Re: Newbie intro and questions (long)

[Guest guest]

,

your son sounds just like my son. My son (Logan) is six and also responds

well to the Kaufman cards. We just started them six weeks ago and he is taking

off with it, but not without prompting.

He was not saying anything except a few words before we learned about his

apraxia and then started with a new speech program.

Please feel free to e-mail me and maybe we can pick each other's brain.

Jule

mom to twins

Olivia and Logan _DJVirtual@..._ (mailto:DJVirtual@...)

[Guest guest]

,

You sound like me! I have two adult kids, one who is 13 and a new

little surprise of my own with evolving issues!

Have you ever taken your son to a neurologist for a full workup and

eval? Has anyone ever mentiond Landau-Kleffner disorder to you?

This is just the first thing that occurred to me, but just a

thought...

What is Landau-Kleffner Syndrome?

Landau-Kleffner syndrome (LKS) is a rare, childhood neurological

disorder characterized by the sudden or gradual development of

aphasia (the inability to understand or express language) and an

abnormal electro-encephalogram (EEG). LKS affects the parts of the

brain that control comprehension and speech. The disorder usually

occurs in children between the ages of 5 and 7 years. Typically,

children with LKS develop normally but then lose their language

skills for no apparent reason. While many of the affected individuals

have seizures, some do not.

Brigett

>

> Hi All,

>

> I thought I knew of all the good boards but I obviously didn't

> because this is a great one and particularly for me because Apraxia

> is our biggest issue.

>

> Quick intro: We have a 7 year old who had perfectly clear language

> and normal social/cognitive processing but large motor delays and

> low tone until 21 months when he regressed and lost all ability to

> articulate except the occcasional clear word and phrase and whose

> processing and sensory systems went haywire. Did not get an ASD

> diagnosis until age 5, probably a combination of denial and the

fact

> that he is social and sweet with good eye contact but he really is

> very ASD but more than that he is a classic apraxic in that he

> gropes for words, some days words are easily said and fairly clear

> and the next day he can barely make an approximation. Before

Biomed

> intervention he would not really imitate on a consistent basis and

> his vocabulary was fairly limited. After 18 months of biomed he

> will imitate any word and knows the meaning (has good receptive

> language) has tons of vocabulary that is spontaneous and prompted

> and on good days puts 3 word phrases together. However, he is so

> inconsistent that I feel like we must be missing something. Right

> now everything that comes out of his mouth is so unintelligible I

> could cry. Last week he would say " piano " pretty darn well and

this

> week it is " peepaa " .

>

> If you all are kind enough to have read so far may I tell you his

> therapies and see if you think we are missing something? I would

> also love to know if you all think that VB therapy is

> counterproductive for apraxia, which I am beginning to think our 9

> hours a week of VB may be contributing to his artic issues.

>

> We are doing 1.5 hours of PROMPT a week. Have done PROMPT for

years

> but have had a 6 month break from it for various reasons and have

> really missed it. I practice KAUFMAN cards with him several times a

> week and he nails most of the sounds in the first half of the set

> but when he uses them in every day speech they break down. 2 hours

> of regular speech therapy with SLP who doesn't do prompt. 2 hours

> of Floortime. 6 hours of SMI motor planning school. 9 hours of VB

> therapy in a center based school and then lots of RDI, hang out

with

> Mom therapy. Our one year in the public school was a bust. Their

> goal for him was to label something in his classroom 4 times a

> week. They knew NOTHING about Apraxia.

>

> Is there some consensus on the list as the best way to get these

> kids talking in phrases and then sentences? Maybe this part of my

> son's problem is more than just motor planning.

>

> I am very excited about what I learned on this list about Fish oils

> and VItamin E. I have done CLO through the years and some 3-6-9

but

> not the protocols you all are having success with. PLan to start

> that this weekend.

>

> Thanks for reading; any advice, suggestions appreciated.

>

> Kind Regards,

> (mom to 2 in college, 1 in HS and our little surprise with

> Apraxia)!

>

[Guest guest]

,

your son sounds just like my son. My son (Logan) is six and also responds

well to the Kaufman cards. We just started them six weeks ago and he is taking

off with it, but not without prompting.

He was not saying anything except a few words before we learned about his

apraxia and then started with a new speech program.

Please feel free to e-mail me and maybe we can pick each other's brain.

Jule

mom to twins

Olivia and Logan _DJVirtual@..._ (mailto:DJVirtual@...)

[Guest guest]

the more i read the more crazy i get.

qboomom <qboomom@...> wrote: ,

You sound like me! I have two adult kids, one who is 13 and a new

little surprise of my own with evolving issues!

Have you ever taken your son to a neurologist for a full workup and

eval? Has anyone ever mentiond Landau-Kleffner disorder to you?

