Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 This is for everyone, that my have any advice on how to get Miranda to sit still, to take her breathing treatments. It is very difficalt! She does very well taking her med's! She is so active, always on the go. This past week she had RSV(upper resptory infection) We got her on Amoxicillin,200mg, and now she just has the cough & runny nose. The first couple day she really had me worried, I thought I was going to have to take her in to Albuqueque. But , thank goodness we have a great Dr. in our little town, that came to the house and got her what she needed. Her being the only one in town that has CF, our Dr. knows how mom get's. So she made a house call for us, It was so great of the her to do that! I am sure there are many of you that would love a Dr. to make house call's! After all it isn't easy to get an appt. when you really need one! This Dr. is not her CF, Dr. She is just our reguler Family Dr, But she is great!! O.k another question, How old does Miranda have to be to get one of those Vest? I don't know what they are called, was just reading someother e-mails on it. Thank You! Theresa (mo2) ,11yrs(ncf) & Miranda 18mons (wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 In a message dated 2/19/2002 9:13:57 PM Central Standard Time, tmpresher@... writes: > I do have a " ? " how do you make a 18mon old sit still to take there > treatments? Theresa, You get tapes of things they like or read books or we use to just look out the window and watch the birds she loved that. I would tell her that they are watching her because they have never seen someone wear a mask like that. She loved that and it kept her entertained. Hope this helps. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 In a message dated 2/19/2002 9:37:29 PM Central Standard Time, tmpresher@... writes: > O.k another question, How old does Miranda have to be to get one > of those Vest? I don't know what they are called, was just > reading someother e-mails on it. > Theresa, My youngest was able to use the vest about 3 months before she turned 2. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 We have a 7 month old, Jade, and a 2 year old,Chyann, both with CF, and we watch the Baby Einstein videos when we are doing our treatments. They work great for Jade and pretty well for Chyann. It is amazing how these videos keep their attention. Good Luck!! nna & > >Reply-To: cfparents >To: cfparents >Subject: Miranda 18mons. old >Date: Wed, 20 Feb 2002 03:36:44 -0000 > > This is for everyone, that my have any advice on how to get >Miranda to sit still, to take her breathing treatments. It is very >difficalt! She does very well taking her med's! She is so active, >always on the go. > This past week she had RSV(upper resptory infection) We got her on >Amoxicillin,200mg, and now she just has the cough & runny nose. The >first couple day she really had me worried, I thought I was going to >have to take her in to Albuqueque. But , thank goodness we have a >great Dr. in our little town, that came to the house and got her what >she needed. Her being the only one in town that has CF, our Dr. knows >how mom get's. So she made a house call for us, It was so great of >the her to do that! > I am sure there are many of you that would love a Dr. to make >house call's! After all it isn't easy to get an appt. when you >really need one! This Dr. is not her CF, Dr. She is just our reguler >Family Dr, But she is great!! > O.k another question, How old does Miranda have to be to get one >of those Vest? I don't know what they are called, was just >reading someother e-mails on it. > > >Thank You! >Theresa (mo2) >,11yrs(ncf) & Miranda 18mons (wcf) > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 --- tmpresher tmpresher@...> wrote: > This is for everyone, that my have any advice on > how to get > Miranda to sit still, to take her breathing > treatments. It is very > difficalt! She does very well taking her med's! She > is so active, > always on the go. > This past week she had RSV(upper resptory > infection) We got her on > Amoxicillin,200mg, and now she just has the cough & > runny nose. The > first couple day she really had me worried, I > thought I was going to > have to take her in to Albuqueque. But , thank > goodness we have a > great Dr. in our little town, that came to the house > and got her what > she needed. Her being the only one in town that has > CF, our Dr. knows > how mom