Return Visit to Duke............

[Guest guest]

Evening to All,

Went back to see the Dr at Duke today and to get my mri results. This is

what the Dr said:

You have a very mild form of ACM, only a 3-4mm herniation, with minimal csf

flow blockage, postierially. (sp???)

Surgery is not optional, in my opinion-he said,and will need to check " it "

again in year to see if anything has changed, and I will have to deal with

my symptoms.

He does not know where any of my symptoms are coming from, other than

possibably: Spasmotic Torticollis, which he is recommending that I take

Botox injections and is referring me to another Dr there at Duke for this. I

mentioned to him that IF he had recommended surgery that I would have asked

for a referral to NY to North Shore and Dr Milhorant.

Boy I might as well have reached over and slapped him, he said, well if you

want to keep going from Dr to Dr until you find one that wants to do this

unnecessary surgery, go for it...and as far at Milhorant and North Shore is

concerned, they are not as good as you think, even said that North Shore

wasn;t even rated in the top 50 hospitals in the US!!!!!! and I won't even

get into what he said about Dr Rosner, but he did call him a quack!!!!! He

said if you were my sister, I would tell you the very same thing.... He said

that if you want, I could refer you for a function test, so they can torture

for 2 days, to see what level you can function at.

I told him that trying to find a Dr that wants to cut into my spinal cord

AND my brain was not the reason behind me going to him or any other of the

drs I have seen. I was only trying to find a DR that knows enough about

SM/ACM to be able to treat it... He did not want to hear anything I had to

say, just sit there like a nice patient and let the big bad dr on the

pedistal tell you what and how you need to do!!!! Well I think I have a new

nickname for him: " AFLAC " and Oh by the way I found out that he is a

NEUROSURGEN, NOT and neurologist. He did write a note that if I decided on a

2nd opionion, that he would refer me to North Shore....

So I am at a loss as to what to do. He did agree with the DR I was seeing in

Greensboro about the 8 hour shifts, but anything else-forget it big

time....

Let me ask a question please, lying down of course the herniation would not

show up as bad as compared to a standing/sitting position...right? Is ther

any test that determine that???? I was so upset, that I didn't even tell him

about the " irritable bowel I have almost everyday...

Well have better bring this to a close, as I have already taken my

meds and they are kicking in big time... Any and all responses would be

imendially helpful....

I would like to have more than 1 reply, it seems lately that certain ones

get multiple replys...but I only get 1 or 2 to any messages I have posted

recently...All suggestions and etc....wuld be greatly appreciated...........

Gosh my meds certainly kicked in in a hurry...so here's:

Wishing you easy days and mellow nites...

Terry B in NC

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