This is just the first thing that occurred to me, but just a

thought...

What is Landau-Kleffner Syndrome?

Landau-Kleffner syndrome (LKS) is a rare, childhood neurological

disorder characterized by the sudden or gradual development of

aphasia (the inability to understand or express language) and an

abnormal electro-encephalogram (EEG). LKS affects the parts of the

brain that control comprehension and speech. The disorder usually

occurs in children between the ages of 5 and 7 years. Typically,

children with LKS develop normally but then lose their language

skills for no apparent reason. While many of the affected individuals

have seizures, some do not.

Brigett

>

> Hi All,

>

> I thought I knew of all the good boards but I obviously didn't

> because this is a great one and particularly for me because Apraxia

> is our biggest issue.

>

> Quick intro: We have a 7 year old who had perfectly clear language

> and normal social/cognitive processing but large motor delays and

> low tone until 21 months when he regressed and lost all ability to

> articulate except the occcasional clear word and phrase and whose

> processing and sensory systems went haywire. Did not get an ASD

> diagnosis until age 5, probably a combination of denial and the

fact

> that he is social and sweet with good eye contact but he really is

> very ASD but more than that he is a classic apraxic in that he

> gropes for words, some days words are easily said and fairly clear

> and the next day he can barely make an approximation. Before

Biomed

> intervention he would not really imitate on a consistent basis and

> his vocabulary was fairly limited. After 18 months of biomed he

> will imitate any word and knows the meaning (has good receptive

> language) has tons of vocabulary that is spontaneous and prompted

> and on good days puts 3 word phrases together. However, he is so

> inconsistent that I feel like we must be missing something. Right

> now everything that comes out of his mouth is so unintelligible I

> could cry. Last week he would say " piano " pretty darn well and

this

> week it is " peepaa " .

>

> If you all are kind enough to have read so far may I tell you his

> therapies and see if you think we are missing something? I would

> also love to know if you all think that VB therapy is

> counterproductive for apraxia, which I am beginning to think our 9

> hours a week of VB may be contributing to his artic issues.

>

> We are doing 1.5 hours of PROMPT a week. Have done PROMPT for

years

> but have had a 6 month break from it for various reasons and have

> really missed it. I practice KAUFMAN cards with him several times a

> week and he nails most of the sounds in the first half of the set

> but when he uses them in every day speech they break down. 2 hours

> of regular speech therapy with SLP who doesn't do prompt. 2 hours

> of Floortime. 6 hours of SMI motor planning school. 9 hours of VB

> therapy in a center based school and then lots of RDI, hang out

with

> Mom therapy. Our one year in the public school was a bust. Their

> goal for him was to label something in his classroom 4 times a

> week. They knew NOTHING about Apraxia.

>

> Is there some consensus on the list as the best way to get these

> kids talking in phrases and then sentences? Maybe this part of my

> son's problem is more than just motor planning.

>

> I am very excited about what I learned on this list about Fish oils

> and VItamin E. I have done CLO through the years and some 3-6-9

but

> not the protocols you all are having success with. PLan to start

> that this weekend.

>

> Thanks for reading; any advice, suggestions appreciated.

>

> Kind Regards,

> (mom to 2 in college, 1 in HS and our little surprise with

> Apraxia)!

>

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

>

Jule,

I will email you off list so we can brainstorm, thanks for

responding to my post. I'd love to hear what your new speech

program is.

Best,

> ,

> your son sounds just like my son. My son (Logan) is six and also

responds

> well to the Kaufman cards. We just started them six weeks ago and

he is taking

> off with it, but not without prompting.

> He was not saying anything except a few words before we learned

about his

> apraxia and then started with a new speech program.

> Please feel free to e-mail me and maybe we can pick each other's

brain.

> Jule

> mom to twins

> Olivia and Logan _DJVirtual@..._ (mailto:DJVirtual@...)

>

>

>

>

[Guest guest]

,

You sound like me! I have two adult kids, one who is 13 and a new

little surprise of my own with evolving issues!

Have you ever taken your son to a neurologist for a full workup and

eval? Has anyone ever mentiond Landau-Kleffner disorder to you?

This is just the first thing that occurred to me, but just a

thought...

What is Landau-Kleffner Syndrome?

Landau-Kleffner syndrome (LKS) is a rare, childhood neurological

disorder characterized by the sudden or gradual development of

aphasia (the inability to understand or express language) and an

abnormal electro-encephalogram (EEG). LKS affects the parts of the

brain that control comprehension and speech. The disorder usually

occurs in children between the ages of 5 and 7 years. Typically,

children with LKS develop normally but then lose their language

skills for no apparent reason. While many of the affected individuals

have seizures, some do not.