get's. So she made a house call for us, It > was so great of > the her to do that! > I am sure there are many of you that would love a > Dr. to make > house call's! After all it isn't easy to get an > appt. when you > really need one! This Dr. is not her CF, Dr. She is > just our reguler > Family Dr, But she is great!! > O.k another question, How old does Miranda have > to be to get one > of those Vest? I don't know what they are > called, was just > reading someother e-mails on it. > > > Thank You! > Theresa (mo2) > ,11yrs(ncf) & Miranda 18mons (wcf) > > hi its me annette my son was 5 years old when he got his vest another thing you ask about how to keep her still to get her to do her breathing put a cartoon on that she might like i hope this works if not let me know your friend annette __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Hi Theresa, Randy here from the Vest Company (Advanced Respiratory). The fitting of the Vest is based on size. We found that usually 2 year olds are the right size for the Vest; however, we have given them to patients as young as 16 - 18 months. We look for a chest circumference of 20-21 inches. We can customize the Vest to fit someone smaller at no additional cost. The best thing to do is to let us and your MD know that you would like to try the Vest and we can work with you on that. If you would like mire info, let me know who your MD is or let me know where you live and I can have one of our local people contact you. You can also call the company at 1-. They can help you as well. As usual, I am always available to help. Call me @ 1- (toll free) and we will take care of you. Randy Miranda 18mons. old This is for everyone, that my have any advice on how to get Miranda to sit still, to take her breathing treatments. It is very difficalt! She does very well taking her med's! She is so active, always on the go. This past week she had RSV(upper resptory infection) We got her on Amoxicillin,200mg, and now she just has the cough & runny nose. The first couple day she really had me worried, I thought I was going to have to take her in to Albuqueque. But , thank goodness we have a great Dr. in our little town, that came to the house and got her what she needed. Her being the only one in town that has CF, our Dr. knows how mom get's. So she made a house call for us, It was so great of the her to do that! I am sure there are many of you that would love a Dr. to make house call's! After all it isn't easy to get an appt. when you really need one! This Dr. is not her CF, Dr. She is just our reguler Family Dr, But she is great!! O.k another question, How old does Miranda have to be to get one of those Vest? I don't know what they are called, was just reading someother e-mails on it. Thank You! Theresa (mo2) ,11yrs(ncf) & Miranda 18mons (wcf) PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Yes , you all give good advice. But, I have tried all of that in the past and it is still very difficalt. We, will just have to keep working at it! There will come a day where she will just sit still, for it. I don't know how long that will take, but we have alot of patient's! So Thank you. Keep in touch! Theresa, call anytime! Miranda, 18mons wcf annett paul syssie_71@...> wrote: --- tmpresher tmpresher@...> wrote: > This is for everyone, that my have any advice on > how to get > Miranda to sit still, to take her breathing > treatments. It is very > difficalt! She does very well taking her med's! She > is so active, > always on the go. > This past week she had RSV(upper resptory > infection) We got her on > Amoxicillin,200mg, and now she just has the cough & > runny nose. The > first couple day she really had me worried, I > thought I was going to > have to take her in to Albuqueque. But , thank > goodness we have a > great Dr. in our little town, that came to the house > and got her what > she needed. Her being the only one in town that has > CF, our Dr. knows > how mom get's. So she made a house call for us, It > was so great of > the her to do that! > I am sure there are many of you that would love a > Dr. to make > house call's! After all it isn't easy to get an > appt. when you > really need one! This Dr. is not her CF, Dr. She is > just our reguler > Family Dr, But she is great!! > O.k another question, How old does Miranda have > to be to get one > of those Vest? I don't know what they are > called, was just > reading someother e-mails on it. > > > Thank You! > Theresa (mo2) > ,11yrs(ncf) & Miranda 18mons (wcf) > > hi its me annette my son was 5 years old when he got his vest another thing you ask about how to keep her still to get her to do her breathing put a cartoon on that she might like i hope this works if not let me know your friend annette __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Thank you , we have tried alot of things, and Dora The Explorer on Nick Jr.. is the only show she will almost sit still for. I guess, I am doing everything you all are doing. She will get use to someday, i just need to be patient, I guess,huh? Thank you! nna Theresa mom of, Miranda 18mons(wcf)& Mikey11yrs(ncf) S&R Hoyle srhoyles@...> wrote: We have a 7 month old, Jade, and a 2 year old,Chyann, both with CF, and we watch the Baby Einstein videos when we are doing our treatments. They work great for Jade and pretty well for Chyann. It is amazing how these videos keep their attention. Good Luck!! nna & > >Reply-To: cfparents >To: cfparents >Subject: Miranda 18mons. old >Date: Wed, 20 Feb 2002 03:36:44 -0000 > > This is for everyone, that my have any advice on how to get >Miranda to sit still, to take her breathing treatments. It is very >difficalt! She does very well taking her med's! She is so active, >always on the go. > This past week she had RSV(upper resptory infection) We got her on >Amoxicillin,200mg, and now she just has the cough & runny nose. The >first couple day she really had me worried, I thought I was going to >have to take her in to Albuqueque. But , thank goodness we have a >great Dr. in our little town, that came to the house and got her what >she needed. Her being the only one in town that has CF, our Dr. knows >how mom get's. So she made a house call for us, It was so great of >the her to do that! > I am sure there are many of you that would love a Dr. to make >house call's! After all it isn't easy to get an appt. when you >really need one! This Dr. is not her CF, Dr. She is just our reguler >Family Dr, But she is great!! > O.k another question, How old does Miranda have to be to get one >of those Vest? I don't know what they are called, was just >reading someother e-mails on it. > > >Thank You! >Theresa (mo2) >,11yrs(ncf) & Miranda 18mons (wcf) > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Right now Pattimae is 14 months old. She likes to watch blue's clues or the wiggles durring breathing treatments and cpt. She will let me giver her a longer cpt with blue's clues than the wiggles though as she wants to get up and dance with them. :-) Dawn mom of 4, 6 and under, the youngest wcf --- tmpresher tmpresher@...> wrote: > This is for everyone, that my have any advice on > how to get > Miranda to sit still, to take her breathing > treatments. It is very > difficalt! She does very well taking her med's! She > is so active, > always on the go. > This past week she had RSV(upper resptory > infection) We got her on > Amoxicillin,200mg, and now she just has the cough & > runny nose. The > first couple day she really had me worried, I > thought I was going to > have to take her in to Albuqueque. But , thank > goodness we have a > great Dr. in our little town, that came to the house > and got her what > she needed. Her being the only one in town that has > CF, our Dr. knows > how mom get's. So she made a house call for us, It > was so great of > the her to do that! > I am sure there are many of you that would love a > Dr. to make > house call's! After all it isn't easy to get an > appt. when you > really need one! This Dr. is not her CF, Dr. She is > just our reguler > Family Dr, But she is great!! > O.k another question, How old does Miranda have > to be to get one > of those Vest? I don't know what they are > called, was just > reading someother e-mails on it. > > > Thank You! > Theresa (mo2) > ,11yrs(ncf) & Miranda 18mons (wcf) > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Does Miranda get angry during treatments? Sometimes Patti does. She just screams and fights and it is just terrible. One evening when she was doing this I thought, you know I am mad too, I don't want to be doing this either. I started giving her stuff to throw and told her encouragingly to go ahead and be mad. She had good reason and that she could be mad all that she wanted. The whole time I continued to do cpt. After a few minutes of us both ranting, raving, screaming, and throwing stuff she stopped. Now when ever she gets angry and wiggly we do the same