clonazepam and diet to commence

[Guest guest]

Hi All

Im not sure I'll want to hear your answers to this but I'll ask

anyway.

Harry is on 0.4mg clonazepam twice a day 9and not too well on it). we

are due to start the mct version of the keto diet 2nd August..I'm

nervous we might have probs (MCT version). Is there anybody out there

that has experienced this? Any probs or tips?

a

[Guest guest]

Hi!

My son, Jimmy, is NOT on the MCT oil version of the diet, however, he

does take Clonazepam (Klonopin). He has Lennox Gastaut Seizure

Disorder and was experienceing over 100 seizures per day prior to the

initiation of the diet. He was on six meds, but now is taking only

the one (Clonazepam!). Because you have to switch to non-

carbohydrate versions of meds whenever possible, if your child is on

a pharmacy-made liquid version of Clonazepam like my son was, you'll

have to switch him to the wafer. It dissolves instantly on the

tongue. Jimmy is 2 1/2 years old, and takes 1 wafer 2 times per

day. Aside from when he is sick or teething, he is seizure-free now.

He is on a liquid version of the diet because he cannot chew solid

foods well (he is multiply-disabled).

Don't worry! If you give the diet a good try (I would say 4-6

months) without much success, then maybe you would want to switch to

the old-fashioned non-MCT version to see if it makes a difference.

Maybe you'll be fortunate like we were and see the difference

(seizure-free!) before you even leave the hospital!!!!

GOod luck!

Sue Ellen:)

> Hi All

>

> Im not sure I'll want to hear your answers to this but I'll ask

> anyway.

>

> Harry is on 0.4mg clonazepam twice a day 9and not too well on it).

we

> are due to start the mct version of the keto diet 2nd August..I'm

> nervous we might have probs (MCT version). Is there anybody out

there

> that has experienced this? Any probs or tips?

>

> a

[Guest guest]

Hi!

My son, Jimmy, is NOT on the MCT oil version of the diet, however, he

does take Clonazepam (Klonopin). He has Lennox Gastaut Seizure

Disorder and was experienceing over 100 seizures per day prior to the

initiation of the diet. He was on six meds, but now is taking only

the one (Clonazepam!). Because you have to switch to non-

carbohydrate versions of meds whenever possible, if your child is on

a pharmacy-made liquid version of Clonazepam like my son was, you'll

have to switch him to the wafer. It dissolves instantly on the

tongue. Jimmy is 2 1/2 years old, and takes 1 wafer 2 times per

day. Aside from when he is sick or teething, he is seizure-free now.

He is on a liquid version of the diet because he cannot chew solid

foods well (he is multiply-disabled).

Don't worry! If you give the diet a good try (I would say 4-6

months) without much success, then maybe you would want to switch to

the old-fashioned non-MCT version to see if it makes a difference.

Maybe you'll be fortunate like we were and see the difference

(seizure-free!) before you even leave the hospital!!!!

GOod luck!

Sue Ellen:)

> Hi All

>

> Im not sure I'll want to hear your answers to this but I'll ask

> anyway.

>

> Harry is on 0.4mg clonazepam twice a day 9and not too well on it).

we

> are due to start the mct version of the keto diet 2nd August..I'm

> nervous we might have probs (MCT version). Is there anybody out

there

> that has experienced this? Any probs or tips?

>

> a

[Guest guest]

Hi!

My son, Jimmy, is NOT on the MCT oil version of the diet, however, he

does take Clonazepam (Klonopin). He has Lennox Gastaut Seizure

Disorder and was experienceing over 100 seizures per day prior to the

initiation of the diet. He was on six meds, but now is taking only

the one (Clonazepam!). Because you have to switch to non-

carbohydrate versions of meds whenever possible, if your child is on

a pharmacy-made liquid version of Clonazepam like my son was, you'll

have to switch him to the wafer. It dissolves instantly on the

tongue. Jimmy is 2 1/2 years old, and takes 1 wafer 2 times per

day. Aside from when he is sick or teething, he is seizure-free now.

He is on a liquid version of the diet because he cannot chew solid

foods well (he is multiply-disabled).

Don't worry! If you give the diet a good try (I would say 4-6

months) without much success, then maybe you would want to switch to

the old-fashioned non-MCT version to see if it makes a difference.

Maybe you'll be fortunate like we were and see the difference

(seizure-free!) before you even leave the hospital!!!!

GOod luck!

Sue Ellen:)

> Hi All

>

> Im not sure I'll want to hear your answers to this but I'll ask

> anyway.

>

> Harry is on 0.4mg clonazepam twice a day 9and not too well on it).

we

> are due to start the mct version of the keto diet 2nd August..I'm

> nervous we might have probs (MCT version). Is there anybody out

there

> that has experienced this? Any probs or tips?

>

> a

[Guest guest]

Hi Sue Ellen

It sounds like the diet has been a real bonus to your son Jimmy!!

Just one med now instead of 6!! Thanks for the tip re the clonazepam

wafer.

Would you know what dose is in each wafer and who the manufacturer's

are?

Harry was diagnosed with myoclonic astatic epilepsy earlier this

year. He has tried 5 medications now..none of which have really

helped. Hope keto is our answer..at least for a while...

Wishing you all the very best,

paulax

> > Hi All

> >

> > Im not sure I'll want to hear your answers to this but I'll ask

> > anyway.

> >

> > Harry is on 0.4mg clonazepam twice a day 9and not too well on

it).

> we

> > are due to start the mct version of the keto diet 2nd August..I'm

> > nervous we might have probs (MCT version). Is there anybody out

> there

> > that has experienced this? Any probs or tips?

> >

> > a

[Guest guest]

Klonopin Wafers (Clonazepam Orally-Disintegrating Tablets)

have .125mg each. They are manufactured by Roche Laboratories. They

are about the size of a dime. They literally dissolve instantly, and

have no taste!

I have found that the Clonazepam helps with Jimmy's clonus

(continuous trembling of legs). I am also convinced that it helps

Jimmy's spasticity, as well. I once ran out and went one day without

the wafer, and the seizures did come back.

I really believe each med has a very different result in each child,

and there is no " blanket " med cure that works the same in each case,

even if the diagnoses are the same. The diet has been life-changing

for us! I hope you find the same success, and please keep me posted!

-Sue Ellen:)

> > > Hi All

> > >

> > > Im not sure I'll want to hear your answers to this but I'll ask

> > > anyway.

> > >

> > > Harry is on 0.4mg clonazepam twice a day 9and not too well on

> it).

> > we

> > > are due to start the mct version of the keto diet 2nd

August..I'm

> > > nervous we might have probs (MCT version). Is there anybody out

> > there

> > > that has experienced this? Any probs or tips?

> > >

> > > a