Brigett

>

> Hi All,

>

> I thought I knew of all the good boards but I obviously didn't

> because this is a great one and particularly for me because Apraxia

> is our biggest issue.

>

> Quick intro: We have a 7 year old who had perfectly clear language

> and normal social/cognitive processing but large motor delays and

> low tone until 21 months when he regressed and lost all ability to

> articulate except the occcasional clear word and phrase and whose

> processing and sensory systems went haywire. Did not get an ASD

> diagnosis until age 5, probably a combination of denial and the

fact

> that he is social and sweet with good eye contact but he really is

> very ASD but more than that he is a classic apraxic in that he

> gropes for words, some days words are easily said and fairly clear

> and the next day he can barely make an approximation. Before

Biomed

> intervention he would not really imitate on a consistent basis and

> his vocabulary was fairly limited. After 18 months of biomed he

> will imitate any word and knows the meaning (has good receptive

> language) has tons of vocabulary that is spontaneous and prompted

> and on good days puts 3 word phrases together. However, he is so

> inconsistent that I feel like we must be missing something. Right

> now everything that comes out of his mouth is so unintelligible I

> could cry. Last week he would say " piano " pretty darn well and

this

> week it is " peepaa " .

>

> If you all are kind enough to have read so far may I tell you his

> therapies and see if you think we are missing something? I would

> also love to know if you all think that VB therapy is

> counterproductive for apraxia, which I am beginning to think our 9

> hours a week of VB may be contributing to his artic issues.

>

> We are doing 1.5 hours of PROMPT a week. Have done PROMPT for

years

> but have had a 6 month break from it for various reasons and have

> really missed it. I practice KAUFMAN cards with him several times a

> week and he nails most of the sounds in the first half of the set

> but when he uses them in every day speech they break down. 2 hours

> of regular speech therapy with SLP who doesn't do prompt. 2 hours

> of Floortime. 6 hours of SMI motor planning school. 9 hours of VB

> therapy in a center based school and then lots of RDI, hang out

with

> Mom therapy. Our one year in the public school was a bust. Their

> goal for him was to label something in his classroom 4 times a

> week. They knew NOTHING about Apraxia.

>

> Is there some consensus on the list as the best way to get these

> kids talking in phrases and then sentences? Maybe this part of my

> son's problem is more than just motor planning.

>

> I am very excited about what I learned on this list about Fish oils

> and VItamin E. I have done CLO through the years and some 3-6-9

but

> not the protocols you all are having success with. PLan to start

> that this weekend.

>

> Thanks for reading; any advice, suggestions appreciated.

>

> Kind Regards,

> (mom to 2 in college, 1 in HS and our little surprise with

> Apraxia)!

>

[Guest guest]

> >

> > d

> >> > We are doing 1.5 hours of PROMPT a week. Have done PROMPT

for

> years

> > but have had a 6 month break from it for various reasons and

have

> > really missed it. I practice KAUFMAN cards with him several

times a

> > week and he nails most of the sounds in the first half of the

set

> > but when he uses them in every day speech they break down. 2

hours

> > of regular speech therapy with SLP who doesn't do prompt. 2

hours

> > of Floortime. 6 hours of SMI motor planning school. 9 hours of

VB

> > therapy in a center based school and then lots of RDI, hang out

> with

> > Mom therapy. Our one year in the public school was a bust.

Their

> > goal for him was to label something in his classroom 4 times a

> > week. They knew NOTHING about Apraxia.

> >

> > Is there some consensus on the list as the best way to get these

> > kids talking in phrases and then sentences? Maybe this part of

my

> > son's problem is more than just motor planning.

> >

> > I am very excited about what I learned on this list about Fish

oils

> > and VItamin E. I have done CLO through the years and some 3-6-9

> but

> > not the protocols you all are having success with. PLan to

start

> > that this weekend.

> >

> > Thanks for reading; any advice, suggestions appreciated.

> >

> > Kind Regards,

> > (mom to 2 in college, 1 in HS and our little surprise

with

> > Apraxia)!

> >

>

[Guest guest]

the more i read the more crazy i get.

qboomom <qboomom@...> wrote: ,

You sound like me! I have two adult kids, one who is 13 and a new

little surprise of my own with evolving issues!

Have you ever taken your son to a neurologist for a full workup and

eval? Has anyone ever mentiond Landau-Kleffner disorder to you?

This is just the first thing that occurred to me, but just a

thought...

What is Landau-Kleffner Syndrome?

Landau-Kleffner syndrome (LKS) is a rare, childhood neurological

disorder characterized by the sudden or gradual development of

aphasia (the inability to understand or express language) and an

abnormal electro-encephalogram (EEG). LKS affects the parts of the

brain that control comprehension and speech. The disorder usually

occurs in children between the ages of 5 and 7 years. Typically,

children with LKS develop normally but then lose their language

skills for no apparent reason. While many of the affected individuals

have seizures, some do not.