thing. I think the old saying misery loves company (or at least empathy)is true. It doesn't take very long for her to stop a tantrum during cpt anymore when we do this. Dawn mom of 4, 6 and under, the youngest wcf __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 My 18 mo loves Dora. He also LOVES A Bug's Life, we have it on DVD, by Pixar/Disney. I cannot describe to you how effectively this captures his attention. It worked on my 3 yo when she was a toddler, too. It's got vivid colors. There is one slightly scary part where the mean grasshopper yells, but nothing compared to most Disney movies. I'm sure you know, since you have an 11 yo, that the saying " this too shall pass " goes a long way during the toddler stage. It's something of a mantra around here! *&~*&~*&~*&~*&~*&~*&~*&~*&~*&~&*~*&~*&~&*~*&~*&~&* mama to , 18 months old wCF and AATD and 3 years woCF and ?AATD > > Reply-To: cfparents > Date: Wed, 20 Feb 2002 11:54:29 -0800 (PST) > To: cfparents > Subject: Re: Miranda 18mons. old > > > Thank you , we have tried alot of things, and Dora The Explorer on Nick Jr.. > is the only show she will almost sit still for. I guess, I am doing everything > you all are doing. She will get use to someday, i just need to be patient, I > guess,huh? > Thank you! nna > Theresa mom of, Miranda 18mons(wcf)& Mikey11yrs(ncf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Hi Dawn, ya, Miranda loves Blues Clues, too. Miranda loves music, so maybe I will try and play music wail I do her treatments, maybe that is the trick. She is just so active, & I'm sure Pattie mae is too. I have got alot of good advice, from all of you. Thank you!! I just got word that we will soon be getting , the vest for her. And I hope it will go better then the cpt's & breathing treatments. So we will see, huh? Well, I have to run. So take care & my the lord bless you all!! Theresa mom to Mikey 11yrs. (ncf) & Miranda 18mons (wcf) Dawn Meeks dawnmomof4@...> wrote: Right now Pattimae is 14 months old. She likes to watch blue's clues or the wiggles durring breathing treatments and cpt. She will let me giver her a longer cpt with blue's clues than the wiggles though as she wants to get up and dance with them. :-) Dawn mom of 4, 6 and under, the youngest wcf --- tmpresher tmpresher@...> wrote: > This is for everyone, that my have any advice on > how to get > Miranda to sit still, to take her breathing > treatments. It is very > difficalt! She does very well taking her med's! She > is so active, > always on the go. > This past week she had RSV(upper resptory > infection) We got her on > Amoxicillin,200mg, and now she just has the cough & > runny nose. The > first couple day she really had me worried, I > thought I was going to > have to take her in to Albuqueque. But , thank > goodness we have a > great Dr. in our little town, that came to the house > and got her what > she needed. Her being the only one in town that has > CF, our Dr. knows > how mom get's. So she made a house call for us, It > was so great of > the her to do that! > I am sure there are many of you that would love a > Dr. to make > house call's! After all it isn't easy to get an > appt. when you > really need one! This Dr. is not her CF, Dr. She is > just our reguler > Family Dr, But she is great!! > O.k another question, How old does Miranda have > to be to get one > of those Vest? I don't know what they are > called, was just > reading someother e-mails on it. > > > Thank You! > Theresa (mo2) > ,11yrs(ncf) & Miranda 18mons (wcf) > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Dawn, I can just imagine how cute Pattiann is dancing to the wiggles! lol Aunt B -------------- to Rodney 11 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Dawn, I just love your way of thinking! Hope you keep lots of stuffed animals around during cpt -- just in case you two want to have a throwing tantrum! All jokes aside, i think that is the funniest and likely one of the best ways i have ever heard to stop a childs tantrum. Both my nephews have them, too! I will have to tell my sisters to give that idea a try! Aunt B ------------ to Rodney 11 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Theresa, We also use videos/kids shows such as others have mentioned and it does distract her. However, what has really worked for us is to time her therapy for when she is tired or already asleep. Her morning therapy I start when she is still sleeping. I pick her up and if I do it