Re: Re: Thank you ,very bad night and a question.

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Make sure that your child is well hydrated. It helps with temperature

control. We had problems with poor hydration and temperature control. It

may also have had to do with poor eletrolytes from vomiting and diarrhea!

Bill

natashagainford wrote:

>

> Hi Kaz

> This story is very familiar to me.ph's first seizures were

> thought to be " febrile " as he only fitted with fever in early days

> of his epilepsy.He has been admitted to hospital 100s times with

> fever and seizures and no known cause for fevers.Later when I joined

> SMEI group I found out it is quite common among kids with SMEI.I

> think maybe we notice fever because of seizures because in our case

> fever does not have to be very high to bring on a seizure.On the

> other hand it is quite common for SMEI kids to have 'febrile'

> seizures during first year of life.Usually such young kids do not

> have friequent fevers ,so I think fever ( in our case) is a part of

> seizure disorder what means that body " thermostat " (which is

> hypothalamus (sp) I believe) does not work properly.Seizure can

> raise body temperature but we have never seen high fever because of

> seizure, just a bit elevated.In our case fever always comes first(

> for no known reason).So body thermostat is something to think

> about.it gets better than kids grow older

>

> Natasha,mom to 2 years old ph,suspected SMEI/Dravet's

> syndrome,keto kid simc August 23d 2004

>

>

>

>>

>>Just wanted to say thanks to , and Lloyd, Bill Barber

>>and Koch for completing the survey today.

>>

>>Much appreciated xxxx

>>

>>Had a very bad night with our son Jermaine last night.

>>He got an extremley high temperature and of course started having

>>siezures continuosously.

>>They came in the form of constant twitching and just being

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> completley

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>>not with it or aware.

>>

>>My question is with Jermaine i know that siezures can bring his

>>temperature up, so we do not know if he is fitting due to the temp

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> or

>

>>the temp is due to the fitting although he has never had a temp

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> quite

>

>>as high as last night before.

>>We have though had many occasions where his temp rises very high,

>

> hes

>

>>fitting and once he stops it returns to normal with no other

>

> illness

>

>>or infection the cause......

>>

>>Do others experience this?

>>

>>I do not know how long J was having siezures last night before we

>>came down as they were not noisy like he usually is but today

>

> hehas

>

>>been fine with no signs of any illness etc.....

>>

>>Any feedback much appreciated.

>>

>>Kaz

>>xxx

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