Brigett

>

> Hi All,

>

> I thought I knew of all the good boards but I obviously didn't

> because this is a great one and particularly for me because Apraxia

> is our biggest issue.

>

> Quick intro: We have a 7 year old who had perfectly clear language

> and normal social/cognitive processing but large motor delays and

> low tone until 21 months when he regressed and lost all ability to

> articulate except the occcasional clear word and phrase and whose

> processing and sensory systems went haywire. Did not get an ASD

> diagnosis until age 5, probably a combination of denial and the

fact

> that he is social and sweet with good eye contact but he really is

> very ASD but more than that he is a classic apraxic in that he

> gropes for words, some days words are easily said and fairly clear

> and the next day he can barely make an approximation. Before

Biomed

> intervention he would not really imitate on a consistent basis and

> his vocabulary was fairly limited. After 18 months of biomed he

> will imitate any word and knows the meaning (has good receptive

> language) has tons of vocabulary that is spontaneous and prompted

> and on good days puts 3 word phrases together. However, he is so

> inconsistent that I feel like we must be missing something. Right

> now everything that comes out of his mouth is so unintelligible I

> could cry. Last week he would say " piano " pretty darn well and

this

> week it is " peepaa " .

>

> If you all are kind enough to have read so far may I tell you his

> therapies and see if you think we are missing something? I would

> also love to know if you all think that VB therapy is

> counterproductive for apraxia, which I am beginning to think our 9

> hours a week of VB may be contributing to his artic issues.

>

> We are doing 1.5 hours of PROMPT a week. Have done PROMPT for

years

> but have had a 6 month break from it for various reasons and have

> really missed it. I practice KAUFMAN cards with him several times a

> week and he nails most of the sounds in the first half of the set

> but when he uses them in every day speech they break down. 2 hours

> of regular speech therapy with SLP who doesn't do prompt. 2 hours

> of Floortime. 6 hours of SMI motor planning school. 9 hours of VB

> therapy in a center based school and then lots of RDI, hang out

with

> Mom therapy. Our one year in the public school was a bust. Their

> goal for him was to label something in his classroom 4 times a

> week. They knew NOTHING about Apraxia.

>

> Is there some consensus on the list as the best way to get these

> kids talking in phrases and then sentences? Maybe this part of my

> son's problem is more than just motor planning.

>

> I am very excited about what I learned on this list about Fish oils

> and VItamin E. I have done CLO through the years and some 3-6-9

but

> not the protocols you all are having success with. PLan to start

> that this weekend.

>

> Thanks for reading; any advice, suggestions appreciated.

>

> Kind Regards,

> (mom to 2 in college, 1 in HS and our little surprise with

> Apraxia)!

>

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

>

Jule,

I will email you off list so we can brainstorm, thanks for

responding to my post. I'd love to hear what your new speech

program is.

Best,

> ,

> your son sounds just like my son. My son (Logan) is six and also

responds

> well to the Kaufman cards. We just started them six weeks ago and

he is taking

> off with it, but not without prompting.

> He was not saying anything except a few words before we learned

about his

> apraxia and then started with a new speech program.

> Please feel free to e-mail me and maybe we can pick each other's

brain.

> Jule

> mom to twins

> Olivia and Logan _DJVirtual@..._ (mailto:DJVirtual@...)

>

>

>

>

[Guest guest]

> >

> > d

> >> > We are doing 1.5 hours of PROMPT a week. Have done PROMPT

for

> years

> > but have had a 6 month break from it for various reasons and

have

> > really missed it. I practice KAUFMAN cards with him several

times a

> > week and he nails most of the sounds in the first half of the

set

> > but when he uses them in every day speech they break down. 2

hours

> > of regular speech therapy with SLP who doesn't do prompt. 2

hours

> > of Floortime. 6 hours of SMI motor planning school. 9 hours of

VB

> > therapy in a center based school and then lots of RDI, hang out

> with

> > Mom therapy. Our one year in the public school was a bust.

Their

> > goal for him was to label something in his classroom 4 times a

> > week. They knew NOTHING about Apraxia.

> >

> > Is there some consensus on the list as the best way to get these

> > kids talking in phrases and then sentences? Maybe this part of

my

> > son's problem is more than just motor planning.

> >

> > I am very excited about what I learned on this list about Fish

oils

> > and VItamin E. I have done CLO through the years and some 3-6-9

> but

> > not the protocols you all are having success with. PLan to

start

> > that this weekend.

> >

> > Thanks for reading; any advice, suggestions appreciated.

> >

> > Kind Regards,

> > (mom to 2 in college, 1 in HS and our little surprise

with

> > Apraxia)!

> >

>