gently enough she will nuzzle up next to me for her neb and I just flip her over when I am done and start therapy. She usually wakes up during the middle of the morning therapy and when she starts to fuss I put on a kids show. If she is sick and needs a mid-day treatment, I wait until about an hour before she normally wakes up and do the same thing as I do in the morning. At night, we always start her treatments at 8 when she is ready to go to sleep. Once in a while, she will stay awake the whole time but about 90% of the time she just nods off before I even finish the nebulizer. We did have problems for a while, primarily it was when my husband did the therapy. When she did fuss, he was trying to hold her down and keep her still. On the other hand, I let her squirm and found that by deflecting her arms with my other hand that I could still do the therapy while she squirmed. I also angled her feet away from me so she couldn't push off me and could kick all she wanted. The end result being that she soon grew tired of squirming since it didn't really seem to make mommy stop. Eventually, I convinced my husband to do this as well and she only occasionally acts up for him now. If she should happen to cry, I stroke her hair with my free hand and gently talk to her in a very calm rhythmic tone sort of like they do on relaxation tapes or I sing softly to her songs that I made up about her. This usually does the trick. - mom to Emma 19 months w/cf and Isabelle 3 years wo/cf On Wed, 20 Feb 2002 03:36:44 -0000 " tmpresher " tmpresher@...> writes: > This is for everyone, that my have any advice on how to get > Miranda to sit still, to take her breathing treatments. It is very > difficalt! She does very well taking her med's! She is so active, > always on the go. > This past week she had RSV(upper resptory infection) We got her > on > Amoxicillin,200mg, and now she just has the cough & runny nose. The > first couple day she really had me worried, I thought I was going to > > have to take her in to Albuqueque. But , thank goodness we have a > great Dr. in our little town, that came to the house and got her > what > she needed. Her being the only one in town that has CF, our Dr. > knows > how mom get's. So she made a house call for us, It was so great of > the her to do that! > I am sure there are many of you that would love a Dr. to make > house call's! After all it isn't easy to get an appt. when you > really need one! This Dr. is not her CF, Dr. She is just our > reguler > Family Dr, But she is great!! > O.k another question, How old does Miranda have to be to get one > > of those Vest? I don't know what they are called, was just > reading someother e-mails on it. > > > Thank You! > Theresa (mo2) > ,11yrs(ncf) & Miranda 18mons (wcf) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 She is so funny! She hangs on to the stero cabinet and shakes her little butt like you wouldn't believe. :-) She is trying to hop now as she has seen her bigger sister do this so she shakes and then stomps really hard with one foot and makes monkey noises at the same time. (her favorite song of theirs is Do the Monkey) I have to video it before some one tells her we are baptists!! :-) Dawn mom of 4, 6 and under, the youngest wcf --- cyxty5rss@... wrote: > Dawn, > I can just imagine how cute Pattiann is dancing to > the wiggles! lol > Aunt B -------------- to Rodney 11 wcf > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Actually we throw yarn balls as all of my chrocheting stuff is right there by the same chair. :-) Dawn mom of 4, 6 and under, the youngest wcf --- cyxty5rss@... wrote: > Dawn, > I just love your way of thinking! Hope you keep > lots of stuffed animals > around during cpt -- just in case you two want to > have a throwing tantrum! > All jokes aside, i think that is the funniest and > likely one of the best ways > i have ever heard to stop a childs tantrum. Both my > nephews have them, too! > I will have to tell my sisters to give that idea a > try! > Aunt B ------------ to Rodney 11 wcf > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Theresa, You go girl! Loved reading about your eye dr troubles. Very funny---especially the rest of the day! Hubby is one of those people who are way too impatient to wait at he doc's office. He sends them a bill for the time past his appointment. So far, he has never gotten a bill paid he sent but he always gets in on time next visit! lol Aunt B ------------ to Rodney 