Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Mitzie I am sorry for your pain and suffering, my son is 10 and has chiari...it is a long hard fight as everyone on this group knows. My son is 4-5 mm which isnt really considered chiari to a neruologist or a regular pcp that doesnt know anything about chiari. but my son has had problems since the age of about 3. finally his grandmother found out she had chiari and then thats when we began wondering and after test and fights with dr's all three of my kids have it as well as my husband. my son is the only one that has gone for surgery so far other then his grandmother. and just know that you are going to a wonderful dr. he did her surgery and did a wonderful job. his partner who is Dr. Jimenez did kylers and he is such a wonderful dr also. I will keep you in my prayers and wish you luck!! I feel that you will get answers when you see Dr. Oro hugs and prayers angie mitziekennedy wrote: Hi! My name is Mitzie and I am 28. I found out a month or so ago that I have chiari. I live outside Oklahoma City. The neurosurgen told me they couldn't do anything for me at this time. He told me to go back to my neurologist, neurologist said he couldn't do anything and told me to goto my family doctor for pain meds (he can say chiari he just spells it to me). I have been sick for about 10 years. None of my doctors have told me anything chiari. What I have learned has been from the web. I just got a copy of my MRI and report today. I am 5mm on right side and 2mm on the left. Ok to my question... Is 5mm bad? I can't seem to find out what is an okay range. The report says I am only borderline chiari. What is borderline and what is not? Thank you for any help. I will be attending the conferance this weekend. I have an appointment to see Dr. Oro in November. I hope this weekend I can get some questions answered because no doctor in Oklahoma seems to know anything. Thank You, Mitzie in OK Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
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