Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 How do you check/measure ammonia levels? My daughter has been on the diet with only partial control for almost two years and I have never checked anything other than ketone levels with a dip stick. ________________________________ From: lmvassil Sent: Thursday, November 11, 2004 6:36 PM To: ketogenic Subject: Re: Sleeping seizures > > Hi everyone, > > It's been a while since I've posted because Jake's doctor has decided > to wait on the diet since we're having quite a bit of control of his > t/c seizures right now. Although, the only time he has the seizures > are when/if he takes a nap during the afternoon. Then he's only have > seizures if he is really tired. Is this common? We're not seeing any > seizure activity while he's awake. THANK GOD!!! We've actually > Our daughter is also only having seizures when asleep. She is on depakote and now on the diet for almost a month. She only has seizures when asleep. i was told that upon falling asleep or just before waking your seizure threshold is at its lowest. Sleep seizures are the last to control. Hope this helps. lowered his Depakote recently because his ammonia levels were coming > back elevated. It seens that since we've lowered that particular med, > the seizures have subsided (knock on wood). I would love to go lower > but we're sooo afraid to do that. I would love anyone's input on this > type of sleeping seizure. > > I've been reading all of the different posts from everyone and I just > wanted to let each and everyone one of you that I continue to hope and > pray that you all get the results you want and need. > > Take care and if I dont' hear from anyone I hope you all have a > wonderful Thanksgiving!! > > > Jake's mom ~ Age 7 and holding off on the diet for now " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 We measure it with a blood draw. Barb Swoyer, Jake's mom Re: Sleeping seizures > > > > > > > > > Hi everyone, > > > > It's been a while since I've posted because Jake's doctor has > decided > > to wait on the diet since we're having quite a bit of control of his > > t/c seizures right now. Although, the only time he has the seizures > > are when/if he takes a nap during the afternoon. Then he's only > have > > seizures if he is really tired. Is this common? We're not seeing > any > > seizure activity while he's awake. THANK GOD!!! We've actually > > Our daughter is also only having seizures when asleep. She is on > depakote and now on the diet for almost a month. She only has > seizures when asleep. i was told that upon falling asleep or just > before waking your seizure threshold is at its lowest. Sleep seizures > are the last to control. Hope this helps. lowered his Depakote > recently because his ammonia levels were coming > > back elevated. It seens that since we've lowered that particular > med, > > the seizures have subsided (knock on wood). I would love to go > lower > > but we're sooo afraid to do that. I would love anyone's input on > this > > type of sleeping seizure. > > > > I've been reading all of the different posts from everyone and I > just > > wanted to let each and everyone one of you that I continue to hope > and > > pray that you all get the results you want and need. > > > > Take care and if I dont' hear from anyone I hope you all have a > > wonderful Thanksgiving!! > > > > > > Jake's mom ~ Age 7 and holding off on the diet for now > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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