11 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hello Everyone! Hope all of you are well! I need to vent alittle, Today Mikey, my 11yr (wncf) had a Eye Dr.'s appt. in Lovington,witch is 30miles away. His appt. is at 11:30am. I go and get there at 11:15am. We sat in there for 1:hr, Miranda was getting very hungry, and getting crankyer by the min. Then there was this lady in there , waiting on her appt. we are talking the kids are playing , having a good time . This is what she said to me about Miranda. She is so tiny, for being 18mons old, well I have to explain to her what Cystic Fibrosis is! Sometime, I get a little defencive when it comes to people remarking about how tiny , my little girl is! It's very heart wrenching!! Then , the Lady behind the desk, never tell us the Dr. left for lunch, WELL HOW CONVENIENT IS THAT!!! Boy, I was mad, I told Mikey , sorry son but I am not waiting for him to get done with his lunch, When our time is more valueable that!! We got up and walked out. In April we go back for Miranda's CF appt, & Eye check up. So I will just make his appt. after Miranda's and get it done all right there! We have gone to Eye Assosiates 30mins early and they always rushed use in and out! Never had to sit and wait, how rude, huh? I just don't like it when, You are on time and sometimes early, and you wait & wait & wait,! But there are just some Dr.'s offices that just don't CARE!! That must be what it is ! Or why would a Dr. be so rude!! O.k after we walked out we went to Sonic and had a great lunch with Dad. We all don't get together for lunch to often! So it was nice and I got to tell him all about it!! Ha, Ha! Big Mike said, he would have did the same thing!! So then we went shopping, What Mommy & Miranda love to do!! ha, ha She loves to push the cart all over! She look's around & gabbers out some little lingo, It's so darn cute! My Husband just got a kick out of her today, Well, after all that we went home and she had a very long nap. We got her The Interactive Pooh Bear today, It goes to the computer and it talk's to her, say's her name. She loves Pooh! It's really educational. I think it is going to bring her many hours of happieness. And of course we all got something special, too! Well, My the lord watch over Each & Everyone of you!! Thank you for letting me rat & rave, lol Theresa of 11yrs (ncf) & Miranda 18mons (wcf) Ware mamabear@...> wrote: My 18 mo loves Dora. He also LOVES A Bug's Life, we have it on DVD, by Pixar/Disney. I cannot describe to you how effectively this captures his attention. It worked on my 3 yo when she was a toddler, too. It's got vivid colors. There is one slightly scary part where the mean grasshopper yells, but nothing compared to most Disney movies. I'm sure you know, since you have an 11 yo, that the saying " this too shall pass " goes a long way during the toddler stage. It's something of a mantra around here! *&~*&~*&~*&~*&~*&~*&~*&~*&~*&~&*~*&~*&~&*~*&~*&~&* mama to , 18 months old wCF and AATD and 3 years woCF and ?AATD > > Reply-To: cfparents > Date: Wed, 20 Feb 2002 11:54:29 -0800 (PST) > To: cfparents > Subject: Re: Miranda 18mons. old > > > Thank you , we have tried alot of things, and Dora The Explorer on Nick Jr.. > is the only show she will almost sit still for. I guess, I am doing everything > you all are doing. She will get use to someday, i just need to be patient, I > guess,huh? > Thank you! nna > Theresa mom of, Miranda 18mons(wcf)& Mikey11yrs(ncf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Theresa, I know how you feel about waiting. The longest I waited for an appt. was 3 hours! It was an OB appt. when I was pregnant with my first daughter. I didn't have a watch and there wasn't a clock in the waiting room. Well, you know how you're waiting for an appt. and 10 minutes seem like forever so I really didn't think I had waited that long till I finally asked someone what time it was, lol. I was thinking an hour had to have gone by but didn't realize 3 hours had. I can't believe your son's doctor left for lunch with patients still waiting and they didn't tell you that. Karrie mother to Chasity age 6 1/2, normal and healthy and Abby age 4 1/2 microcephaly, severe developmental and physical delays, epilepsy, pachygyria, Congenital CMV and possible Cystic Fibrosis. The list is growing. www.clik.to/abigail Re: Miranda 18mons. old > > > > > > Thank you , we have tried alot of things, and Dora The Explorer on Nick