keto kid since May 04... gone down

> from a 4:1 to 2:1 and still with crazy high ketones!)

[Guest guest]

Hello

Did you get my message about giving the fruit as a corrective measure? I do not

know

if this is a dietician-approved thing. This is from a mum whose daughter is

seizure

free and in every other way apparently a healthy child. She produces ketones

like

there is no tomorrow and this seems to be the answer for them. We're UK and I

have a

feeling that might be too random for you US people! I think it works if the

child is not

too hypersensitive. I wouldn't want to keep giving fruit juice because it's too

drastic. I

think when we settle down post-drug-wean we will end up having to do something

similar ourselves because we also produce ketones very easily.

Take care

Rose

[Guest guest]

You have a problem that most of us would love to have instead of the

opposite, too low ketones.

I would not make any BIG changes. You are doing very well, I would say.

If you lower the ratio, do it in small steps, 0.3 or less. And yes, wait

for 2 or 3 weeks between any changes. It can easily take that long for

the body to adjust. Stick with the apple juice; treat the symptoms. That

is more important than what the keto sticks say. They are reinforcing

your observations of symptoms of high ketones.

It could be that your daughter simply is more adept at producing high

ketones. It may be that you are using the right sources of fat. What are

they? Are you using any medications? Some of them can affect the

ketones. Maybe there are mistakes in the menus and you are actually at a

higher ratio. Or other causes.

Be happy that things are going so well for you!

Bill

frumpymumma wrote:

>

> Hi!

>

> I need some suggestions! My daughter was on a 2.5:1 ratio and her

> ketones were getting consistently too high and would keep her awake

> at nights. They would start low in the morning and build all day and

> she would have too high by nightime. Made her very irritable and

> uncomfortable. Multistix would turn dark immediately. Just plainly

> too high.

>

> So..... last week I lowered the ratio to 2:1 and we are having the

> same problems, again! Seemed better for the first few days she was

> on the lower ratio, but she is back to super high ketones at night

> and cannot sleep because of them. They are too high.

>

> I know from past experience to give her apple juice to get them down

> temporarily, but this is not a permanent " fix. " Does anyone have any

> idea what might be going on? Should I stick it out for the two week

> settling in period before lowering the ratio again? Seizure wise she

> is doing well. Only one seizure this month; one last month.

>

> With almost everyone upping their ratios for better control, it seems

> odd that I am having to continually be lowering hers.

>

> The only other person I have heard of at such low ratios..even

> lower.. is Rhonda's daughter, Shan.

>

> I NEED SOME SUGGESTIONS. Am I missing something???? She goes crazy

> with these high ketones. They are really miserable when they go too

> high, and I don't want her seizuring so it is back to the apple juice!

>

> Thanks. ...'s mumma (keto kid since May 04... gone down

> from a 4:1 to 2:1 and still with crazy high ketones!)

>

>

>

>

>

>

[Guest guest]

You have a problem that most of us would love to have instead of the

opposite, too low ketones.

I would not make any BIG changes. You are doing very well, I would say.

If you lower the ratio, do it in small steps, 0.3 or less. And yes, wait

for 2 or 3 weeks between any changes. It can easily take that long for

the body to adjust. Stick with the apple juice; treat the symptoms. That

is more important than what the keto sticks say. They are reinforcing

your observations of symptoms of high ketones.

It could be that your daughter simply is more adept at producing high

ketones. It may be that you are using the right sources of fat. What are

they? Are you using any medications? Some of them can affect the

ketones. Maybe there are mistakes in the menus and you are actually at a

higher ratio. Or other causes.

Be happy that things are going so well for you!

Bill

frumpymumma wrote:

>

> Hi!

>

> I need some suggestions! My daughter was on a 2.5:1 ratio and her

> ketones were getting consistently too high and would keep her awake

> at nights. They would start low in the morning and build all day and

> she would have too high by nightime. Made her very irritable and

> uncomfortable. Multistix would turn dark immediately. Just plainly

> too high.

>

> So..... last week I lowered the ratio to 2:1 and we are having the

> same problems, again! Seemed better for the first few days she was

> on the lower ratio, but she is back to super high ketones at night

> and cannot sleep because of them. They are too high.

>

> I know from past experience to give her apple juice to get them down

> temporarily, but this is not a permanent " fix. " Does anyone have any

> idea what might be going on? Should I stick it out for the two week

> settling in period before lowering the ratio again? Seizure wise she

> is doing well. Only one seizure this month; one last month.

>

> With almost everyone upping their ratios for better control, it seems

> odd that I am having to continually be lowering hers.

>

> The only other person I have heard of at such low ratios..even

> lower.. is Rhonda's daughter, Shan.

>

> I NEED SOME SUGGESTIONS. Am I missing something???? She goes crazy

> with these high ketones. They are really miserable when they go too

> high, and I don't want her seizuring so it is back to the apple juice!

>

> Thanks. ...'s mumma (keto kid since May 04... gone down

> from a 4:1 to 2:1 and still with crazy high ketones!)

>

>

>

>

>

>

[Guest guest]

You have a problem that most of us would love to have instead of the

opposite, too low ketones.

I would not make any BIG changes. You are doing very well, I would say.

If you lower the ratio, do it in small steps, 0.3 or less. And yes, wait

for 2 or 3 weeks between any changes. It can easily take that long for

the body to adjust. Stick with the apple juice; treat the symptoms. That

is more important than what the keto sticks say. They are reinforcing

your observations of symptoms of high ketones.

It could be that your daughter simply is more adept at producing high

ketones. It may be that you are using the right sources of fat. What are

they? Are you using any medications? Some of them can affect the

ketones. Maybe there are mistakes in the menus and you are actually at a

higher ratio. Or other causes.

Be happy that things are going so well for you!

Bill

frumpymumma wrote:

>

> Hi!

>

> I need some suggestions! My daughter was on a 2.5:1 ratio and her

> ketones were getting consistently too high and would keep her awake

> at nights. They would start low in the morning and build all day and

> she would have too high by nightime. Made her very irritable and

> uncomfortable. Multistix would turn dark immediately. Just plainly

> too high.

>

> So..... last week I lowered the ratio to 2:1 and we are having the

> same problems, again! Seemed better for the first few days she was

> on the lower ratio, but she is back to super high ketones at night

> and cannot sleep because of them. They are too high.

>

> I know from past experience to give her apple juice to get them down

> temporarily, but this is not a permanent " fix. " Does anyone have any

> idea what might be going on? Should I stick it out for the two week

> settling in period before lowering the ratio again? Seizure wise she

> is doing well. Only one seizure this month; one last month.

>

> With almost everyone upping their ratios for better control, it seems

> odd that I am having to continually be lowering hers.

>

> The only other person I have heard of at such low ratios..even

> lower.. is Rhonda's daughter, Shan.

>

> I NEED SOME SUGGESTIONS. Am I missing something???? She goes crazy

> with these high ketones. They are really miserable when they go too

> high, and I don't want her seizuring so it is back to the apple juice!

>

> Thanks. ...'s mumma (keto kid since May 04... gone down

> from a 4:1 to 2:1 and still with crazy high ketones!)

>

>

>

>

>

>