Jr.. > > is the only show she will almost sit still for. I guess, I am doing everything > > you all are doing. She will get use to someday, i just need to be patient, I > > guess,huh? > > Thank you! nna > > Theresa mom of, Miranda 18mons(wcf)& Mikey11yrs(ncf) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Hello there this is david i wanted tell you all that i have been throgh this before and at this time i can remeber going to the doc and then they are not ready for me i have to say what you did was very brave to walk out i have never walked out i thank the doctors offices have no idea what is going on with what is out side i have went there and sat all day one day i fell asleep because i was so ill and they finially came to me at the end of the day then they were concerend so if you dont stay on them they will forget you this sucks i hope that the clincs inprove this but i bet that they wont anyway just wanted to share dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Theresa, I was reading your email yesterday but decided to go get some lunch hope you don't mind waiting for a reply! just kidding. I would have walked out too. Can you imagine anyone in any other job field doing that to their customers. Sometimes at work I'm lucky if I can grab a carrot stick as I run past the desk nevermind a break! Ha I guess once you get MD after your name you are no longer held by the rules of politeness in modern society. Take care. Your kiddos sound like real cutie pies. Love, , mom of Allie 3wcf and Connor no cf and on our way back to s Hopkins today :-( Re: Miranda 18mons. old > > > Thank you , we have tried alot of things, and Dora The Explorer on Nick Jr.. > is the only show she will almost sit still for. I guess, I am doing everything > you all are doing. She will get use to someday, i just need to be patient, I > guess,huh? > Thank you! nna > Theresa mom of, Miranda 18mons(wcf)& Mikey11yrs(ncf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hello to all, How have things been going? I hope all is well! Well, Miranda is doing great! We are all over the terrible cold. She still has runny nose, but its not the icky stuff, just clear. Amen!!!! We also got word, that she is going to be fitted for her Vest, in April the 8th. So we are very excited for that appt. Can't wait!! lol Just thought you all would like to here that! Big Thank you to Randy & Kathy at The Vest Company!!!!! Well, I thought I would let you know , we are doing good! I hope all of you are, too! We are still here, Just have not had time to type. I have been reading the posts, though! This is such a great group, I am so happy there is something, that we can go to and get cheered up, by all the great people out there!! But, then there are time when I just could not read anymore, to sad! My the lord watch over the ones we love so much & the one's we care for!!! Theresa, mom to 11yrs. (ncf) & Miranda 18mons. (wcf) > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 GREAT!!! & Thanks for yourmessage. I am very thrilled that it worked out for you and your Miranda LOVE & HUGS, GrandmomBEV Re: Miranda 18mons. old Hello to all, How have things been going? I hope all is well! Well, Miranda is doing great! We are all over the terrible cold. She still has runny nose, but its not the icky stuff, just clear. Amen!!!! We also got word, that she is going to be fitted for her Vest, in April the 8th. So we are very excited for that appt. Can't wait!! lol Just thought you all would like to here that! Big Thank you to Randy & Kathy at The Vest Company!!!!! Well, I thought I would let you know , we are doing good! I hope all of you are, too! We are still here, Just have not had time to type. I have been reading the posts, though! This is such a great group, I am so happy there is something, that we can go to and get cheered up, by all the great people out there!! But, then there are time when I just could not read anymore, to sad! My the lord watch over the ones we love so much & the one's we care for!!! Theresa, mom to 11yrs. (ncf) & Miranda 18mons. (wcf) > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Theresa, Yippiieeiiiyaaay! That's some really great news. You and Miranda will both enjoy her having the vest. Thanks for letting us know the really great news. Kepp us posted. Aunt B ---------------- to Rodney 11 wcf Quote Link to comment Share on other sites More sharing options...
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